Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Argh


Leper Messiah

Recommended Posts

Leper Messiah Apprentice

Oh man, I must have the most sensitive reaction to gluten ever.

I went to work today in a positive frame of mind, it's been two weeks since my last glutenning so this is when improvements start, and continue dramatically over the following week. So of course I was anticipating this and walking to work with a :).

It was a cold day so wrapped up and walked to work, however I got tap nose en route and it started streaming down my lip to my mouth. I'm understandably sensitive to things touching my mouth in anycase but unfortunately I didn't have a plastic pack of tissues to hand so I thought I'll gently wipe it with my sleeve.

I did think at the time, 'will I be safe?' but thought I was being too OCD about it. Of course when I took a gulp of water at work, bang....glutenned. Should have went to the toilet and rinsed my mouth out, stupid.

This is exactly 2 weeks since my last gluttening - which I thought at the time was the most ridiculous, I touched a banana before eating at work where tons of folk eat sandwiches at their desks so there's probably gluten all over the desks/files/everywhere.

Residual gluten, like peanuts, I guess is everywhere but it's so difficult mentally this disease, you think you're on top only for it to kick you in the nuts in a whole new way.

I mean that's 6 weeks of my life taken away by two ridiculously minor infractions. This would be draconian as a federal/criminal punishment!!

And of course I organised a poker night for this Saturday on the basis that I would be a bit better....sods law!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I'm sorry, but it's hard to believe you got glutened simply wiping your nose on your sleeve or a gulp of water at work.

And any new folks, this simply in NOT something your average person with celiac has to worry about.

richard

Booghead Contributor

I'd say that did not happen because of gluten. Something else maybe. ;)

dilettantesteph Collaborator

I am extremely sensitive but I must admit that I don't understand how you got glutened either. What is tap nose? Is there something about it which would gluten you if it touched your lip? Is there a reason why your sleeve would have gluten on it? Is there something wrong with the water at work?

I am so sorry that you are feeling sick. It is so hard to deal with each setback.

Leper Messiah Apprentice

No it wasn't the water per se, it was the fact there was likely to be gluten on my sleeve which was then transferred onto my mouth and then swallowed by drinking the water. I stopped cleaning so hard at home, and instead rely on plastic plates, cups, disposable everything basically as I tried the cleaning route but I was getting glutenned on average twice a week and I could spend 1-2 hours a day cleaning and still get glutenned. No idea how it got on my coat but my flatmate eats a lot of gluten so it's not a big surprise.

Thanks Steph, trying to be positive and now looking forward to a couple of weeks on when I should be there again. Time to batten the hatches.

Richard - whilst I appreciate your feedback, I'm literally on the floor with tiredness today so whilst it may be hard to believe, it happened. I wish I knew exactly how it happened, i.e. seen the trace gluten or whatever but the last 6 months I've been glutenned by things I cannot physically trace. Just be glad you aren't this sensitive!

I also want to know why my reaction to gluten is so different and a lot more sensitive than others. It's bad enough avoiding gluten but this is so difficult, especially when I get so close as well. Makes me think, is this sustainable over the long term...I mean I literally have to watch anything that touches my mouth, and that doesn't appear to be the case with most folks who have to avoid gluten.

beebs Enthusiast

If you are that sensitive then maybe you should make your home gluten free??? Others in your house won't die for not eating gluten while they are around you and then they can just eat it when they are out?? Is that an option for you?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,047
    • Most Online (within 30 mins)
      7,748

    terri migut
    Newest Member
    terri migut
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.