Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oats

Machelle

By Machelle
in Coping with Celiac Disease

Recommended Posts

Machelle Rookie
Machelle
Posted

Has anyone had a reaction to Oat's ? I am suspicious there may be some gluten in them as I have been noticing a reaction similar to gluten products when eaten.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

Are you eating regular oats or pure certified gluten free oats?

If you are eating regular oats then yes they are cross contaminated with wheat during harvesting all the way to production.

If you are eating the pure certified gluten free oats then you could be reacting to the protein in the oat itself (avenin). There are about 10-15% of celiacs that can't even tolerate the pure oats because of this reason. Google avenin sensitive enteropathy to learn more.

I am unfortunately in the minority of celiacs that can't tolerate the pure oats. I have horrible reactions. I ate them for the first time 7 months after I went gluten free and it wasn't pretty. I avoided them after that. Unfortunately I never gave cross contamination from them a thought in the gluten free flours/products I was using. I ended up miserable in 2010 for about 8 months. That's when it dawned on me I was reacting to the gluten free oat cross contamination in my gluten free products. I have to source my gluten free products carefully now to avoid this.

Machelle Rookie
Machelle
Posted
  • Author

Are you eating regular oats or pure certified gluten free oats?

If you are eating regular oats then yes they are cross contaminated with wheat during harvesting all the way to production.

If you are eating the pure certified gluten free oats then you could be reacting to the protein in the oat itself (avenin). There are about 10-15% of celiacs that can't even tolerate the pure oats because of this reason. Google avenin sensitive enteropathy to learn more.

I am unfortunately in the minority of celiacs that can't tolerate the pure oats. I have horrible reactions. I ate them for the first time 7 months after I went gluten free and it wasn't pretty. I avoided them after that. Unfortunately I never gave cross contamination from them a thought in the gluten free flours/products I was using. I ended up miserable in 2010 for about 8 months. That's when it dawned on me I was reacting to the gluten free oat cross contamination in my gluten free products. I have to source my gluten free products carefully now to avoid this.

I was eating regular oats, and having trouble,I have tried Irish oats, but it has been awhile and will have to try again.

Skylark Collaborator
Skylark
Posted

Irish oats have been tested and have too much wheat. If you can find them, Bob's Red Mill makes certified gluten-free oats.

Machelle Rookie
Machelle
Posted
  • Author

Irish oats have been tested and have too much wheat. If you can find them, Bob's Red Mill makes certified gluten-free oats.

Thankyou very Much !!!

Roda Rising Star
Roda
Posted

Yes if you do try oats again you need for them to be pure "certified" gluten free. It will state on the lable. If it doesn't state gluten free on the lable don't eat them. Bobs Red Mill does sell certified gluten free oats. This was the brand I tried. They tasted really good, but the after effects were not. :P Bob's Red Mill is really good company and has a separate gluten free facility and they test their products. I however had to give up all of their products. I was reacting to small amounts of oat cross contamination not gluten cross contamination.

AVR1962 Collaborator
AVR1962
Posted

Yes, definately gluten-free oats but if you ar new to the diet don't be suprised if they too may pass right thru your system. If this happens, all it means is the body needs a little more mending time. At first I could not eat oats at all, not even gluten-free. 8 months later I can take in small amounts. I read here before that a person needs to allow 2 years for the gut to heal and be able to eat certian foods again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Machelle Rookie
Machelle
Posted
  • Author

Yes if you do try oats again you need for them to be pure "certified" gluten free. It will state on the lable. If it doesn't state gluten free on the lable don't eat them. Bobs Red Mill does sell certified gluten free oats. This was the brand I tried. They tasted really good, but the after effects were not. :P Bob's Red Mill is really good company and has a separate gluten free facility and they test their products. I however had to give up all of their products. I was reacting to small amounts of oat cross contamination not gluten cross contamination.

Thanks !

Machelle Rookie
Machelle
Posted
  • Author

Yes, definately gluten-free oats but if you ar new to the diet don't be suprised if they too may pass right thru your system. If this happens, all it means is the body needs a little more mending time. At first I could not eat oats at all, not even gluten-free. 8 months later I can take in small amounts. I read here before that a person needs to allow 2 years for the gut to heal and be able to eat certian foods again.

Thanks, I was diagnoised 8 yrs ago and have been doing good, but had never talked to anyone else with the same troubles, so I just try diff. foods and am glad to be able to discuss with others and see how to make positive changes. Holidays wreck haveck if I let them !

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.