Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Alcohol...why The Issue Now?

lucky97

Recommended Posts

Aly1 Contributor
Aly1
Posted

Yes, what ravenwoodglass just said! I did not touch any alcohol for over 3 years because I found it made me so ill and I would have 3 day hangovers from just a few drinks, even if I had it on a full stomach. After going gluten-free I read about gluten and grains and alcohol, and wondered if that had been the problem - it was! I am totally fine wih potato vodka.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


UKGail Rookie
UKGail
Posted

Fascinating discussion here, and the article posted by AVR was very interesting too.

A friend of mine is a leading liver doctor, who specialises in alcoholic liver disease. He insists that individuals have varying degrees of susceptibility to alcoholic liver disease. He has patients in end-stage disease who have consumed the same amount of alcohol as their peer group over a period of time, but are dying whereas their peers are (currently) fine.

It seems like common sense to me that it is probably better to avoid alchohol while healing from celiac disease, taking it up again in moderation as and when your body can tolerate it.

I figured out in my twenties that I didn't tolerate alcholol well after first falling ill with "post-viral fatigue syndrome", and that beer in particular made me really sick. I stuck to wine in moderate doses instead. The intolerance worsened slowly over the years, to the point where I could not drink it at all, and still can't even after 5 months of gluten free. I still live in hope of the occasional glass of wine though! I do test it out now and again, and always regret it afterwards, unless it is just half a glass or so, and very rarely at that.

Gemini Experienced
Gemini
Posted

Sorry, I get fed up by the American puritanism that often condemns one or two drinks a week. Doctors are infected by it as readily and irrationally as anyone else. Sometimes they lose perspective that restricting something like alcohol 100% can create stress that is even worse for healing than the occasional drink was. We already have stressful diets!

The devastating effects of alcoholism, or even of having two or three drinks rather than one on sensitive stomachs are pretty well known. I doubt we're talking about that much alcohol though.

I don't know what made Lucky97's doctor nervous, but Aly1's doctor just sounds inflexible.

I have to agree with your line of thought, Skylark. It's another area where doctors go overboard. I do think if you are still healing, then maybe alcohol should be avoided. I did not drink at all for most of my adult life because I was a mess from undiagnosed Celiac and it ripped up my gut. However, I have healed really well and have a new found love for red wine. I have a glass every day and my gut feels great. If you make sure you have food with alcohol, it shouldn't be a problem. I never drink on an empty stomach. My doctor, on one of the rare occasions when I went to her, did not like the fact that I have a drink everyday. Tough tooties! It does wonder for the stress of everyday life and there is enough of that going around. Europeans drink a lot more wine than Americans do and they always seem more relaxed than we are. ;)

ravenwoodglass Mentor
ravenwoodglass
Posted

I have to agree with your line of thought, Skylark. It's another area where doctors go overboard. I do think if you are still healing, then maybe alcohol should be avoided. I did not drink at all for most of my adult life because I was a mess from undiagnosed Celiac and it ripped up my gut. However, I have healed really well and have a new found love for red wine. I have a glass every day and my gut feels great. If you make sure you have food with alcohol, it shouldn't be a problem. I never drink on an empty stomach. My doctor, on one of the rare occasions when I went to her, did not like the fact that I have a drink everyday. Tough tooties! It does wonder for the stress of everyday life and there is enough of that going around. Europeans drink a lot more wine than Americans do and they always seem more relaxed than we are. ;)

I think a lot of doctors attitudes to people having one drink a day is because so many of them think that we are 'underestimating' how much we drink. Many doctors think if someone says they have one drink a day that they actually mean a whole bottle. One glass of wine a day or one alcohol beverage a day is fine, IMHO as long as someone is well healed and doesn't have any liver issues. If more doctors listened to us and didn't assume that we under or over exagerte (sp) our symptoms and our habits a lot of us would have been diagnosed a heck of a lot sooner. My doctors always assumed my liver panels were off because I drank and was lieing about it. I wasn't, I rarely drank and those panels were off because of my undiagnosed celiac.

Gemini Experienced
Gemini
Posted

I think a lot of doctors attitudes to people having one drink a day is because so many of them think that we are 'underestimating' how much we drink. Many doctors think if someone says they have one drink a day that they actually mean a whole bottle. One glass of wine a day or one alcohol beverage a day is fine, IMHO as long as someone is well healed and doesn't have any liver issues. If more doctors listened to us and didn't assume that we under or over exagerte (sp) our symptoms and our habits a lot of us would have been diagnosed a heck of a lot sooner. My doctors always assumed my liver panels were off because I drank and was lieing about it. I wasn't, I rarely drank and those panels were off because of my undiagnosed celiac.

You know, Raven....I had elevated liver enzymes when I wasn't drinking at all and it was the same as you...undiagnosed celiac disease. Now that I am healed and drinking wine everyday, my liver panels are great! :P

lucky97 Explorer
lucky97
Posted
  • Author

Are you drinking hard ciders that are specifically labeled gluten free? Maybe that could be the problem.

I love drinking hard cider, as I miss beer very much...along with crunchy food (which I am finding more of though).

Aly1 - If you were drinking vodka. I know I never never get D, even pre-gluten free. I had my first vodka since being gluten free within 2 hours I spent the rest of the day in the bathroom with D. I know everything affects everyone different, but I used to drink vodka a lot, I was kind of shocked by that reaction. I definitly think some brands no matter how they are distilled must still have gluten. I emailed the company too, they claim all their flavors are gluten free because of the distilling process.

No, I only drank gluten free hard ciders...Strongbow, Woodchuck (yuk), Magners if it was available and it rarely was. None of the "amber ciders."

GFinDC Veteran
GFinDC
Posted

Link to an article posted by Scott. I posted just a snippet of the article. Something to think about I figure.

celiac com thread:

Why Liver Problems Require a Look at Celiac Disease - LiverSupport.com

Liver Support com article:

Open Original Shared Link

February 9th, 2012

Due to an apparent link between the two ailments, those with liver disease are advised to be evaluated for Celiac disease, and vice versa.

By Nicole Cutler, L.Ac.

....

Celiac and the Liver

Celiac disease is commonly associated with liver damage:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748
    Seeeye
    Newest Member
    Seeeye
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…                 
    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • Kris2093u4
      Bread choice for a newbie

      By Kris2093u4 · Posted

      Geography makes a difference.  I'm in the West and Trader Joe's gluten-free bread tastes great and is a better price than most gluten-free breads sold elsewhere in my area.  
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...