Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New And Feeling Ick!


tattooedmom

Recommended Posts

tattooedmom Newbie

Hi all,this is my first post. After searching and searching trying to figure out what was wrong with me ( two docs just smiled and made suggestions on what I could try ) I decided to take myself of gluten,my nana and sister are both celiac. I went off all gluten last Monday,and was feeling better within two days! It was great,I felt the best I have in a very long time. Then my honey bought me some Hershey milk chocolate bars,and some snickers minis. According to what I found online these should be fine but I feel so sick! I had a Hersheys bar last night,and a few snickers today. My head is pounding and I feel sick to my stomach. On top of that I have pain in my legs like I remember growing pains feeling like. Could those candies really have gluten? I'm also itchy and my sinuses hurt. I felt like this (and worse) everyday for the past two years. I was so happy to be feeling better and new I just feel low. Thank you in advance :D for any help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kwylee Apprentice

If it turns out either of those candies are gluten free (sorry, I'm not where I can easily search the internet, and I personally don't eat those because of the dairy) it still be a case of cross contamination if they are produced on shared equipment. Seems I've heard that about snickers before.

For me, dairy (and soy) quickly became the same to my body as gluten. I can tolerate a small amount of dairy now but not soy.

sa1937 Community Regular

Hi all,this is my first post. After searching and searching trying to figure out what was wrong with me ( two docs just smiled and made suggestions on what I could try ) I decided to take myself of gluten,my nana and sister are both celiac. I went off all gluten last Monday,and was feeling better within two days! It was great,I felt the best I have in a very long time. Then my honey bought me some Hershey milk chocolate bars,and some snickers minis. According to what I found online these should be fine but I feel so sick! I has a Hersheys bar last night,and a few snickers today. My heard is pounding and I feel sick to my stomach. On top of that I have pain in my legs like I remember growing pains feeling like. Could those candies really have gluten? I'm also itchy and my sinuses hurt. I felt like this (and worse) everyday for the past two years. I was so happy to be feeling better and new I just feel low. Thank you in advance :D for any help!

Welcome to the forum! Since you're so new to being gluten-free, it's probably best to avoid most processed foods for the time being. I do occasionally eat a Hershey's bar or a Snickers without a problem. Of course cross-contamination is always a possibility, too, and you might want to also eliminate dairy for awhile.

Hope you feel better soon...a lot of us have problems occasionally even after being gluten-free for quite awhile.

tattooedmom Newbie

Thank you both! I agree,I should avoid pre-made things for a bit. I get very low blood sugar if I don't have something high in sugar/carbs before bed. It used to be pretzels and a little cheese,I need to find something new! It really is amazing how quickly I felt so so much better,I have this small fear that I will start to feel sick all the time again.

YoloGx Rookie

Most of us have problems with dairy, especially at first due to our damaged intestinal villi. Yogurt is better than straight dairy and its just possible you could handle that. Nevertheless you might still want to wait on even trying that for a while, like at least 6 months??

Plus all that sugar can be a problem too for low blood sugar. Really. You might not think so, but it stresses the hormones badly. Easy to digest protein like those Asian azuki beans and chicken with brown rice and veggies gives you a more steady slow burn, which is what you are looking for. So many of us have hypoglycemia, especially at first due to malabsorption from the damaged villi in the intestines. Sugar will make you feel fine for a moment, but then gums up the works feeding bad bacteria and overstressing your adrenals.

Meanwhile I think your doctors should be taken somewhere and shot for pure pig headed ignorance. Your Mom and sister both have celiac and they didn't even consider you might at least be gluten sensitive? What goes here??

Meanwhile, not everyone can handle chocolate. Unfortunately I am one of those, as I just rediscovered. I tend to test my parameters once in a blue moon and did so with gluten free chocolate (from Enjoy Life), the good kind with nothing added except for cane sugar. And I ended up feeling awful., with a terrible migraine and diarrhea. In the past I thought I could eat chocolate now and then, but it appears not. So generally I have carob when I have the urge--though for me it has to be tree nut free too. So I just get the powder from a reputable supplier and it works fine for me.

However, most here can and do love chocolate without too much ill effect. Best to ask advice as to what is the best kinds from them. They do have dairy and soy free chocolate that I know about, which is what I had, i.e., the Enjoy Life brand found at health food stores.

Korwyn Explorer

Two people I know have found they can't eat the Snickers Minis, but seem to be able to eat regular Snickers. Entirely anecdotal I know, but possibly the shared production line is a different setup (maybe that line has something crispy on it and the regular Snickers bar line doesn't)? Or perhaps you are more sensitive to CC at this time since you are just starting out.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,956
    • Most Online (within 30 mins)
      7,748

    Crismedin
    Newest Member
    Crismedin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.