Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Synvisc-1 Reaction


kenlove

Recommended Posts

kenlove Rising Star

ANyway have experience with Synvisk-1? This is the injectable medicine made from rooster combs that helps replace cartilage in the knee. I had the injection and had an immediate allergic reaction and passed out for over an hour.

The next day I started breaking out in the worse case of DH i've ever had, all over the shoulders and neck.

The company says there is no gluten in the medicine although they dont know what the roosters are fed.

Strange to say the least.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

That sounds awful. I hope the DH resolves for you soon. Meanwhile here is the FDA site link to report adverse reactions to drugs.

Open Original Shared Link

IrishHeart Veteran

I read about this stuff when I was considering it myself for OA.

It says if you have adverse reactions to "feathers, birds, poultry or eggs" you may not wish to use the product.

Since I have a problem with eggs, I went for Hyaluronic Acid, but not the kind made from rooster combs.

Also, rashes are reported in some users, they state.

Sorry you got such a reaction! :(

Takala Enthusiast

Oh, wow. Glad you woke up out of that !

Have a look at this blog, especially the 2009 archives page:

Open Original Shared Link

Side effects from this stuff are more common than the regulatory body is letting on. :blink:

Bubba's Mom Enthusiast

I had the injections several years ago, before my DX. I didn't have any bad reactions. Back then they did the injections into my knees once a week for 5 weeks.

Since then..I've reacted to Eggland's Best eggs because of the soy that they feed the birds. If soy could come through to the eggs..I don't think it's a far stretch for the feed to affect the chicken?

I'm so sorry you had such a bad reaction. It's miserable!

AND I found the shots really helped my knees.

kenlove Rising Star

thanks, got the link

That sounds awful. I hope the DH resolves for you soon. Meanwhile here is the FDA site link to report adverse reactions to drugs.

Open Original Shared Link

kenlove Rising Star

Thanks much, Other the celiac I really dont have other problems although I am vegan and have not had eggs or any other animal protein in a few years. I'll have to do some research when I have time

I read about this stuff when I was considering it myself for OA.

It says if you have adverse reactions to "feathers, birds, poultry or eggs" you may not wish to use the product.

Since I have a problem with eggs, I went for Hyaluronic Acid, but not the kind made from rooster combs.

Also, rashes are reported in some users, they state.

Sorry you got such a reaction! :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

wow - -very interesting. i sent the lin to my kaiser doc. 4 different friends have been getting the shots with no reaction but then i'm the only celiac

Oh, wow. Glad you woke up out of that !

Have a look at this blog, especially the 2009 archives page:

Open Original Shared Link

Side effects from this stuff are more common than the regulatory body is letting on. :blink:

kenlove Rising Star

when i did check into the content, the company mentioned that there could be gluten in the chicken feed.

my knee is a little better but I will never get the shot again.

take care

I had the injections several years ago, before my DX. I didn't have any bad reactions. Back then they did the injections into my knees once a week for 5 weeks.

Since then..I've reacted to Eggland's Best eggs because of the soy that they feed the birds. If soy could come through to the eggs..I don't think it's a far stretch for the feed to affect the chicken?

I'm so sorry you had such a bad reaction. It's miserable!

AND I found the shots really helped my knees.

mushroom Proficient

Glad your knee is improving, Ken. Doc wanted to give it to me but after the awful reaction I had to cortisone I declined. I have a partial knee replacement. :) It has been great :D

kenlove Rising Star

they never mentioned the word partial to me-- i'll ask. the cortisone didnt help me at all but it has in the past with other problems although come to think of it I passed out after the third shot in the foot with it. i'll never try this stuff again!

Glad your knee is improving, Ken. Doc wanted to give it to me but after the awful reaction I had to cortisone I declined. I have a partial knee replacement. :) It has been great :D

mushroom Proficient

they never mentioned the word partial to me-- i'll ask. the cortisone didnt help me at all but it has in the past with other problems although come to think of it I passed out after the third shot in the foot with it. i'll never try this stuff again!

I was able to have only a partial replacement (on the medial side) because that was the onlly side where the cartilage was worn away. My damage was caused by a sacroiliac problem :(, not osteoarthritis, per se. It was a real "wear and tear" injry :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    5. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,845
    • Most Online (within 30 mins)
      7,748

    Paulaannefthimiou
    Newest Member
    Paulaannefthimiou
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
    • xxnonamexx
      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.