Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Happy New Me 2012!


CarpeDiem

Recommended Posts

CarpeDiem Newbie

New Year is always a time for reflection. Like some of you, I was diagnosed with Celiac just days ago. I haven't really stopped to think about it much until tonight, New Year's Eve, a quiet night of light snow falling. I handed in a thesis last week so I spent last night celebrating with family and friends and mentioned my diagnosis but only briefly (between the massage spa day and dinner and dancing). It is only in this quiet time that I am really starting to process what it means. I read someone else's post about being newly diagnosed and all your wonderful responses of hope and encouragement. Someone I know was recently married and with a new baby and was just diagnosed with MS so I am well aware that my situation could always be worse. That said, right now I'm feeling just a little bit sorry for myself so thank you to everyone who said that's ok. One person reminded me that my attitude can make a world of difference. I almost died in a van accident in college (my speech team was traveling back from a competition when we rolled our van six times) and since that day I have always lived by the motto "Carpe' Diem" so this is just another challenge in truly living that mission - taking advantage of each day and focusing on the good I have in my life and not the negative (which I'll admit will be hard at times). I lost 75 pounds with Weight Watchers years ago and have maintained most of that so I know I can focus in and be diligent about educating myself but I'm worried about cheating. However, I'm sure no more horrible pain will be a strong motivator to not cheat, right? So, I'm posting this mostly as a boost to myself to not feel like I'm starting the new year deprived but thankful finally to know what's been going on and hopeful to make changes that will help me feel good in all aspects of my life - physical, spiritual, mental, and emotional. I turn 40 in February and who knows... it may be my healthiest birthday ever! I would love to e-mail with anyone else going through this newly diagnosed coping stage so drop me a message anytime! There's a lot to learn!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Congratulations on your diagnosis, and your attitude toward it. Believe me, the urge to cheat soon leaves when you realize how much better you feel, and how bad when you do. We soon learn to think of gluten as rat poison, not something to desire :D

Here's to a healthier and happier New Year in 2012 - what better way to start a new year? :)

Roda Rising Star

Welcome and happy new year. Read all you can on here. There is a lot of good advice and support.

tammyrichy Newbie

My husband was too very recently diagnosed. It was only discovered through blood work for another condition. He does not have the painful symptoms that some people go through when they eat gluten. This is going to make it extremely hard to not want to cheat. He understands the severity of what cheating will do to his body (without feeling the symptoms). I think if he did hurt when he eats it, that would help, but at the same time, glad he does not hurt. After 24 years of marriage, this will definitely be a new lifestyle change for us. Keeping positive and learning all I can! Thanks to everyone who posts on here with any bit of useful information for us newbies!!

sa1937 Community Regular

Welcome, CarpeDiem and Tammy!

At first it is rather overwhelming to be faced with these dietary challenges but pretty soon you'll get a good handle on the foods we can eat, that it'll become so much easier (almost automatic). I remember well that first trip to the grocery store that took forever. But I found if I stuck to shopping the outer rim of the store and skipped trying to find replacements for gluteny foods, it was so much easier...and much healthier, too, I might add.

Good luck!

BeFree Contributor

Welcome to the board CarpeDiem and while you may struggle at times, you will be enjoying many healthy and pain-free days ahead!

I don't have a diagnosis, but after being on the gluten-free diet for four months now I feel 100% better, and I woke up this morning feeling healthy and balanced. So what a great start to 2012! Glad to be feeling better and glad to know you guys! Happy New Year 2012 to everyone at celiac.com!

