Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Test Results


Booghead

Recommended Posts

Booghead Contributor

My thyroid test came back.

TSH 2.26 Range .3-3.0 (according to the endocrine association or something like that)

Free T4 1.07 Range .54-1.55

Free T3 3.1 Range .5-3.90

My question is: are these still considered "high normal"? My doctor still wants to do the radioactive iodine test and scans, but didn't say whether these are still "kinda" high.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

They don't look particularly high to me. That TSH seems high for Graves'. Have you had the autoimmune tests done? Hashimoto's can cycle hypo- and hyper- at first and it has to be ruled out before Graves' is diagnosed. There should also be TSI antibodies for Graves' disease.

Edited to add: I see from your other post that your family doctor is completely incompetent to treat thyroid disease, as he is unfamiliar with Graves' autoimmunity and is not ruling out Hashi's. Your endocrinologist will run the tests. If I were you I'd dig my heels in and don't let them do radioiodine without the autoimmune testing. The tests are called anti-TPO, TSI, and anti-thyroglobulin.

Booghead Contributor

My doctor said my last TSH test which was 5.17 out of their range of 1-4.5. He said that showed HYPER thyroidism. It surprised me because all of you said the opposite.

He hadn't actually received the TSH test to my knowledge so he could have misunderstood me when I said it was off the charts. He only got the T4 and T3 tests from the GI.

Skylark Collaborator
:blink: Run screaming!!!! Run, run, run!!! Don't let that man get close to you with radioiodine. You were hypothyroid, now you are OK. You probably have Hashimoto's, but the endo should sort it out.
Booghead Contributor

We are scheduling the endo on Monday since it is too late today. The iodine test is scheduled for Thursday and Friday, we will probably get in before that. I am hoping for a competent doctor.

This is hard for me, I'm young and it is hard learning that these people have no idea what they are doing. I trust them over and over and it leads to no answers.

My family doctor is a nice guy. He has only been a doctor for 3 years, my normal amazing genius family doctor is booked because he is retiring in 2013. Just my luck. 3 months to get into him. But we did get the endo referral and she is an older doctor which might or might not be a good sign. I need to learn to educate these people with what I know to be true.

Be my own advocate. My new years resolution. Just because they went to college doesn't mean anything. I found it odd that my tests came back normal because I have essentially been feeling the effects of a "flare up". Stomach cramps and horrible head aches, feels like way too much pressure along with waking up 6 or more times a night. My thyroid was swollen at the doctors office and my heart rate was high. He was worried about my heart so he put my on a beta blocker. I don't know if I should keep taking it. I have only taken it 3 days. Doesn't seem to be making me sleep better and since i started it I've been having worse headaches.

I guess I will keep taking it until we talk to the endo. It's a very small dosage and its the smallest pill I've ever seen. Once a day can't do that much damage. I am worried about taking ibuprofen with it, so do you know if that is ok?

pricklypear1971 Community Regular

Here. Start reading.

Open Original Shared Link

Keep clicking on links and read about Hashis, Graves, and testing and symptoms.

Skylark Collaborator

I'm sorry you're going through this. It's a sad state of affairs when we know more than our doctors. TSH stands for thyroid stimulating hormone. It's the hormone your hypothalamus (part of your brain) uses to signal your thyroid gland to make hormone. If your thyroid gland is not putting out enough hormone, your brain makes more and more TSH in an attempt to fix the shortage. When TSH climbs above 3.0, it's a sign that the thyroid gland isn't keeping up.

Hashimoto's can cycle between periods of hyper and hypo. You might have been hyper, but more likely with the high TSH you were hypo and having strong stress reactions. I get the swelling when my Hashi's flares from the inflammation. Check out what Dr. David Derry says about pulse in this article.

Open Original Shared Link

To check your medicines for interactions, this website is very good.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Booghead Contributor

I really appreciate the links. Especially Dr. David Derry. It is more conclusive of hypo thyroid with my symptoms. You guys have so much knowledge and I really appreciate you sharing it.

