Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Entero Lab Gene Test: Positive!

zeeclass6

Recommended Posts

zeeclass6 Explorer
zeeclass6
Posted

Got the gene test results today from Entero Lab. Wow, am I glad I got this done! I have one genetic marker for Celiac and one genetic marker for gluten sensitivity. They told me that this means that it is strongly suggested that I avoid gluten. Also, my kids will have inherited at least one of those genetic markers, but there is now way of knowing which one unless they get tested.

I had gotten two Celiac blood tests done, ten years ago and just recently. Both were negative. However, my IgA was low, and Entero Lab explained to me that because of that, any IgA test will not be accurate. IgG and IgE would be more accurate, but those are more histamine reactions (as in "food allergy" instead of "food intolerance/sensitivity.")

So, hats off to Dr. Langer for telling me to avoid gluten because of my Hashi's, and hats off also to others who have gotten this information out there into the public eye and helped me become aware of this. Because the MD's are CLUELESS. FRICKING CLUELESS!!!!

As much as I hate this new reality of my life, I have adapted pretty well to a gluten-free diet. Eating out is really the only problem (in general). As a family, our lives were hard enough having two daughters who are allergic to peanuts, tree nuts, and legumes (such as peas and soy). Now we add this to the mix and we become "that allergy family" at a restaurant, LOL.

Fortunately, because of my daughters' allergies, I understand how to read labels and deal with food problems. I just never in a million years thought that I'd need to do it for myself. In fact, I always (ironically) thanked the lord that "at least we don't have the celiac thing."

My youngest daughter is having a very hard time right now with PCOS. I suspect thyriod problems. She has tested negative for both thyroid antibodies. But now I wonder about gluten. I am taking her to a licensed Naturopath tomorrow, and to a Reproductive Endo next week. I will ask them to run a full Celiac panel on her (whichever one does it...I don't care....it's through the same lab covered by my insurance). I know for a fact that she has at least one of those genetic markers and I think it's a good idea to find out whether gluten is playing a role in her new hormonal problems.

MY next challenge for myself is to determine whether I also have a problem with casein. I strongly suspect that I might. I know that many of you who have gone gluten free have also gone dairy free. I have been resisting that, but my body is still unhappy with SOMETHING and I have to figure out what it is. Many people in the thyroid community have gone Paleo (no grains at all...at least I think that's what Paleo is). I don't know if I'm reacting to other grains. I sure hope not. But I'll just roll with the punches. I am coming to terms with this and it's just easier to accept it than to fight it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Avalon451 Apprentice
Avalon451
Posted

Glad for you that you got some confirmation! Wow, it's good to have some answers. Good luck with your search for the hidden irritant, hope things settle down for you soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,194
    • Most Online (within 30 mins)
      7,748
    Eliana123
    Newest Member
    Eliana123
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.