Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonoscopy


addis001

Recommended Posts

addis001 Apprentice

So my GI is doing a colonoscopy, to check to see what is going on inside me..

A little weird that he didn't want blood work, or anything else.

Also he is doing a endoscopy, down the throat to see down the stomach.

He guessed that it might be Crohns, IBS, or Ulcers. The Crohns definitely makes sense, but I asked about Celiac. And he said I wouldn't have that much pain if it was celiac. It would be more inflammation.?? Is that true??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

So my GI is doing a colonoscopy, to check to see what is going on inside me..

A little weird that he didn't want blood work, or anything else.

Also he is doing a endoscopy, down the throat to see down the stomach.

He guessed that it might be Crohns, IBS, or Ulcers. The Crohns definitely makes sense, but I asked about Celiac. And he said I wouldn't have that much pain if it was celiac. It would be more inflammation.?? Is that true??

Ask him " Why not take some samples of my small intestine since you will already be there? Maybe I have more than one thing wrong? Couldn't hurt because you are already there." No arguing just point that out.

Gemini Experienced

So my GI is doing a colonoscopy, to check to see what is going on inside me..

A little weird that he didn't want blood work, or anything else.

Also he is doing a endoscopy, down the throat to see down the stomach.

He guessed that it might be Crohns, IBS, or Ulcers. The Crohns definitely makes sense, but I asked about Celiac. And he said I wouldn't have that much pain if it was celiac. It would be more inflammation.?? Is that true??

The reason they do these invasive tests before blood work is, quite simply, they make a lot of money from them. It is always prudent to do blood work or other less invasive tests first but that's not the mind set of the medical community these days. It's up to the patient to request those first.

The remark he made about it not likely being Celiac because you wouldn't have so much pain is false, false, false!!!!! I had excruciating pain every time I ate and it was definitely Celiac. This is the usual stuff you get from non-informed doctors and there are many. I would ask for screening blood work first to see if that shows anything but it's likely he won't even do the right tests. It's very hard to find a good GI.....I never had success with them at all.

I wish you luck with all your testing..hope you find some answers.

Skylark Collaborator

So my GI is doing a colonoscopy, to check to see what is going on inside me..

A little weird that he didn't want blood work, or anything else.

Also he is doing a endoscopy, down the throat to see down the stomach.

He guessed that it might be Crohns, IBS, or Ulcers. The Crohns definitely makes sense, but I asked about Celiac. And he said I wouldn't have that much pain if it was celiac. It would be more inflammation.?? Is that true??

False. Yes it's weird that he won't do bloodwork. I'm not sure I think much of this doctor. Crohn's is much rarer than celiac and IBS is a non-diagnosis.

Insist on celiac biopsies during your endoscopy, and he needs to take at least 7 or 8 samples, not the typical 2-4 many doctors use. If he won't biopsy, find another doctor because you don't want to go through it twice.

addis001 Apprentice

I thought so.. My gut told me this guy is not that great.. But he fit me in quick..

His bedside manner is horrible.. but his partner just left the practice and hasn't found an office yet, and he is much better. both my parents used him.. But he wouldn't be able to see me in a month or so...

The only thing that is keeping me with this horrible guy is that the nurses said that both guys are great. The best in our city. Just one has a horrible bedside manner and the other has a wonderful bedside manner.

I'll probably just transfer to the nicer one, once the procedure is done and I know a little more.

mushroom Proficient

When we are in pain and need help right away, we have a tendency to seek the first available appointment wikth anyone. The problem with this is that no one else wants to see them and that is why they have a slot available.:ph34r: The cardiologist I really wanted to see didn't have a slot for three months - she was worth waiting for (with remediating measures in the meantime).

Can you get your GP / PCP to run the complete blood panel for you and in the meantime try to find a GI who knows something about celiac disease and is not just out to take your money?

addis001 Apprentice

I wish I could do that. But I feel like something is really wrong, since i'm feeling so much pain on my right side. Even with the tramadole (spelling?), it relieved the pain one night, but the next night it did not help at all. But on the third and fourth night the diet is finally helping somewhat..And the procedure is in 7 days, they rushed it since i'm in pain, or I would have had to wait a month. i would feel bad cancelling after they squeezed me in...

I feel like people in pain do get stuck with duds sometimes because we will take anyone. But then if we go when we are just in a little bit of pain and complain, we get someone really awesome, and then the doctor can't find anything wrong. Then I feel stupid.... Its like the no-win scenario..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I know, then you just p**s them off, like why are you wasting my time??? :angry: There's not much winning in this world - we have to work for small victories :D That's why I suggested the blood work right away from your PCP - not instead of but in addition to whatever else you do. If you knew you were celiac, you would know that was probably what was causing your pain. And if the diet is helping, you need the blood work before the antibodies leave yhour system, which can start happening in a week. By two weeks they could be completely gone, and the confirming blood tests would require you to eat gluten for 2-3 months again :o A lot of doctors require both!! for a diagnosis.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mmoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Blood tests low iGA 4 years later digestive issues

    2. - Mmoc posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Blood tests low iGA 4 years later digestive issues

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,159
    • Most Online (within 30 mins)
      7,748

    Werae71
    Newest Member
    Werae71
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.