Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Daughter's Test Results Are In...opinions?

Aly1

Recommended Posts

Aly1 Contributor
Aly1
Posted

So I heard back from our pediatrician this morning - apparently all of my daughter's tests (including ttg) were normal, except for one test, the anti-gliadin test, which was abnormal. But he says that since all her other tests were fine he views that one as a false positive. Does his opinion ring true / make sense to you guys here? Sounds reasonable but I am not very knowledgeable on testing so I thought I'd ask the forum.

I am going to try her gluten-free anyway, that was always my plan since I get so ill on gluten but all my tests are normal...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Metoo Enthusiast
Metoo
Posted

So I heard back from our pediatrician this morning - apparently all of my daughter's tests (including ttg) were normal, except for one test, the anti-gliadin test, which was abnormal. But he says that since all her other tests were fine he views that one as a false positive. Does his opinion ring true / make sense to you guys here? Sounds reasonable but I am not very knowledgeable on testing so I thought I'd ask the forum.

I am going to try her gluten-free anyway, that was always my plan since I get so ill on gluten but all my tests are normal...

I am not great at reading these test results...but here is just a brief excerpt

"

Aly1 Contributor
Aly1
Posted
  • Author

Thanks that's interesting, I will research it further!

pricklypear1971 Community Regular
pricklypear1971
Posted

Find a new Pediatrician.

Seriously.

For the reasons mentioned above, for the reason that if any Celiac test comes back + in a child its a huge red flag.... And most of all because the child's mother is "mysteriously" ill with something that appears to be gluten related.

I mean REALLY???

What does he plan on doing with that "false positive"? Retesting? Ignore it? Look for another cause???

REALLY??????

Is there a local Celiac group near you? Call or email and ask for a Celiac friendly doc.

Aly1 Contributor
Aly1
Posted
  • Author

I took your advice and called the local support group for the name of a celiac-oriented pediatrician. They gave me the name of a pediatric GI that they recommend highly.

I can't help but think that a GI will be really scope-oriented and I'm not ready to put her through that procedure...do you think I'm right that this doc will push that? Or am I just being biased against GI's?

Skylark Collaborator
Skylark
Posted

You need to know if it's the old anti-gliadin or the new deamidated gliadin peptide (DGP). They can both be labeled "anti gliadin", though the newer one is often labeled "gliadin peptide". The new DGP test is very sensitive and specific for celiac and sometimes it's the only positive test. The OLD anti-gliadin isn't a very good predictor of damage on biopsy like TTG, but a lot of folks with a positive test still feel better off gluten.

pricklypear1971 Community Regular
pricklypear1971
Posted

I took your advice and called the local support group for the name of a celiac-oriented pediatrician. They gave me the name of a pediatric GI that they recommend highly.

I can't help but think that a GI will be really scope-oriented and I'm not ready to put her through that procedure...do you think I'm right that this doc will push that? Or am I just being biased against GI's?

I think you should go to an appointment before you make up your mind.

I struggle with the same question.

Things to consider: 1) If you take her gluten-free can she go through a gluten challenge later if needed? Most people who have a gluten issue just can't do it. 2) Will a doctor dx her Celiac or NCGI without it? 3) How badly do you need the dx for schools? Hint - most parents need it, and especially for college accomodations.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Aly1 Contributor
Aly1
Posted
  • Author

Good things for us to consider. I am waiting to see the test results and find out exactly which ones were used. There are no easy answers though are there! :/

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,014
    • Most Online (within 30 mins)
      7,748
    Scott Ryan
    Newest Member
    Scott Ryan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.