Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Alcohol...why The Issue Now?


lucky97

Recommended Posts

Aly1 Contributor

Yes, what ravenwoodglass just said! I did not touch any alcohol for over 3 years because I found it made me so ill and I would have 3 day hangovers from just a few drinks, even if I had it on a full stomach. After going gluten-free I read about gluten and grains and alcohol, and wondered if that had been the problem - it was! I am totally fine wih potato vodka.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



UKGail Rookie

Fascinating discussion here, and the article posted by AVR was very interesting too.

A friend of mine is a leading liver doctor, who specialises in alcoholic liver disease. He insists that individuals have varying degrees of susceptibility to alcoholic liver disease. He has patients in end-stage disease who have consumed the same amount of alcohol as their peer group over a period of time, but are dying whereas their peers are (currently) fine.

It seems like common sense to me that it is probably better to avoid alchohol while healing from celiac disease, taking it up again in moderation as and when your body can tolerate it.

I figured out in my twenties that I didn't tolerate alcholol well after first falling ill with "post-viral fatigue syndrome", and that beer in particular made me really sick. I stuck to wine in moderate doses instead. The intolerance worsened slowly over the years, to the point where I could not drink it at all, and still can't even after 5 months of gluten free. I still live in hope of the occasional glass of wine though! I do test it out now and again, and always regret it afterwards, unless it is just half a glass or so, and very rarely at that.

Gemini Experienced

Sorry, I get fed up by the American puritanism that often condemns one or two drinks a week. Doctors are infected by it as readily and irrationally as anyone else. Sometimes they lose perspective that restricting something like alcohol 100% can create stress that is even worse for healing than the occasional drink was. We already have stressful diets!

The devastating effects of alcoholism, or even of having two or three drinks rather than one on sensitive stomachs are pretty well known. I doubt we're talking about that much alcohol though.

I don't know what made Lucky97's doctor nervous, but Aly1's doctor just sounds inflexible.

I have to agree with your line of thought, Skylark. It's another area where doctors go overboard. I do think if you are still healing, then maybe alcohol should be avoided. I did not drink at all for most of my adult life because I was a mess from undiagnosed Celiac and it ripped up my gut. However, I have healed really well and have a new found love for red wine. I have a glass every day and my gut feels great. If you make sure you have food with alcohol, it shouldn't be a problem. I never drink on an empty stomach. My doctor, on one of the rare occasions when I went to her, did not like the fact that I have a drink everyday. Tough tooties! It does wonder for the stress of everyday life and there is enough of that going around. Europeans drink a lot more wine than Americans do and they always seem more relaxed than we are. ;)

ravenwoodglass Mentor

I have to agree with your line of thought, Skylark. It's another area where doctors go overboard. I do think if you are still healing, then maybe alcohol should be avoided. I did not drink at all for most of my adult life because I was a mess from undiagnosed Celiac and it ripped up my gut. However, I have healed really well and have a new found love for red wine. I have a glass every day and my gut feels great. If you make sure you have food with alcohol, it shouldn't be a problem. I never drink on an empty stomach. My doctor, on one of the rare occasions when I went to her, did not like the fact that I have a drink everyday. Tough tooties! It does wonder for the stress of everyday life and there is enough of that going around. Europeans drink a lot more wine than Americans do and they always seem more relaxed than we are. ;)

I think a lot of doctors attitudes to people having one drink a day is because so many of them think that we are 'underestimating' how much we drink. Many doctors think if someone says they have one drink a day that they actually mean a whole bottle. One glass of wine a day or one alcohol beverage a day is fine, IMHO as long as someone is well healed and doesn't have any liver issues. If more doctors listened to us and didn't assume that we under or over exagerte (sp) our symptoms and our habits a lot of us would have been diagnosed a heck of a lot sooner. My doctors always assumed my liver panels were off because I drank and was lieing about it. I wasn't, I rarely drank and those panels were off because of my undiagnosed celiac.

Gemini Experienced

I think a lot of doctors attitudes to people having one drink a day is because so many of them think that we are 'underestimating' how much we drink. Many doctors think if someone says they have one drink a day that they actually mean a whole bottle. One glass of wine a day or one alcohol beverage a day is fine, IMHO as long as someone is well healed and doesn't have any liver issues. If more doctors listened to us and didn't assume that we under or over exagerte (sp) our symptoms and our habits a lot of us would have been diagnosed a heck of a lot sooner. My doctors always assumed my liver panels were off because I drank and was lieing about it. I wasn't, I rarely drank and those panels were off because of my undiagnosed celiac.

You know, Raven....I had elevated liver enzymes when I wasn't drinking at all and it was the same as you...undiagnosed celiac disease. Now that I am healed and drinking wine everyday, my liver panels are great! :P

lucky97 Explorer

Are you drinking hard ciders that are specifically labeled gluten free? Maybe that could be the problem.

I love drinking hard cider, as I miss beer very much...along with crunchy food (which I am finding more of though).

Aly1 - If you were drinking vodka. I know I never never get D, even pre-gluten free. I had my first vodka since being gluten free within 2 hours I spent the rest of the day in the bathroom with D. I know everything affects everyone different, but I used to drink vodka a lot, I was kind of shocked by that reaction. I definitly think some brands no matter how they are distilled must still have gluten. I emailed the company too, they claim all their flavors are gluten free because of the distilling process.

No, I only drank gluten free hard ciders...Strongbow, Woodchuck (yuk), Magners if it was available and it rarely was. None of the "amber ciders."

GFinDC Veteran

Link to an article posted by Scott. I posted just a snippet of the article. Something to think about I figure.

celiac com thread:

Why Liver Problems Require a Look at Celiac Disease - LiverSupport.com

Liver Support com article:

Open Original Shared Link

February 9th, 2012

Due to an apparent link between the two ailments, those with liver disease are advised to be evaluated for Celiac disease, and vice versa.

By Nicole Cutler, L.Ac.

....

Celiac and the Liver

Celiac disease is commonly associated with liver damage:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,311
    • Most Online (within 30 mins)
      7,748

    EMP6543
    Newest Member
    EMP6543
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.