Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh And Future Children


gunny7

Recommended Posts

gunny7 Newbie

Hi there,

so my question is: Will my DH affect my future children? And what about celiac deasese ?

Thx for answers

Gabe


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



weaselfish Rookie

Hi there,

so my question is: Will my DH affect my future children? And what about celiac deasese ?

Thx for answers

Gabe

Hello gunny7,

My research regarding your future children says: It could. To the best of my knowledge, DH / Celiac is hereditary. Check out this link:

https://www.celiac.com/articles/177/1/The-Gluten-Intolerance-Group-of-North-America-on-Iodine-and-Dermatitis-Herpetiformis/Page1.html

And:

Open Original Shared Link

And while you're at it, this one isn't a bad one to contemplate:

Open Original Shared Link

Hope that helps & be well ALL,

WF

ravenwoodglass Mentor

Celiac disease is genetic and DH is the skin form of celiac. However not everyone who has the genes develops celiac/DH. If you want children don't let having DH/celiac stop you. Not only may they never develop celiac but if you are diagnosed you will be alert for signs and will know to have them screened periodically for celiac.

gunny7 Newbie

Thx very much for those two answers. Can someone provide me links to the articles where it is written that DH/celiac is genetic and hereditary. Just want to look it with my own eyes.

And maybe some other users could participate and share opinion or experience?

kareng Grand Master

Here's one. There are many. just google "Celiac Centers". Many have easy to understand info about Celiac & DH.

A Genetic Testing

When an individual is diagnosed with celiac disease,

the entire family learns that they must be tested for

the condition, for they are now at risk. First degree

relatives (parent, child, sibling) have a 1 in 22 chance

of developing celiac disease in their lifetimes; in second

degree relatives, (aunt, uncle, cousin, grandparent) the

risk is 1 in 39.

Open Original Shared Link

squirmingitch Veteran

gunny7, I am self diagnosed dh & therefore celiac. I have textbook dh & have gone strictly gluten free since Nov. 24. Have improved immeasurably. I can actually bear the way the dh presents itself these days. I'm getting steadily better.

There's no way to prove it now but I'm sure my mother had dh (& therefore celiac) but her dh presented milder than mine. She only got it in her scalp --- no where else. I saw & felt what she got in her scalp which drove her crazy with the itching. She had what I now KNOW was dh. Of course we didn't know that at the time. She, & therefore WE chalked it up to "nerves". So I guess I'm one of those 1 in 22 chances.

Now, I'll tell you something else. Who knows if it is a factor in why I am one of those 1 in 22. We may never live long enough for research to be done on this possibility IF it ever is done.

My mother was RH neg. & dad was RH pos. In the 40's & 50's you just had to take your chances & have a doc standing by in delivery room to perform an immediate transfusion. I am the youngest of 3 children. The chances of a child being born "not normal" increased with each subsequent child born of a RH neg./pos. couple. Child #3 was not supposed to stand much chance of being normal at all. Well, accidents happen, especially before the pill or vasectomy or etc...., etc..., etc..... The doctors said I would be born deaf, dumb or blind. I wasn't. Did that make me more susceptible to being the 1 in 22?

rosetapper23 Explorer

My mother, uncle, son, and daughter have celiac (as I do), and my son, uncle, and I have DH, whereas my mom and daughter do not. This tells me that, while celiac and DH are hereditary, it doesn't necessarily mean that you'll suffer from BOTH maladies.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



itchy Rookie

The genes that predispose people to coeliac are quite common but most people with the genes don't get the disease.

That said, the disease is several times more common than it was a hundred years ago, based on comparison with stored blood samples.

Something in our modern life is causing the genes to be expressed more frequently as a disease.

If it was possible to determine what that was, we would be able to protect future generations.

weaselfish Rookie

The genes that predispose people to coeliac are quite common but most people with the genes don't get the disease.

That said, the disease is several times more common than it was a hundred years ago, based on comparison with stored blood samples.

Something in our modern life is causing the genes to be expressed more frequently as a disease.

If it was possible to determine what that was, we would be able to protect future generations.

Hello itchy,

May I propose that being it's an inherently a genetic disorder, and given the fact that wheat ( gluten ) is so ubiquitous in pre-processed foods / diets, is it really any wonder ??? It is NOT to me anymore as eliminating gluten in my diet has made ALL the difference . . .

Since Celiac is " hard-wired " into the human genome, it appears to me that the only way to avoid the affliction is to abstain from the consumption / contact of / with the poisonous trigger, ie gluten in ANY form. I may be wrong, but it's just the way I must behave and " eat to live " now . . . By the way, I'm 1/2 French Basque and the rest European descent. A prime candidate for Celiac / DH am I.

However, the chemical and pharmaceutical industries have crippled us, not to mention that gluten is added to most pre-processed foods. To me it's all about Eugenics. If you're not familiar with that term, research it. Also, the Gulf Oil Disaster isn't over and neither is the radioactive dilemma of Fukushima. So many factors to consider, no ??? Never mind the Sodium Fluoride in your drinking water . . .

Also remember, those of us like me who suffer from Dermatitis Herpetiformis don't have nearly the small intestine damage as those who never manifest DH, so those who don't develop DH may never know they have Celiac.

My best to you and all,

WF

Roda Rising Star

Well one of my boys falls in the 1 in 22. It actually was because of him that I eventually found out I had celiac. I had to eliminate so many things from my diet when I was breastfeeding because of reactions he would have(rashes, colic severe reflux). I had inadvertantly went gluten light. After I added back all the things I eliminated I started having problems. Another 2.5 years later I was diagnosed.

I had my kids blood tested at that time also and they were both negative. Two years after my youngest son's negative test, he had positive blood work. He had been having reflux, stomach aches, and mood issues for about 6 months prior to the positive test. It all made sense. In hindsite I believe all the issues he had with food and his health up until he was about 3 years old were gluten related. His current allergist, after he had positive blood work, believes he never got completely over what affected him as a baby/toddler(which we now think was gluten), that it just manifested differently.

My oldest son has had consistant negative blood work and had a negative scope/biopsy in Aug. 2011. He went gluten free for a trial period of three months. Reasons: slow/stalled growth, chronic constipation since birth, stomach aches almost daily, nausea. Since going gluten free he is starting to grow and all the other symptoms are gone. He tried gluten over the Christmas break and he had mild stomach aches. He only ate it for about three days though. He has decided to stay gluten free at this point in time. He reminds me of how I was as a child a lot. I wonder if I had a slight problem with gluten but it didn't manifest as celiac until I was in my early 30's. It would be nice to save him the possible same fate as me. I now have three autoimmune disorders and may be looking at a 4th.

Honestly, "IF"(quite happy with just the two boys :P ) I wanted more children at this point after diagnosis, I wouldn't let the diagnosis stop me from having them.

itchy Rookie

I think one could argue it's not a genetic 'disorder'.

Quite possibly the genes that cause it were once very helpful and helped us to survive.

Something has changed in our environment in the past few decades which has caused the genes to be expressed as a disorder. Coeliac is several times more common than 100 years ago, based on blood analysis.

So the disorder may be in our environment, not in our genes.

itchy Rookie

I don't believe that the genes associated with coeliac are harmful mutations.

Rather they are common, natural genes that are helpful or benign in other circumstances.

I think it is likely that at some point we will discover what triggers coeliac, and at that point simple lifestyle changes will protect all future generations from the 'disease'.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    2. - Silk tha Shocker posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    3. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    4. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,474
    • Most Online (within 30 mins)
      7,748

    Silk tha Shocker
    Newest Member
    Silk tha Shocker
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Silk tha Shocker
      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.