Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Work Showed No Food Allergies...can I Still Have celiac disease?


lauraned

Recommended Posts

lauraned Newbie

Hello everyone! I am a 20-year old female with severe psoriasis, an autoimmune disease which affects the skin. I actually went on a gluten-free diet last June for about three months to try to help improve my psoriasis and noticed an improvement in my skin by the end of the summer (I also had lost some weight too which was a nice bonus). Unfortunately, I started eating gluten again by the end of August as I started another semester of college and had a difficult time maintaining the gluten-free lifestyle. My psoriasis is now the worst I've seen it in quite awhile. I'm not sure if it is because of the dietary change or the fact that winter always makes my psoriasis flare.

Anyways, for the last two weeks I have been having some gastrointestinal issues and have been wondering if they could be attributed to Celiac Disease. I've experienced upper abdominal pain (usually on the left side), bloating/gas, constant burping, and occasional diarrhea. The symptoms are varied and are usually worst after I eat. I have always had a slightly irregular menstrual cycle, usually getting my period every 6 weeks instead of 4. Strangely though it has been at least 8 weeks since I've gotten my last period (I'm not pregnant, just fyi).

I went to see a doctor last week and they ordered an ultrasound on my gallbladder and also some blood work to test for food allergies. I was also prescribed Prilosec, but decided not to start taking it yet. Today I called to find out the results of my tests and found that I don't have any issues with my gallbladder and no food allergies. Can I still be diagnosed with celiac disease if I am not allergic to gluten? I know there is some difference between the two, but maybe someone can explain it better than my current understanding. I just feel like all the signs point to celiac disease, but I am not sure if I should bring it up with my doctor at my next appointment to ask to have the blood test done for Celiac.

Any insight would be greatly appreciated. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Celiac is an auto-immune disease, not an allergy.

IrishHeart Veteran

Celiac is an auto-immune disease, not an allergy.

....and is often associated with psoriasis.

You may wish to read about Celiac disease so you understand that it is not an allergy and how it is diagnosed.

https://www.celiac.com/articles/1108/1/Celiac-Disease-Screening/Page1.html

burdee Enthusiast

Hello everyone! I am a 20-year old female with severe psoriasis, an autoimmune disease which affects the skin. I actually went on a gluten-free diet last June for about three months to try to help improve my psoriasis and noticed an improvement in my skin by the end of the summer (I also had lost some weight too which was a nice bonus). Unfortunately, I started eating gluten again by the end of August as I started another semester of college and had a difficult time maintaining the gluten-free lifestyle. My psoriasis is now the worst I've seen it in quite awhile. I'm not sure if it is because of the dietary change or the fact that winter always makes my psoriasis flare.

Anyways, for the last two weeks I have been having some gastrointestinal issues and have been wondering if they could be attributed to Celiac Disease. I've experienced upper abdominal pain (usually on the left side), bloating/gas, constant burping, and occasional diarrhea. The symptoms are varied and are usually worst after I eat. I have always had a slightly irregular menstrual cycle, usually getting my period every 6 weeks instead of 4. Strangely though it has been at least 8 weeks since I've gotten my last period (I'm not pregnant, just fyi).

I went to see a doctor last week and they ordered an ultrasound on my gallbladder and also some blood work to test for food allergies. I was also prescribed Prilosec, but decided not to start taking it yet. Today I called to find out the results of my tests and found that I don't have any issues with my gallbladder and no food allergies. Can I still be diagnosed with celiac disease if I am not allergic to gluten? I know there is some difference between the two, but maybe someone can explain it better than my current understanding. I just feel like all the signs point to celiac disease, but I am not sure if I should bring it up with my doctor at my next appointment to ask to have the blood test done for Celiac.

Any insight would be greatly appreciated. Thanks!

Which blood test were you given? (RAST? ELISA?) Did it look for IgG or IgA mediated allergies? Those are delayed reaction allergies which are common among people with celiac disease. Some tests only look for IgE mediated allergies, which are anaphylactic and immediate, not delayed reaction like gluten intolerance.

BTW allergies do involve an immune reaction because antibodies are created. Only intolerances, like lactose intolerance, which involves an enzyme deficiency, don't involve the immune system. Gluten intolerance is actually a misnomer, because the immune system mediates reactions to gluten.

GFinDC Veteran

Hi, welcome to the board. you might want to read up on dermatitis herpetiformis on this site. It is an auto-immune skin condition that some people with celiac get. It often flares when people eat gluten. If you do have DH, they would test for it by taking a biopsy of the skin next to a lesion.

There are certainly some symptoms you describe that fit celiac disease. It makes sense to me to get the celiac antibodies tests done. Your improvement on gluten-free diet is a big indicator. Be aware though that the celiac antibodie tests are not 100% accurate, and fairly often give false negative results

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

    3. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

    4. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748

    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.