Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D Supplement

Tigercat17

By Tigercat17
in Super Sensitive People

Recommended Posts

Tigercat17 Enthusiast
Tigercat17
Posted

HI everyone,

I've been doing really good on the gluten free diet and ever since I stopped all my vitamins seven months ago.

Just some past information- I got extremely sick for vitamins that were supposed to be gluten free last year.

I feel really good now, but I just got my blood work back and I'm a little low on vitamin D. It was 23. So now my doctor wants me to take a vitamin D supplement, but I'm really scared to take any vitamins even if they say gluten free.

Does anyone take a vitamins D supplement that they trust and are super sensitive?

My endo doctor suggested taking a 5,000 prescribed dose once a month that he was going to prescribe for me , but I'm not sure about that either.

Thanks everyone! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sa1937 Community Regular
sa1937
Posted

Have you checked into Bluebonnet vitamins? I'm taking their chewable Vitamin D3 (2000 IU) that I buy at my local health food store. Open Original Shared Link

Free of milk, egg, fish, crustacean shellfish, tree nuts, peanuts, wheat and soybeans.

Also free of yeast, gluten, barley, rice and sodium.

Hope this helps...

rosetapper23 Explorer
rosetapper23
Posted

I agree--Bluebonnet is a good supplement manufacturer, and I've used a number of their products. Currently, I take a Vitamin D supplement (50,000 iu) from a compounding company, and it also has never given me any cc trouble.

By the way, 5,000 iu on a monthly basis is an extremely low dose. Many of us take 10,000 iu daily....and now I'm forced to take 50,000 iu several times a week during the winter months.

domesticactivist Collaborator
domesticactivist
Posted

Fermented cod liver oil is a good way to get vitamin d and a. Green pastures tests for mercury and has good practices. They are having a really good sale right now so it might be a good time to try it out.

dilettantesteph Collaborator
dilettantesteph
Posted

Hi, I am another who felt much better when I stopped taking vitamins and supplements. Then, I too tested low for vitamin D. I looked into liquid vitamin D. I thought that with the most concentrated form possible, the little bit that I would have to take would be unlikely to cause a reaction. I got one for which my daily dose is a fraction of a drop. I diluted it with a bit of safe oil so that I need one drop a day. It is labelled gluten etc. free. It's LifeExtension Vitamin D3 2,000 IU Liquid Emulsion.

In the summer I don't take it since I spend enough time outdoors.

Tigercat17 Enthusiast
Tigercat17
Posted
  • Author

HI everyone! Thank you for taking the time to reply. I really appreciate all the advice. :)

My doctor just called me and he's going to put me on 50,000 vitamin D once a week for 6 weeks and then recheck my vitamin D counts. I'll have to call the pharmacy to find out if it's gluten free.

No wonder I'm getting colds more often... in the last two months I got three colds. When I was gluten free and taking vitamins I never got sick, but I know I was still getting CC from a lot of the gluten free vitamins. And then all of the sudden I got extremely sick from them. I would really love to find a multi that I could take. Even though I eat pretty healthy, I'm sure I'm not getting all the vitamins I need. I'll have to start another post just for multi's. :D

Hugs to you all! Thank-you! :)

TeknoLen Rookie
TeknoLen
Posted

Sounds like you are all set going forward. I have had good luck so far with Xymogen brand D3 drops, 5000 IU per day...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Tigercat17 Enthusiast
Tigercat17
Posted
  • Author

By the way, 5,000 iu on a monthly basis is an extremely low dose. Many of us take 10,000 iu daily....and now I'm forced to take 50,000 iu several times a week during the winter months.

Sorry -I meant to say 50,000 iu. :D

AndrewNYC Explorer
AndrewNYC
Posted
Open Original Shared Link
  • 3 weeks later...
Scotslass Newbie
Scotslass
Posted

Hey..:)

I'm in Scotland and I get calcium and vitamin D3 chewable on prescription so its free.. I have to take it because my bone density test showed I had a degree of osteopenia.. :(

So like living with coeliacs I just have to get used to taking that for the rest of my life.

  • 3 weeks later...
abaker521 Rookie
abaker521
Posted

I am discovering I'm a "super sensitive" celiac too and got sick off several vitamins that were organic and labeled "naturally gluten free." I too just discovered I was low on vitamin D (my level was at 19 when normal is around 30-40). My doctor recommended 400IU daily.. which seems very minimal compared to other dosages I'm reading here. I went to Walgreens and got D3 in the "Finest Natural" brand. I have been fine using it so far. It makes me laugh because I used to buy the most expensive, organic vitamins and they all made me sick.. but a $3.00 brand from Walgreens works best for me. My body is silly. :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein...
    2. trents
      - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    3. Seabeemee
      - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

      Thanks for your reply Trents…most appreciated. I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population? Also, I found what you said about N...
    4. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    5. JoJo0611
      - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748
    Annette Hill
    Newest Member
    Annette Hill
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      What's your daily meals? Protein bars?

      By xxnonamexx · Posted

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Labs ? Awaiting in person follow up with my GI

      By trents · Posted

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Yeast extract

      By JoJo0611 · Posted

      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.