Maybe one day I will be able to share mine with someone who needs it.

Skylark Collaborator

I really appreciate the links. Especially Dr. David Derry. It is more conclusive of hypo thyroid with my symptoms. You guys have so much knowledge and I really appreciate you sharing it.

Maybe one day I will be able to share mine with someone who needs it.

That Derry article really, really helped me too.

If you hang around here for long you'll be helping folks before you know it. :)

nora-n Rookie

High TSH is hypothyroid, and a TSH of 0,00 is hyperthyroid but only if the ft4 and/or ft3 are above range. Some people have normal lowish TSH, with normal free

beachbirdie Contributor

My doctor said my last TSH test which was 5.17 out of their range of 1-4.5. He said that showed HYPER thyroidism. It surprised me because all of you said the opposite.

He hadn't actually received the TSH test to my knowledge so he could have misunderstood me when I said it was off the charts. He only got the T4 and T3 tests from the GI.

I join the chorus! RUN, as fast as you can, from this doc. The TSH test is a test of the pituitary hormone that stimulates the thyroid gland to produce more thyroid hormone. If your body is putting out too much Thyroid Stimulating Hormone, the most simple reason is that your thyroid is lagging in production (hypO not hypER). There are more complicated explanations, but best to start with the simplest.

The TSH can vary a lot during any given day, you would do well to have any thyroid tests done at the same time of day each time, if at all possible.

With numbers like yours, and lacking any antibody testing, I would in NO WAY allow any kind of radioactive testing. I would insist on antibody testing.

Good luck with your endo. My experience (and the experience of MANY thyroid patients) is that endos don't necessarily treat thyroid well. The ones I saw told me (with my TSH of 4.5 and FT4 almost out of bottom of range) that there was no way I was hypothyroid, and he wouldn't even consider treatment until my TSH was over 10. I've gotten the best treatment from my very aware GP.

Gemini Experienced

I join the chorus! RUN, as fast as you can, from this doc. The TSH test is a test of the pituitary hormone that stimulates the thyroid gland to produce more thyroid hormone. If your body is putting out too much Thyroid Stimulating Hormone, the most simple reason is that your thyroid is lagging in production (hypO not hypER). There are more complicated explanations, but best to start with the simplest.

The TSH can vary a lot during any given day, you would do well to have any thyroid tests done at the same time of day each time, if at all possible.

With numbers like yours, and lacking any antibody testing, I would in NO WAY allow any kind of radioactive testing. I would insist on antibody testing.

Good luck with your endo. My experience (and the experience of MANY thyroid patients) is that endos don't necessarily treat thyroid well. The ones I saw told me (with my TSH of 4.5 and FT4 almost out of bottom of range) that there was no way I was hypothyroid, and he wouldn't even consider treatment until my TSH was over 10. I've gotten the best treatment from my very aware GP.

This is good advice and I agree completely! I wouldn't go to an endo because all they want to do is expensive radioactive testing. You don't need that testing...do the simple blood work and you'll get some answers.

nora-n Rookie

Please no radioactive testing, you are just ordinary hypothyroid.

Also, maybe check

Open Original Shared Link

the hyper forum there:

Open Original Shared Link but you are not hyperthyroid

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,196
    • Most Online (within 30 mins)
      7,748

