Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recently Started gluten-free Diet

Tennis229

Recommended Posts

Tennis229 Newbie
Tennis229
Posted

Hello everyone! I have recently started a gluten-free diet because I've become so fed up with taking medication for problems which I'm pretty sure are directly related to my intolerance to gluten/dairy. I've been diagnosed with ADD (which I'm pretty sure I don't have), I've had gallbladder, bladder, and gastrointestinal problems my whole life, and the past few years I've had a consistent bout of fatigue, brain fog, and memory loss. To say the least, I've been fed up and am finally sticking to a Gluten-free Casein-free diet in an attempt to feel normal and healthy again. I've been on the diet for 2 weeks now and I just have a few questions for those who have taken this path before. 1. Did you notice dizziness in the first weeks of starting the diet? (I've been so dizzy at times that I can barely stand up). 2. Did anyone notice an increased sensitivity to caffeine (specifically to coffee)? (Before going gluten-free I could drink 3 cups of coffee without noticing a difference, now I just drink a few sips and I'm bouncing off the walls). 3. Did anyone have increased gastrointestinal problems (diarrhea, stomach pains, gas) in the first weeks of going gluten-free?

Sorry for the incredibly long post. Even though going Gluten-free Casein-free is extremely difficult (I'm also living in a foreign country which adds another layer of difficulty), and I'm just looking to communicate with others who have gone through this before. I'm still not certain if dairy and gluten are the only culprits, but I'm excited to see if this diet can make a difference :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


domesticactivist Collaborator
domesticactivist
Posted

Your post isn't too long at all :) welcome!

I felt horrid when I first went gluten free. Part was withdrawal and part was that I tried some gluten free products that didn't sit right with me.

I've gotten the vertigo (dizziness) from medications and I've also gotten it seemingly randomly. I just got it the other day, actually. I was near the end of my gluten challenge and was given a gluten free treat at a gluten-free meeting. I normally don't eat things with sugar, any grains or stuff like xanthan gum but I

Thought I'm already such a mess, might as well. I started feeling weird half way through so I threw it out. I went to bed, and woke up with vertigo that didn't go away for hours.

I guess my point is that if you've been eating substitute products there may be a new to you ingredient causing the vertigo.

Check the labels for anything out of the ordinary!

domesticactivist Collaborator
domesticactivist
Posted

Ps my add got much better gluten-free and came back worse than ever during my two month challenge. Same with my nonceliac daughter. My son's ADHD cleared up as did his extreme dyslexia. This really does affect our minds!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Scatterbrain's topic in Sports and Fitness
      2

      Feel like I’m starting over

      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
    2. cristiana
      - cristiana replied to Scatterbrain's topic in Sports and Fitness
      2

      Feel like I’m starting over

      Hello @Scatterbrain and welcome to the forum I am sorry to hear you have had a return of your symptoms. My first thoughts were that stress can cause IBS-like symptoms - a friend of mine has been suffering a huge amount of stress and when that happens she gets diarrhea. But you say that you haven't got any bad abdominal issues, so perhaps you...
    3. Scatterbrain
      - Scatterbrain posted a topic in Sports and Fitness
      2

      Feel like I’m starting over

      Hello, I was newly diagnosed in January of this year (2025). Since then I have been strict about staying gluten free and only cooking at home. I started feeling better in July while gradually resuming close to my normal routine of activities and athletics. September and October were extremely stressful due to a new home build being finished and moving...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Latest Research
      3

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      Your story is a testament to the critical importance of an early and accurate diagnosis. It's tough to read about what you had to endure, including multiple surgeries and hospitalizations, all while the root cause—celiac disease—remained undetected for so long. Your experience highlights the consequences of medical ignorance surrounding this condition and...
    5. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Guinness, can you drink it?

      This is why Daura Damm can be a sponsor here--at 3ppm or less it is gluten-free, and it's doubtful that anyone with celiac disease would ever have issues with such levels. Some people may be reacting to the yeast in the beer, but I seriously doubt that such beers could trigger elevated antibodies or villi damage--the science says such levels won't trigger...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,280
    • Most Online (within 30 mins)
      7,748
    newlife213
    Newest Member
    newlife213
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Feel like I’m starting over

      By trents · Posted

      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
    • cristiana
      Feel like I’m starting over

      By cristiana · Posted

      Hello @Scatterbrain and welcome to the forum I am sorry to hear you have had a return of your symptoms.  My first thoughts were that stress can cause IBS-like symptoms - a friend of mine has been suffering a huge amount of stress and when that happens she gets diarrhea.  But you say that you haven't got any bad abdominal issues, so perhaps you could share what other symptoms you are having? Cristiana  
    • Scatterbrain
      Feel like I’m starting over

      By Scatterbrain · Posted

      Hello, I was newly diagnosed in January of this year (2025).  Since then I have been strict about staying gluten free and only cooking at home.  I started feeling better in July while gradually resuming close to my normal routine of activities and athletics. September and October were extremely stressful due to a new home build being finished and moving.  My spouse and I take care of his mom who has advanced dementia and have been since 2021.  We did all the moving as well as get the other house on the market for the month of October.  Since earlier this month I feel like I did back in the early stages of my diagnosis.  Almost all of my symptoms have come back except for the bad abdominal issues.  I haven’t changed my diet or supplements since January and wonder if the stress has caused a set back? Any thoughts are helpful.  Thanks
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This is why Daura Damm can be a sponsor here--at 3ppm or less it is gluten-free, and it's doubtful that anyone with celiac disease would ever have issues with such levels. Some people may be reacting to the yeast in the beer, but I seriously doubt that such beers could trigger elevated antibodies or villi damage--the science says such levels won't trigger celiac disease issues.  
    • Scott Adams
      Related issues

      By Scott Adams · Posted

      I have to express some significant skepticism about the drclark cleansing programs you've mentioned. The claim that a specific, three-part parasite and organ cleanse is a universal solution for chronic health issues is a major red flag, as it oversimplifies the immense complexity of the human body and conditions like Celiac disease, which is an autoimmune disorder, not a parasite infection. Regarding your Celiac disease, the reaction you describe, while real to you, does not necessarily confirm a diagnosis; a delayed reaction is common with various digestive issues, and a definitive diagnosis typically requires specific blood tests and an intestinal biopsy, not just a provider's acceptance of symptoms. Furthermore, your mention of approaching mayors seems to misunderstand the role of local government versus federal policy; the deduction for gluten-free food is a federal tax law, and a mayor has no jurisdiction to implement widespread Celiac screening, which is a medical and public health decision far beyond a municipal leader's purview. It sounds like you are navigating a difficult health journey, but I would strongly advise consulting with qualified medical specialists and registered dietitians over relying on unverified online cleansing programs.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.