Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Synvisc-1 Reaction

kenlove

By kenlove
in Related Issues & Disorders

Recommended Posts

kenlove Rising Star
kenlove
Posted

ANyway have experience with Synvisk-1? This is the injectable medicine made from rooster combs that helps replace cartilage in the knee. I had the injection and had an immediate allergic reaction and passed out for over an hour.

The next day I started breaking out in the worse case of DH i've ever had, all over the shoulders and neck.

The company says there is no gluten in the medicine although they dont know what the roosters are fed.

Strange to say the least.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

That sounds awful. I hope the DH resolves for you soon. Meanwhile here is the FDA site link to report adverse reactions to drugs.

Open Original Shared Link

IrishHeart Veteran
IrishHeart
Posted

I read about this stuff when I was considering it myself for OA.

It says if you have adverse reactions to "feathers, birds, poultry or eggs" you may not wish to use the product.

Since I have a problem with eggs, I went for Hyaluronic Acid, but not the kind made from rooster combs.

Also, rashes are reported in some users, they state.

Sorry you got such a reaction! :(

Takala Enthusiast
Takala
Posted

Oh, wow. Glad you woke up out of that !

Have a look at this blog, especially the 2009 archives page:

Open Original Shared Link

Side effects from this stuff are more common than the regulatory body is letting on. :blink:

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I had the injections several years ago, before my DX. I didn't have any bad reactions. Back then they did the injections into my knees once a week for 5 weeks.

Since then..I've reacted to Eggland's Best eggs because of the soy that they feed the birds. If soy could come through to the eggs..I don't think it's a far stretch for the feed to affect the chicken?

I'm so sorry you had such a bad reaction. It's miserable!

AND I found the shots really helped my knees.

kenlove Rising Star
kenlove
Posted
  • Author

thanks, got the link

That sounds awful. I hope the DH resolves for you soon. Meanwhile here is the FDA site link to report adverse reactions to drugs.

Open Original Shared Link

kenlove Rising Star
kenlove
Posted
  • Author

Thanks much, Other the celiac I really dont have other problems although I am vegan and have not had eggs or any other animal protein in a few years. I'll have to do some research when I have time

I read about this stuff when I was considering it myself for OA.

It says if you have adverse reactions to "feathers, birds, poultry or eggs" you may not wish to use the product.

Since I have a problem with eggs, I went for Hyaluronic Acid, but not the kind made from rooster combs.

Also, rashes are reported in some users, they state.

Sorry you got such a reaction! :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kenlove Rising Star
kenlove
Posted
  • Author

wow - -very interesting. i sent the lin to my kaiser doc. 4 different friends have been getting the shots with no reaction but then i'm the only celiac

Oh, wow. Glad you woke up out of that !

Have a look at this blog, especially the 2009 archives page:

Open Original Shared Link

Side effects from this stuff are more common than the regulatory body is letting on. :blink:

kenlove Rising Star
kenlove
Posted
  • Author

when i did check into the content, the company mentioned that there could be gluten in the chicken feed.

my knee is a little better but I will never get the shot again.

take care

I had the injections several years ago, before my DX. I didn't have any bad reactions. Back then they did the injections into my knees once a week for 5 weeks.

Since then..I've reacted to Eggland's Best eggs because of the soy that they feed the birds. If soy could come through to the eggs..I don't think it's a far stretch for the feed to affect the chicken?

I'm so sorry you had such a bad reaction. It's miserable!

AND I found the shots really helped my knees.

mushroom Proficient
mushroom
Posted

Glad your knee is improving, Ken. Doc wanted to give it to me but after the awful reaction I had to cortisone I declined. I have a partial knee replacement. :) It has been great :D

kenlove Rising Star
kenlove
Posted
  • Author

they never mentioned the word partial to me-- i'll ask. the cortisone didnt help me at all but it has in the past with other problems although come to think of it I passed out after the third shot in the foot with it. i'll never try this stuff again!

Glad your knee is improving, Ken. Doc wanted to give it to me but after the awful reaction I had to cortisone I declined. I have a partial knee replacement. :) It has been great :D

mushroom Proficient
mushroom
Posted

they never mentioned the word partial to me-- i'll ask. the cortisone didnt help me at all but it has in the past with other problems although come to think of it I passed out after the third shot in the foot with it. i'll never try this stuff again!

I was able to have only a partial replacement (on the medial side) because that was the onlly side where the cartilage was worn away. My damage was caused by a sacroiliac problem :(, not osteoarthritis, per se. It was a real "wear and tear" injry :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,159
    • Most Online (within 30 mins)
      7,748
    Werae71
    Newest Member
    Werae71
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.