Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Comments From Others


Googles

Recommended Posts

Googles Community Regular

Does it annoy you when others make comments about your celiac. I was at practicum the other day and one of the interns brought in cookies. We were all waiting in the little kitchenette area and one of the staff (as people were eating cookies) 'at least you don't have to worry about eating these'. It was so frustrating. I just was like "uh, huh." When I really wanted to say was, "WTF? I wish I could eat those things. It would make my life a lot easier." Ugh. I know she was just trying to make it less awkward, and I realized this right after I took a breath. I wish people weren't uncomfortable eating around me. I've gotten over it (most of the time) when people eat around me. I wish they would be comfortable. I don't even have gluten cravings after getting glutened any more (knock on wood). I wish I could just tell people in my life to not worry about me and food and they would believe me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

I understand. Funny how it usually isn't about YOU but about them, isn't it?

I can't knock people too much, I remember the days of blissful ignorance....

thleensd Enthusiast

LOL.... I know what you mean. People in general don't know what to say about a lot of touchy topics: illnesses, weight loss, break ups... I try to laugh it off. I'm not always successful but I try. ;-)

Today at a holiday concert there were free cookies. I'm learning to be happy for other people ( :P ) and so as I walked past an aquaintance eating cookies at the table (that smelled #$%^&* good, darnit!) I said, "mmm, cookies!" She said, "yeah! Oh, and you should try the Roca! ..ur, uh um... wait, you can't have any, can...voice trails off...SORRY!"

I just laughed and waved her off. I don't keep track of what people do and don't eat, so it's just funny. My celiac disease made me very ill, so it was kind of high profile.

I'm glad they care. I wish it wasn't awkward. Oh well.

AVR1962 Collaborator

I like the thought that was in your head, probably would have shocked them to have the words actually come out of your mouth. They have no clue!!

Yesterday morning I was cooking myself some sausage for breakfast and husband says with this pouty whine in his voice, "oh eating what I can't have." BS! He has problems with gout so he had to limit his meats, or at least is supposed to. If he gets too much meat on a continual basis he will get a flare-up in his toe. However, he does take daily meds for this and they can increase the dosage, it's not like there is no solution. I turned to him and told him that actually he could ahve the sausage if he just ate less meat the rest of the day. Who was it that totally pigged out and gorged themselves at the Christmas dinner buffet we went to recently, regradless of that 6 oz meat guideline? And who was stuck eating salad and fruit because everything was loaded with gluten? Who is going without? Ugh, people!!!

pricklypear1971 Community Regular

LOL.... I know what you mean. People in general don't know what to say about a lot of touchy topics: illnesses, weight loss, break ups... I try to laugh it off. I'm not always successful but I try. ;-)

Today at a holiday concert there were free cookies. I'm learning to be happy for other people ( :P ) and so as I walked past an aquaintance eating cookies at the table (that smelled #$%^&* good, darnit!) I said, "mmm, cookies!" She said, "yeah! Oh, and you should try the Roca! ..ur, uh um... wait, you can't have any, can...voice trails off...SORRY!"

I just laughed and waved her off. I don't keep track of what people do and don't eat, so it's just funny. My celiac disease made me very ill, so it was kind of high profile.

I'm glad they care. I wish it wasn't awkward. Oh well.

I would have laughed and said "I can have cookies, just not THOSE".

Yeah, people don't get the part about glutenous foods making me see rat poison. I gave NO DESIRE to eat it.

I do look at stuff and think "how can I recreate THAT???". but that's really the extent of it.

Sure, there are a few things that pull at my heart strings but it just ain't worth it.

lynnelise Apprentice

My husband was being pouty about being the DD at his own company Christmas party. It's a fancy dinner at a lovely resort with the best food and I can't eat anything but salad. You better believe I'm taking advantage of the open bar! lol! Trust me I love food, I'd much rather pig out at the dinner than drink!!!

Aside from celiac I have chronic mono so I feel beyond tired and generally horrible the majority of the time. I get a lot of people who say they understand because "I was too tired to get to the gym this morning" or "the holidays wear everybody out". I guess they are trying to be supportive but really they are just minimizing my concerns.

bumblebee-carnival Newbie

I'm back in college and one of my teachers bought the class pizza on our last day. She said to me, "Have some pizza." I said, "Thanks, but I am gluten intolerant." She looked at me and said, "You want a breadstick?" Me and another girl looked at each other and started cracking up. I said, "Um, thank you, no." She then turned around and said, "Wait? What did you say?" Then we all started laughing. Her brother has celiac, so she knew all about it and had just heard me wrong. But it was hilarious at the time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

I'm back in college and one of my teachers bought the class pizza on our last day. She said to me, "Have some pizza." I said, "Thanks, but I am gluten intolerant." She looked at me and said, "You want a breadstick?" Me and another girl looked at each other and started cracking up. I said, "Um, thank you, no." She then turned around and said, "Wait? What did you say?" Then we all started laughing. Her brother has celiac, so she knew all about it and had just heard me wrong. But it was hilarious at the time.

Glad you have a sense of humor, bumblebee! It goes a long way when we run into moments like this!

Googles Community Regular

So at the same position, my supervisor was giving all the interns candy. She said that as she was packing it up she was hoping that I would be able to eat what she got. She had caught me on a day where I was really tired and had to literally think hard as to if I could eat the Hershey kisses she had given me (given they were out of the original package so I didn't just have an ingredient list). She was so sweet to think about that. She knows because as my supervisor I had to tell her for any accommodations I might need, but it was so sweet of her to think of me.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748

    Michelle C.
    Newest Member
    Michelle C.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Marsh 3b is the Gold Standard of diagnosis for Celiac Disease.  Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you,  you were having constant symptoms..  Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal.  Gluten acts on the Opiod receptors to numb your body.  Some report withdrawal symptoms on GFD.  I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up.  Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings.  Stopped at a Wendys on the way home and the next day I was drinking again.  20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary.  Back in 1976 my son was diagnosed at weaning with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic.  At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free.  Well, I forgot that promise until I was 63.  Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back.  Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency.  It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) the small intestin in Celiac Disease and sometimes ttg(3) in skin in Dermatitis Herpetiformus.  Why is poorly understood.  In fact, it wasn't even know that wheat, barley and rye gluten was the cause.  Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So as part of your symptoms you must deal with those deficiencies.  Especially vitamin D because it contols your immune system.  Virtually all newly diagnosed Celiacs have vitamin D deficiency.  There are about 30 vitamin and minerals that are absorbed in the small intestine.  With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency.   As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were sypmptos. Our western diet has many deficiencies build into it.   That is the reason foods with gluten are fortified.  Gluten free processed food are not required to fortify.  Vitamin D, Iodine, choline.  The B vitamins, especially Thiamine (B1) run deficient quickly.  We only store enough thiamine for 2 weeks for symptoms can come on quickly.  Magnesium, zinc, etc. each having its own symptoms affecting multiple systems.  High homocystene, and indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12.  Brain fog, deficient choline, iodine, thiamine. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study    
    • Rogol72
      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Scott Adams
      I am only wondering why you would need to cut out rice? I've never heard of rice being any issue in those with DH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.