Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What About You? Bmi And Dh


Di2011

Recommended Posts

Di2011 Enthusiast

I have just read this

Open Original Shared Link

and wonder what others experience has been ?

I was always overweight and bloated when on gluten. I can't remember when the bloating subsided but it was definitely an early sign that gluten wasn't for me. I could never lose weight unless I was exercising to the max and even then it was fat to muscle, not weight loss. I don't eat a lot differently now minus the bits of gluten containing products I never really liked and more often avoided - have lost weight and now wonder why I was a bloated, overweight, undereating gluten intolerant person. Hence coming across this article.

So was just curious about whether you are or aren't in the heavy/overweight range? Or not?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lil'chefy Apprentice

I have just read this

Open Original Shared Link

and wonder what others experience has been ?

I was always overweight and bloated when on gluten. I can't remember when the bloating subsided but it was definitely an early sign that gluten wasn't for me. I could never lose weight unless I was exercising to the max and even then it was fat to muscle, not weight loss. I don't eat a lot differently now minus the bits of gluten containing products I never really liked and more often avoided - have lost weight and now wonder why I was a bloated, overweight, undereating gluten intolerant person. Hence coming across this article.

So was just curious about whether you are or aren't in the heavy/overweight range? Or not?

I very commonly have been bloated. I remember for my prom, when my date took me out to dinner, I ate a salad, b/c I was so scared of bloating up in my dress. I wake up feeling normal and unbloated, but go to sleep feeling fat and huge.

I have had a life long battle with my weight. When I was an infant the doctor instructed my mother to feed me cream of rice and ceam of wheat @ 2 months. Evidently I had colic and they concluded that I wasn't get satiated. That is officially when my life long battle started. When I was growing up I was on a perpetual diet. Geez, when I think about it it's no wonder I have such food "issues". Instead of my mom packing me chips, a pb&j, and an apple, she packed me 1/2 a pb&j, celery, and 1/2 an apple. I was still consistently 5 lbs. heavier than all my friends. MMy mom watched my diet like a HAWK! I was always hungry. My mom would make us cream of wheat (mine with sweet and low packets) everyone else's with sugar and maple syrup. My parents had me on a trampoline with hand weight for 1/2 hours at a time from the age of 7. My mom was beautiful and couldn't stand the idea of having a heavy child. She counted the calories I ingested, but still the tendency to be overweight persisted.

When I became responsible for my own diet things really spiraled out of control. As a young adult, I reached as high as 238 lbs. @ 5' tall. That's when I got serious about losing weight. I think when I started making my own choices, after so many years of restrictions, I gorged on everything imaginable (emotional eating). Since my DH was controlled with Dapsone, and my docs had placed no importance on the Gluten-Free diet, I was just eating til my hearts content. Honestly though, probably not eating anymore than anyone else my age, but for some reason, I always processed my food into fat, even gain weight differently than everyone else I know. I have to kick my A$% to llose weight; live to work out and do cardio. Now after having 2 children, one with IUGR (intrauterine growth restriction)I am only 10 lbs. over my optimum weight (135 vs. 125), but it is a constant long hard battle, that I must relentlessly fight harded than anyone I know.

I have been Gluten-Free for 4 days now.... Bloating is almost completely gone...pants fit the same in the morning as they do the night!

pricklypear1971 Community Regular

I started to gain weight right before I got pregnant...thought it was "turning 30". I had always put it on easily but could take it off easily.

After my son I just couldn't get moving (I think that was the second trigger, or nail in the coffin for me and autoimmune issues - pregnancy).

I never could get back in shape and lose the last 10-15 lbs of baby weight. Weight kept going up, I kept getting more exhausted regardless of diet. Couldn't exercise because my muscles just didn't work right - had no stamina.

Finally got on thyroid meds and most things improved except the muscle and stamina part.

Gained more weight, finally lost some, started gaining it back without cause as the Celiac worsened the last year.

I remember having a few moments of sanity when I saw pics of myself and thinking "you don't look fat, you look swollen". But that epiphany would fade....

When I got off gluten I realized how "puffy" I was. My skin literally started shrinking down on my skin. I haven't weighed, but I have lost weight. My clothes fit differently.

I really lost weight during the hypoglycemia phase. I think I gained some back since I haven't been working out and I have been able to eat a few sweets for the first time in months.

But yeah, I couldn't drop the weight and my muscle tone is terrible. That's from years of not being able to use them. I'd try to work out and literally just shake. I'd get dehydrated or something. It was terrible. And I KNOW WHAT I CAN LOOK LIKE WHEN I WORK OUT. That's what really sucks.

When my rash first broke out my ob/gyn insisted on screening me for diabetes. He said it was a diabetes rash. He was surprised when it came back undoubtedly negative.

itchy Rookie

I'm just a few pounds over my ideal weight, and have never had a weight problem.

Interesting study.

squirmingitch Veteran

I've never been overweight in my life. My mother wasn't either & I am now positive she had dh also although hers only occurred in her scalp.

eatmeat4good Enthusiast

I am 5 ft tall but have been up to 200 pounds several times in my life...always came with severe depression/anxiety and diarrhea. Later DH sores. Was 180 when I realized I had Celiac. Now 115 and eat way more than I did when I was fat. Muscle tone is still improving one year gluten free. DH was my worst symptom...and the last to go.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,555
    • Most Online (within 30 mins)
      7,748

    JMF
    Newest Member
    JMF
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.