MinnesotaCeliac Rookie

The excitement and trepidation of the newly diagnosed, oh we all know it well (I'm six months yesterday). You'll have good days and perhaps some bad ones, but knowing you can be healthy (and without taking meds) is such positive reinforcement that any thought of cheating will be put to the side. On my good days, I personally think living gluten free is mostly a convenience issue. I just need to plan ahead or do my homework and know what I can eat on the fly. Sometimes social situations are challenging, but you learn to overcome those challenges too. The key is to acknowledge your emotions and work through them. Allow the down moments, but find a way to the positive side (even when it appears there is not one). Believe me it has not been all roses, but how you handle it will make all the difference in the world. Please note that this coming from a person that was sometimes called the glass half empty type. The wonderful folks on this forum are not only great for getting information regarding celiac/gluten intolerance, but sometimes commiserating with like people gets you through the tough times(the I'm not alone feeling makes all the difference). Im still learning myself, but feel free to contact me if you have questions. Good luck and congrats on the diagnosis.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

Hello and welcome to our new posters!

Attitude makes a big difference in how you adapt to your new lifestyle. Always try to look for a positive.

Be aware that some of us feel relief/happiness when first DXed..but later have some days where we feel very challenged. It's perfectly normal, and we are here to lend support.

Happy 2012..may it be the start of a wonderful, new, healthy life!

PS..As my Engineer hubby says..some people say the glass is 1/2 full, some say the glass is 1/2 empty. Engineers say..the glass is the wrong size! :D

Debbie48 Rookie

[PS..As my Engineer hubby says..some people say the glass is 1/2 full, some say the glass is 1/2 empty. Engineers say..the glass is the wrong size! :D

CarpeDiem Newbie

Thanks, everyone! I'm hoping for a healthy 2012 and am so happy I stumbled onto this community last night!

Dena

clohmean Newbie

Hi CarpeDiem,

I've been recently diagnosed with Celiac's and I found your post inspiring as I'm struggling with the diagnosis and have been

prolonging the inevitable (My GI said I could start gluten-free after the holidays if it helped). I've been reading the posts and

in between my pity party :unsure: , I find glimpses of excitement in the thought of feeling better, so I'm try to hang onto it !

My husband has been so supportive and said he would go gluten free too (until he has a guys night out ;) ) and has

been encouraging me to get started on this diet! I just turned 41 and have been getting iron infusions for iron deficiency anemia, which

at first they thought was attributed to heavy cycles, but after two years of infusions, they ran the celiac blood panel and even though it came

back negative (with the exception of an elevated TTG-IGG antibody test), an endoscopy confirmed blunted villi and Celiac's. But, I wanted to thank everyone who posted such

positive comments ! I need to continue to learn more about Celiac's, not get too overwhelmed and be thankful for

a disease that can be controlled via your diet.

Happy New Year ! Best of luck to you !

clohmean

IrishHeart Veteran

PS..As my Engineer hubby says..some people say the glass is 1/2 full, some say the glass is 1/2 empty. Engineers say..the glass is the wrong size! :D

I say...1/2 empty, 1/2 full?? either way, it's time to go back up to the bar... :lol:

Welcome to the Forum and to your New Life!

Do not fear the gluten free lifestyle. It's not as complicated as it seems at first.

It saved my life. :)

I lost years of my life to this disease, but I am coming back. :)

Anything we can do to help, just ask!!

I have a "Newbie cheat sheet" --a file of articles, menu ideas for breakfast, lunch, dinner, a shopping list, a list of dedicated facilities, safe snacks, safe foods, foods to avoid, cross contamination info, etc. that I compiled for my friends and family, if you want it.

Happy, healthy New Year!

Cheers,

IH

red island Newbie

I don't usually enjoy New Years Eve - I've always found it depressing to see another year gone by but this year I found myself full of hope and anticipation for what 2012 will bring. I am 4 months into my diagnosis and things are finally clicking for me. So don't get discouraged, I found I had alot of ups and downs early on but now I see glimmers of my old self, the self thats been gone for years and that gives me great joy.

hspichke Apprentice

I also just found out last week that my celiac panel was all positive and now am waiting on a biopsy. I have been sick for years so I totally understand how you feel about ridding yourself of the horrible pain even though you may want to cheat. I have been researching quite a bit, but so far have not started a gluten free diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    2. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    3. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    4. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    5. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,238
    • Most Online (within 30 mins)
      7,748

    tcpb
    Newest Member
    tcpb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.