Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dad Meant Well.....


Duhlina

Recommended Posts

Duhlina Apprentice

I feel so bad. My dad knows all about my gluten issues (yet he won't get tested himself). Anyway, last night he called me and told me he made meatloaf and made an extra one and wanted to bring it down for us for dinner. I asked if it had any bread in it. His response? "Yes, I put a tiny amount of Italian bread crumbs in it, but it's not enough to bother you." I seriously almost lost it. I said I was sorry, but there was NO WAY I was eating it, that ANY amount would bother me and I can't have ANY bread crumbs, bread, gluten, etc.! I feel really bad for having to tell him I wouldn't eat it, but geez.....he KNOWS that I can't eat that!

I guess it just goes to show no matter how vigilant we are some people just won't get it. <sigh>


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Elizabeth5220 Apprentice

I feel so bad. My dad knows all about my gluten issues (yet he won't get tested himself). Anyway, last night he called me and told me he made meatloaf and made an extra one and wanted to bring it down for us for dinner. I asked if it had any bread in it. His response? "Yes, I put a tiny amount of Italian bread crumbs in it, but it's not enough to bother you." I seriously almost lost it. I said I was sorry, but there was NO WAY I was eating it, that ANY amount would bother me and I can't have ANY bread crumbs, bread, gluten, etc.! I feel really bad for having to tell him I wouldn't eat it, but geez.....he KNOWS that I can't eat that!

I guess it just goes to show no matter how vigilant we are some people just won't get it. <sigh>

I hear this type of thing all the time from my mom...I've read some good analogies on this forum but can't remember them this morning. Fellow Celiacs and Gluten-Intolerants...what say you?!

Elizabeth5220 Apprentice

I feel so bad. My dad knows all about my gluten issues (yet he won't get tested himself). Anyway, last night he called me and told me he made meatloaf and made an extra one and wanted to bring it down for us for dinner. I asked if it had any bread in it. His response? "Yes, I put a tiny amount of Italian bread crumbs in it, but it's not enough to bother you." I seriously almost lost it. I said I was sorry, but there was NO WAY I was eating it, that ANY amount would bother me and I can't have ANY bread crumbs, bread, gluten, etc.! I feel really bad for having to tell him I wouldn't eat it, but geez.....he KNOWS that I can't eat that!

I guess it just goes to show no matter how vigilant we are some people just won't get it. <sigh>

(Love your kitty! Mine sits like that on the exercise bike!)

curlyfries Contributor

I hear this type of thing all the time from my mom...I've read some good analogies on this forum but can't remember them this morning. Fellow Celiacs and Gluten-Intolerants...what say you?!

I've seen people compare it to poop. Would you eat it if there was just a little poop in it?.....or how about arsenic?.....oh, come on, it's just a little! ;)

samie Contributor

I know how that goes. I heard it from someone recently to.

CarolinaKip Community Regular

I'm sorry you had to tell your Dad that. I think we've all experienced some type of situation like this. My sister asked me if I'd ever be able to not worry about CC when I heal. I also had a pharmacist to say the company is "reasonablly" sure it didn't contain gluten. I said if I were a diabetic, would you say, I'm reasonably sure it doesn't contain sugar? It's a learning process for not only ourselves, but our family. Hang in there, hopefully he will understand soon.

IrishHeart Veteran

I say it is like poison. Is a little bit of poison okay? Nope!

I also have been known to call it my kryptonite. And sugergirl can't fly when krytonite is around. :lol:

Hon, your Dad does not "get it" because he just does not know WHY a small amount of gluten does damage.

Many people think this way about gluten--they think it has to be a large amount to cause a problem. They do not understand the autoimmune component.

Maybe you need to give him some info to read so he can understand? Then, talk about it with him (calmly) so he gets it. :) Took me a while with my Mom--and I gave her things to read and sometimes, I had to repeat stuff to her---but she gets it :) (and now, she is gluten-free too, BTW.)

Best wishes!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



newlifeforme Newbie

My dad offered me a beer...

Scotslass Newbie

:blink: lol..I think Dads are the worse. I have had coeliacs for 9 years and he still offers me biscuits and sandwiches.. And he's an ex nurse for goodness sake..

I ask him if he really wants to poison me and see me puke all over his shoes..

IrishHeart Veteran

My dad offered me a beer...

That one's forgivable as he may not have realized about the malt. :) Plus, some people do not associate gluten with liquids. :lol:

Did you tell him to stock you some Bard's??? :)

mushroom Proficient

We just had elevenses with friends. Anne told me she woke up in the middle of the night realizing I am gluten intolerant, so she got up and made CORNbread this morning. :unsure: I told her "you're going to hate me, but I'm sorry, I can't eat that either -- but hubs CAN :D (I had a cookie with me :) ) She asked me what flours I could eat :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,314
    • Most Online (within 30 mins)
      7,748

    Lisa Gassick
    Newest Member
    Lisa Gassick
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.