Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Being Glutened?


suziq0805

Recommended Posts

suziq0805 Enthusiast

I'm a couple months into being completely gluten-free. The past week or so I've just felt awful; so tired, headaches and today a canker sore. I've been trying to think of foods I've eaten lately and here are some things I've been eating lately:

Orieda french fries

Yopliat strawberry/banana yogurt

Blueberry greek yogurt- either Chobani or Oikos (can't remember which brand though!)

Can't Believe It's Not Butter Light version

Heinz ketchup

Walmart natural chunky peanut butter

Skippy natural peanut butter

Glenny's cashew and almond whole fruit/nut bars

Aunt Jemima syrup

San-J gluten-free terayki sauce for stir fry

Lays baked chips

Target brand women's daily multi-vitamin

Trident gum

Everything else I've eaten lately is fresh meat/veggies/fruits, cinnamon chex, rice and Udi's bread.

All of these foods either said gluten-free on them or looked safe based on the ingredients. Anyone have problems with any of these? I did eat out one night, but the tiredness started a few days before then (but headache was 2 days later and canker sore 5 days later). Maybe the tiredness could be a result of possibly catching a bug going around my office, but the headache and canker sore make me wonder since those were issues I had on my gluten challenge.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mindbodysoul Newbie

I'm a couple months into being completely gluten-free. The past week or so I've just felt awful; so tired, headaches and today a canker sore. I've been trying to think of foods I've eaten lately and here are some things I've been eating lately:

Orieda french fries

Yopliat strawberry/banana yogurt

Blueberry greek yogurt- either Chobani or Oikos (can't remember which brand though!)

Can't Believe It's Not Butter Light version

Heinz ketchup

Walmart natural chunky peanut butter

Skippy natural peanut butter

Glenny's cashew and almond whole fruit/nut bars

Aunt Jemima syrup

San-J gluten-free terayki sauce for stir fry

Lays baked chips

Target brand women's daily multi-vitamin

Trident gum

Everything else I've eaten lately is fresh meat/veggies/fruits, cinnamon chex, rice and Udi's bread.

All of these foods either said gluten-free on them or looked safe based on the ingredients. Anyone have problems with any of these? I did eat out one night, but the tiredness started a few days before then (but headache was 2 days later and canker sore 5 days later). Maybe the tiredness could be a result of possibly catching a bug going around my office, but the headache and canker sore make me wonder since those were issues I had on my gluten challenge.

I can tell you Chobani is gluten free, it says so right on the container, Oikos is also gluten free. I avoid ketchup unless it is organic as organic has simple to understand ingredients, I'm pretty sure Heinz is gluten free though. Right off the bat what stands out most to me is Lays chips and Orieda french fries. I know Lays does not state that their products are gluten free, so we avoid those. We buy Kettle brand or Cape Cod chips because they say they're gluten-free right on the package.

Be careful when it comes to buying peanut butter, some contain gluten. To be safe, I always research the products before I put them near my mouth... just to be safe! Hope you feel better soon.

suziq0805 Enthusiast

The chips do say they are gluten-free. I called the french fry company and they said there are not gluten ingredients, but i wonder if they are produed on shared lines. Walmart seems pretty good about saying if a product may contain ingredients and it doesn't say that on the peanut butter so I thought it would be safe. Who knows. I just wish there was a way to know if I've been glutened or what. I guess I'm still not 100% sure gluten is an issue for me (GI diagnosed me with sensitivity, rheumatologist said GI has a reputation of overdiagnosing). But since no other doctor has been able to help me then I'll give this a try for 6-12 months and see what happens. Just frustrating not knowing why I'm feeling this way!

rosetapper23 Explorer

Yes, Lay's potato chips are gluten free--their website clearly states this (and I've never been glutened by them). However, when it comes to french fries and hash browns, I've read that sometimes such products are packaged with flour to keep them from sticking during the freezing process. I don't know if Orida does this, though. Is there any chance that you might be sensitive to soy, as well? A number of the products you mentioned might contain soy....and, personally speaking, diarrhea is the first thing that occurs once I've eaten something that contains it. Many of us with celiac cannot tolerate soy. Just a thought....

ravenwoodglass Mentor

My thought was soy also. It isn't uncommon for us to also have issues with soy come to the forfront after we have gone gluten free.

sa1937 Community Regular

Ore-Ida is a Heinz company and they are very good about labeling. You can check the bag of fries (on the side) and may be surprised that it says gluten-free on it (almost hidden way down at the bottom). I don't know if all their potato products are gluten-free but I know their Sweet Potato Fries are...and they are good.

I just checked my bottle of Heinz Tomato Ketchup and it says gluten-free on the back.

The bottom line is that sometimes we just don't know or can't figure out what zaps us. I hope you're feeling better today!

dilettantesteph Collaborator

It is hard to tell when you are only a couple of months in. Maybe it would help to concentrate on eating more healthy meats, fruits and veggies.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

A lot of those things make me ill. A lot of those things make a non celiac ill. It's mostly "junk" food. I would just try yo cut back on some of that stuff. Maybe make homemade fries in the oven with olive oil and cut up potatoes. Buy some real 100% maple syrup. Just little things like that can make a difference.

I hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.