Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed

charlotte-hall

By charlotte-hall
in Coping with Celiac Disease

Recommended Posts

charlotte-hall Apprentice
charlotte-hall
Posted

I've recently been confirmed with Coeliacs and I'm experiencing lots of symptoms including my throat. Its very difficult to describe how it feels but sometimes it feels like it has a lump in it, and a feeling sick sensation but from the throat. I have had Coeliac symptoms for about 3 months and this has been there throughout.

How long after eating gluten free will I start to feel better? I'm currently looking at all the food that would be safe to eat, however was surprised that ham contained wheat. Is there anything else that would appear safe but is not?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sa1937 Community Regular
sa1937
Posted

How long after eating gluten free will I start to feel better? I'm currently looking at all the food that would be safe to eat, however was surprised that ham contained wheat. Is there anything else that would appear safe but is not?

Welcome, Charlotte! You've just asked the million dollar question and one that all of us ask when we first go gluten-free. There really is no answer as to how long it will take. For me personally I felt better pretty quick but still had issues to deal with until this fall. Heck, I still don't know if I'm there yet but I assume I am still healing.

Here in the U.S. I think a lot of ham would be gluten-free and not contain wheat unless it was present in a glaze or sauce. Even though a lot of ham is safe here, diligent label reading is a must. Where are you from?

pricklypear1971 Community Regular
pricklypear1971
Posted

Did they screen you for thyroid disease? A lump in the throat feeling is a good reason to be screened, in addition to Celiac.

charlotte-hall Apprentice
charlotte-hall
Posted
  • Author

I'm from England. I have had symptoms for 3 months, and the doctor took blood tests and it came back showing Coeliac disease, and I have been checked for thyroid and that came back fine.

JonnyD Rookie
JonnyD
Posted

I was diagnosed celiac via bloodtest. During my scope, I found out that I also have Eosinophilic Esophagitis (EE), which is another auto-immune disorder affecting the esophagus. I've read a lot about it and even tried medication with some marginal success. My throat is often 'tingly' after I eat and I've occasionally gotten food caught in it when it's really inflamed. I think I recently stumbled onto the allergy that triggers my EE to get bad - Rice! I've been gluten free for about 11 months now but my throat was really bothered since most of my replacement foods were rice-based. I quit rice a few days ago and have had improving symptoms ever since. I'm hoping this is the culprit since I don't want to have to do a full elimination diet to identify any other potential triggers.

I'm only mentioning this as a possibility since you specifically mention the throat as a problem.

You could start keeping a food diary and see if your throat is more bothersome when you eat certain foods.

Good luck!

charlotte-hall Apprentice
charlotte-hall
Posted
  • Author

I've kept a food diary, and I can't see that my throat is worse after eating any food in particular :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,092
    • Most Online (within 30 mins)
      7,748
    Ehill03
    Newest Member
    Ehill03
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Inflammation and Menier’s disease link?

      By trents · Posted

      No. There is no damage done to the gut lining with NCGS.
    • MagsM
      Inflammation and Menier’s disease link?

      By MagsM · Posted

      Hi Trents, Thanks for the feedback. Yes, I do have concerns about NCGS. Would this show up if I did the endoscopy testing?
    • trents
      Inflammation and Menier’s disease link?

      By trents · Posted

      @MagsM, It concerns me that your physicians seem to be preoccupied with the concept of "classic celiac disease".  That suggests to me their knowledge of celiac disease may be dated and they don't have a concept yet for the "silent celiac" who doesn't manifest with classic GI symptoms.
    • MagsM
      Inflammation and Menier’s disease link?

      By MagsM · Posted

      I have copied in a summary of my latest bloodwork from ChatGPT below. My GP will not refer for any further investigation and given that I do not have gastric distress symptoms it doe seem that I do not have classic Celiac but may have some malabsorption issues. I am now considering just going forward with a gluten free regimen and tracking symptoms. I will see the Consultant Otolaryngologist tomorrow and will share these results. I have already ordered the B-Complex and Benfotiamine and will start that regimen soon. Any feedback and your amazing expertise truly appreciated... Key Immunological and Nutritional Findings Test Result Normal Range Interpretation Tissue Transglutaminase IgA.   <0.2 U/mL.      <7.0 =            Negative   Strongly negative — rules out celiac disease Endomysial Antibodies (IgA).    <10                                         Negative   Supports absence of celiac disease Total IgA                                       1.94 g/L            0.65–4.21.   Normal IgG / IgM                                      8.47 / 2.04 g/L                      Normal.      Normal immune status ✅ These results do not indicate immunodeficiency. IgA is sufficient to make celiac testing valid, and IgG/IgM are in normal range. ⚠️ Nutritional / Absorption Concerns TestResultNormal RangeInterpretation Folate (B9)        3.1 ng/mL.          3.1–20.5.       Low-normal — borderline deficient Total Protein.    63 g/L.                 64–83          Slightly low Ferritin.              33 ng/mL.           15–150.        Normal, but low-normal; could reflect depleted stores 📌 This constellation of results suggests possible subtle malabsorption, suboptimal nutrient intake, or a functional GI issue — even in the absence of celiac disease. 🔄 Implications for Ménière’s and Autoimmunity While there's no evidence of classic autoimmune disease or celiac, subtle immune dysregulation and non-celiac gluten sensitivity (NCGS) cannot be ruled out. Your symptoms and lab pattern could still fit with an immune-mediated or inflammatory trigger for Ménière’s flares. Borderline nutrient deficiencies (folate, protein) may affect inner ear function or neuronal stability, indirectly exacerbating symptoms. Nutrient absorption issues might stem from subclinical GI inflammation, dysbiosis, or food sensitivities. 💬 Suggested Talking Points for Consultant Could a functional immune or inflammatory mechanism be driving Ménière’s in the absence of overt autoimmunity? Does a trial of immunomodulatory therapy (e.g., steroids, antihistamines) make sense if flares persist despite dietary changes? Would referral to a GI specialist or dietitian be appropriate, given borderline folate, protein, and symptom profile? Continue gluten-free diet trial for 4–6 weeks to assess symptomatic improvement, even in absence of celiac serology. Explore possibility of non-IgE food sensitivities or mast cell activation, especially if symptoms are episodic and food-triggered.      
    • Wheatwacked
      Should I ask for more testing? Celiac vs. Gluten Sensitivity

      By Wheatwacked · Posted

      It seems the "fad" diet is working for you.  
×
×
  • Create New...