    Dreamstar
    Newest Member
    Dreamstar
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • Kris2093u4
      Geography makes a difference.  I'm in the West and Trader Joe's gluten-free bread tastes great and is a better price than most gluten-free breads sold elsewhere in my area.  
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
    • Jane878
      By the time I was 5 I had my first auto0immune disorder, Migraine headaches, with auras to blind me, and vomiting, sensitivity to light and sound. I was 5 years old, and my stepfather would have pizza night, milling his own flour, making thick cheesy gluten pizza, that I would eat and the next day, I would have serious migraines, and my mother & stepfather did nothing about my medical problems. When I was 17 in my first year at college, I was diagnosed with my 2nd known auto-immune disorder, Meniere's disease. I was a elite athlete, a swimmer, and soccer player. And once again my parents didn't think anything of understanding why I had a disorder only older people get. Now after my mother passed from Alzheimer's disease she also suffered with living with gluten. She had a rash for 30 years that nobody could diagnose. She was itchy for 45 years total. My brother had a encapsulated virus explodes in his spleen and when this happened his entire intestines were covered with adhesions, scar tissue and he almost lost his life. He has 5 daughters, and when I finally was diagnosed after being pregnant and my body went into a cytokine storm, I lost my chance to have children, I ended up having Hashimoto's disease, Degenerative Disc disease, and my body started to shut down during my first trimester. I am 6ft tall and got down to 119lbs. My husband and I went to a special immunologist in Terrace, California. They took 17 vials of blood as we flew there for a day and returned home that evening. In 3 weeks, we had the answer, I have Celiac disease. Once this was known, only my father and husband made efforts to change their way of feeding me. At the family cabin, my stepfather & mother were more worried that I would ruin Thanksgiving Dinner. It wasn't until one of my cousins was diagnosed with Celiac disease. They finally looked into getting Gluten Free flour and taking measures to limit "gluten" in meals. He did nothing but ask for me to pay for my own food and wi-fi when I came to the cabin to stay after our house burned down. When he informed my mother, they proceeding to get into a physical fight and she ended up with a black eye. The is just more trauma for me. Sam had no interest in telling the truth about what he wanted. He lied to my mother that he had asked my husband if I could pay for "food" when he asked Geoffrey if I had money to pay for my wi-fi. My mother hates when he spends so much time on the computer so he lied and said I could pay for my own food. I will remind you I weighed 119lbs at this time. (At 6ft) that is a very sick looking person. Neither parent was worried about my weight, they just fought about how cheap my stepfather was. As my mother was diagnosed with Alzheimer's disease in 2014. He had her sign over the will to a trust and added his children. He had no testimonial capacity at the time, so she signed without proper papers. Making this Trust null and void. When I gave my brother my childhood home, my mother stated I would be getting an equal part of inheritance to the house on Race. It currently worth 2.0 million $. I got nothing, and my stepfather has since disowned me b/c of my claim and he knows that my mother would never have left it uneven between my biological brother and myself. She sat me and my husband down, as we lived at the Race Street house and treated and took care of it as our own. My brother took over b/c he was going through a horrific divorce and needed a home so he could get a better custody deal with his soon to be ex-wife who was a Assist DA for Denver. She used the girls against him, and he & I were the primary caregivers. We, Judd and I spent the most time with them pre the divorce. Once Judd moved into the house, he threw all of my mother, grandmother and my family heirlooms out to the Goodwill. Nobody told my mother about this as she was going through cancer treatment and had Alzheimer's disease in her mother and her sister. My stepfather and biological brother took advantage of this matter, as I called a "family council" that my brother just never could make it to at the last moment. All of the furnishing, kitchen ware, everything was in the house my brother just moved into. He had had 2 weddings, I chose to elope b/c my stepfather ruined my brother's first wedding by talking about his relationship with my brother in front of my dad and his entire family, insulting him and having my grandfather leave the ceremony. It was a disaster. My stepfather just plays dumb and blames my father for the slight. I was the only child not to have a wedding. So, my mother and stepfather never had to pay for a thing. My mother had had an agreement with my father he'd pay for college and all medical issues with their kids, myself and Judd. So truly my mother never had to pay for anything big for me in her entire life. I am looking for anyone that has had a similar story, where they grew up in a household that had a baker that regularly milled flour and ate gluten. What happened to you? DId you suffer from different auto-immune diseases b/c of living with a baker using "gluten" Please let me know. I have been looking into legal ways to get my stepfather to give me what my mother had promised, and he erased. Thank you for listening to my story. Jane Donnelly  
    • trents
      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
×
×
  • Create New...