Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New At This And I Have A Couple Questions


AlwaysByHisGrace

Recommended Posts

AlwaysByHisGrace Newbie

After struggling with fatigue and depression, this past summer I decided to go gluten-free and dairy free. I heard this could help my Hashimotos or a form of hypothyroidism. I seemed to be doing a lot better, I had more energy and my overall outlook was better. I am only 20 years old and I couldn't understand why I felt so bad. It would take me forever to wake up in the morning and finally get going. Recently, about the past 3 months I have let myself have a splurge meal on saturdays, I can have anything including things with gluten and dairy. I really didn't notice any problems until recently and now when I have something I have a bad reaction, even more so than before. Does anyone know why, is it because my body got used to not have gluten. I also wanted to know if symptoms got worse as a person got older because when I was a kid I don't remember have symptoms like this. I have not been diagnosed with celiacs, I don't have the outright symptoms like diarrhea but I do suffer from constipation and have to take miralax everyday. I eat clean throughout the week mainly just lean protein, fruits, vegetables and some grains, mainly brown basmati rice. But sometimes I just feel overwhelmed and struggle with this, mainly because I am not 100% sure I have to go gluten free. Any advice would be greatly appreciated!

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

It's hard when you don't really know if gluten is an issue for you or not?

If you eat "cleanly" during the week and then splurge on the weekend you would be keeping the inflamation of your immune system active by doing so. That's enough to make a Celiac continue to have symptoms.

It's also possible that you are gluten intolerant, or gluten sensitive. It's hard to test for those.

The best test for any of them aside from going on a full gluten diet and getting celiac testing, is to cut them from your diet 100% and see how you feel?

*there are numerous posts here on how to be sure you are 100% gluten-free, so I won't list them here.

Is testing important to you? Could you stay gluten-free without a diagnosis? You have to decide that.

Gluten light doesn't really tell you anything. It's also possible you have an issue with dairy or soy?

If you keep a log of everything you eat and note any symptoms you have it helps figure these things out. Many times food intollerance have delayed symptoms so if you have a record you can see if you eat____it gives you achy joints, or tiredness, headaches, whatever.

Sadly, it's the only way to find some food reactions.

Good luck in your detective work. I hope you find what's "getting" you, so you can get feeling better!

pricklypear1971 Community Regular

You're having a "bad reaction" because your body is becoming used to not having something (gluten, dairy) and then getting a dose of it.

This is very normal for someone who has a food intolerance. In your case, it looks like its gluten, dairy or both.

Think of it as your "antibody army" resting for 6 days. On day 7, they fight. Used to, they fought every day and were exhausted.

AlwaysByHisGrace Newbie

Great thanks for the advice. I am really going to give it 100% and go gluten and dairy free. Today is day 1!

Takala Enthusiast

Try taking a gluten free B complex vitamin and a calcium, D, magnesium supplement. And eating more "good" fats such as olive oil, nuts, coconut milk, avocado, plain dark chocolate. There's plenty of ways to splurge without eating gluten, including things like coconut milk "ice cream."

A normal person can eat gluten free for days, and then eat gluten without consequences, like my spouse. It looks like you may be one of us. :rolleyes:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,951
    • Most Online (within 30 mins)
      7,748

    SY8
    Newest Member
    SY8
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.