Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Herpes Outbreaks Since Stopping Gluten


lulumonkey

Recommended Posts

lulumonkey Newbie

I stopped eating gluten about 2 months ago. Since then I have had the DH outbreaks at the base of my spine and on my buttocks that I seen mentioned in so many topics here but I have also had never ending outbreaks of herpes simplex I on the inside of my nose. I have had these outbreaks before but rarely. Since quitting gluten my skin has improved dramatically and so have my digestion issues but I can't get rid of my herpes or DH. I take massive amounts of Lysine daily which used to work but now just seems to help a little with the pain. Has anyone else had this problem? I wonder if my immune system is being taxed by some illness I picked up at work. Everyone there is sick right now. It is hard to know what is a detox symptom and what is being caused by this illness. The symptoms I am sharing with my coworkers are fatigue, runny nose, and earaches. Even when I have caught the flu before I still wouldn't get fever blisters unless I was also really stressed out. I am under some stress right now but it doesn't seem like enough to cause all of this. They are inside of both nostrils on the top and both sides. Every few days I get another outbreak. This is so frustrating!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



weaselfish Rookie

I stopped eating gluten about 2 months ago. Since then I have had the DH outbreaks at the base of my spine and on my buttocks that I seen mentioned in so many topics here but I have also had never ending outbreaks of herpes simplex I on the inside of my nose. I have had these outbreaks before but rarely. Since quitting gluten my skin has improved dramatically and so have my digestion issues but I can't get rid of my herpes or DH. I take massive amounts of Lysine daily which used to work but now just seems to help a little with the pain. Has anyone else had this problem? I wonder if my immune system is being taxed by some illness I picked up at work. Everyone there is sick right now. It is hard to know what is a detox symptom and what is being caused by this illness. The symptoms I am sharing with my coworkers are fatigue, runny nose, and earaches. Even when I have caught the flu before I still wouldn't get fever blisters unless I was also really stressed out. I am under some stress right now but it doesn't seem like enough to cause all of this. They are inside of both nostrils on the top and both sides. Every few days I get another outbreak. This is so frustrating!

Hello lulumonkey,

I'm now into my 3rd week as gluten-free as possible. I was diagnosed with HSV-1 27 years ago. I've seen no increase in HSV outbreak frequency and haven't had one since eliminating gluten in my diet. So, I don't think your unfortunate HSV issue is a result of the absence of gluten. In my case, stress is a huge trigger, and DH if anything IS stress. I had massive regular HSV outbreaks ( not happy ) from my 20's to my mid-late 30's. At 54, the older I get, the less frequent they manifest in me.

DH can take a long time to heal / stabilize, at least as far as my research tells me. And my own slow healing lends validity to that assertion as far as my personal experience goes. I've got a long way to go to get there . . .

Best of luck and healing to you lulumonkey,

WF

ciamarie Rookie

I also went gluten-free a little over 2 months ago. I've begun to figure out that if I have anything that has msg or some of it's aliases, the DH in my ears acts up. I haven't narrowed it all down yet, but something like that might be an issue for you also.

Or perhaps you have an issue with some other food item such as dairy? I'm not sure what your diet is like, but keeping a food diary might help.

Or look for areas of possible cross-contamination. I just cleaned out my silverware drawer yesterday, since I moved aside the stuff that was covering the bottom of the drawer and realized there were lots of crumbs in there -- most of them no doubt gluten-y. It's a big drawer, so I have my silverware holder (also just cleaned) and a bunch of 'gadgets' in there too. In the process I tossed a couple spatulas and other items that I haven't used in a while that weren't likely to be safely de-glutened.

squirmingitch Veteran

Think about make up, anything you use on your skin, lotions, shampoo, conditioners & how about those "treated kleenex?"

domesticactivist Collaborator

I got a herpes outbreak when first going gluten free. But then it cleared up. A year of gluten free/GAPS diet and I only had one outbreak. Now I am five weeks into a gluten challenge and I've had three outbreaks (one right after the other) since reintroducing it. They seem to have been triggered by nuts. Nuts had been a trigger before i changed my diet but on GAPS I could eat them with no problem.

Hopeful1950 Explorer

I think many people experience some crazy symptoms when going gluten-free. For me it seemed that my symptoms had to have a last big blow out.

If you think about it, if you are celiac, and you are consuming gluten, your body's immune system is always in high gear trying to attack the enemy gluten. Is it possible that, with the elimination of gluten, your immune system is not working as hard and therefore is allowing the herpes to break out? Just a theory.

lulumonkey Newbie

Thanks for the input guys. I'm going to hang in there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

You're smart to take Lysine....and it's possible that it's not working well for you right now because you're eating a diet that is rich in Arginine. In order for the Lysine to stop the herpes virus from erupting, your body has to be low in Arginine. It is the balance of high Lysine and low Arginine that keeps herpes outbreaks at bay. You might do a word search on foods that are rich in Arginine to figure out if your diet might be too high in it right now. If that's the case, cut back on those foods and raise your Lysine level so that your Lysine is always higher than the Arginine. Whenever I eat eggs for several days, I begin to break out in Herpes on the corners of my mouth, but as soon as I take 1,000-2,000 mg. of Lysine, the outbreak disappears. I always try to take extra Lysine when I eat eggs.

  • 2 months later...
lulumonkey Newbie

I eat eggs all the time but I didn't worry about them because they have a little more lysine than arginine. I will start taking lysine with them. I am also suspicious of the lysine that I am taking. Lysine has always worked for me in the past but it doesn't seem to do anything now. My Doctor put me on Valtrex twice a day about 6 weeks ago and they still haven't gone away. I took a vitamin D supplement the other day and that seemed to make them worse(more painful at any rate). I have increased my vitamin C intake to see what that does.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      GI DX celiac despite neg serology and no biopsy

    2. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      6

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    4. - Silk tha Shocker posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    5. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,478
    • Most Online (within 30 mins)
      7,748

    Susan Gutenberger
    Newest Member
    Susan Gutenberger
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Silk tha Shocker
      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.