Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Distended Abdomen


Dr. Jill

Recommended Posts

IrishHeart Veteran

Oh no, some of us really have no butts. Just legs that go up to the trunk, nothing in between!

Oh I know, I lost mine, too for a while....just a flat, painful, weak pancake. I could not sit or lie down or walk comfortably for 3 years. No joke. The doctors had no explanation and suggested a scooter to get around and to take drugs. I said that's not an answer...what the hell is CAUSING it? (well, we know now) My sitz bones, gluteals, sciatica, piriformis muscles and hamstring attachments, the IT-band, quads, calf muscles EVERYTHING --excruciating BURNING pain. My entire pelvic floor was affected. I cried every day from the pain. The MT (who is also a nurse) and the PT (who is specialty- trained in pelvic floor disorders) both said they have never seen muscular wasting like I experienced. I am in rehab to restore massive lost muscle mass. 2X a week for the last year. And exercises and strengthening every day. It is grueling, but I make slow progress.I had to find those people myself to start this process and get back to a "normal life". I am almost like a kid learning to walk and move all over again. I was a dancer, a swimmer and --I had to stop all of that. My muscles would not work and I was burning 24/7. A soup can was heavy.

And in the past few months --after being gluten-free for a year---there IS a butt coming back. :) And definition to the muscles that became like wet noodles. And less pain. I use 2 lb. weights now. 10 whole reps! I have great hope.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

I have been over 4 years gluten free and can now eat dairy again. I still have a totally flat belly. It was huge before. I used to get asked if I was pregnant when I wasn't, and I was pretty thin too. Just wanted people to know that a flat belly with dairy is possible.

Bubba's Mom Enthusiast

Oh I know, I lost mine, too for a while....just a flat, painful, weak pancake. I could not sit or lie down or walk comfortably for 3 years. No joke. The doctors had no explanation and suggested a scooter to get around and to take drugs. I said that's not an answer...what the hell is CAUSING it? (well, we know now) My sitz bones, gluteals, sciatica, piriformis muscles and hamstring attachments, the IT-band, quads, calf muscles EVERYTHING --excruciating BURNING pain. My entire pelvic floor was affected. I cried every day from the pain. The MT (who is also a nurse) and the PT (who is specialty- trained in pelvic floor disorders) both said they have never seen muscular wasting like I experienced. I am in rehab to restore massive lost muscle mass. 2X a week for the last year. And exercises and strengthening every day. It is grueling, but I make slow progress.I had to find those people myself to start this process and get back to a "normal life". I am almost like a kid learning to walk and move all over again. I was a dancer, a swimmer and --I had to stop all of that. My muscles would not work and I was burning 24/7. A soup can was heavy.

And in the past few months --after being gluten-free for a year---there IS a butt coming back. :) And definition to the muscles that became like wet noodles. And less pain. I use 2 lb. weights now. 10 whole reps! I have great hope.

Add me to the list of those who've lost their butts! It's now flat with a bit of droopy skin at the bottom. My legs and arms are twigs. Chest has flattened too. :(

I used to hoist the 30# bag of dog food onto my shoulder and carry it into the house from my car. Now I can't lift it.

I want a ba-donk-a-donk butt! :P

IrishHeart..I'nm so glad you've finnally got the right people helping you come back to health. It's a long road when you've gotten as weak as you did.

Aly1 Contributor

My tummy got flat after 2 or 3 months of gluten-free - but now at 5 months it's suddenly ballooned up again. I've been trying to figure out if I've been doing anything differently and I can't say that I have. I can't figure it out. Hope it goes away again :(!

dilettantesteph Collaborator

My tummy got flat after 2 or 3 months of gluten-free - but now at 5 months it's suddenly ballooned up again. I've been trying to figure out if I've been doing anything differently and I can't say that I have. I can't figure it out. Hope it goes away again :(!

I found that the longer I was gluten free, the more sensitive I got to lower levels of gluten. Symptoms returned without me changing anything. I had to change things to make the symptoms go away again.

What helped was to keep a food/symptoms journal. That helped connect the symptoms to certain food items. It also helped to become more aware of possible low level cc issues.

I hope you figure things out. It's no good going around looking pregnant when you aren't.

Aly1 Contributor

I found that the longer I was gluten free, the more sensitive I got to lower levels of gluten. Symptoms returned without me changing anything. I had to change things to make the symptoms go away again.

What helped was to keep a food/symptoms journal. That helped connect the symptoms to certain food items. It also helped to become more aware of possible low level cc issues.

I hope you figure things out. It's no good going around looking pregnant when you aren't.

Well I am used to dressing the belly (loose shirts are a staple!) since I've done it all my life! I just discovered I have problems now with onions, maybe that's what was doing it? We'll see...

cap6 Enthusiast

You mean I might have a butt someday? !!! :D

lol My flat one has always been a joke in our circle of friends. My daughter once offered to buy me "butt pads" to round me out! :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748

    Betty Siebert
    Newest Member
    Betty Siebert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.