Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Risk Of Cancer If I Continue To Ingest Gluten?

Silencio

By Silencio
in Coping with Celiac Disease

Recommended Posts

Silencio Enthusiast
Silencio
Posted

I cant find much about it online. My doctor told me to stay off gluten because I have a better chance of getting cancer if I continue to ingest gluten. I have been off gluten since I was diagnosed but im just wondering.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pain*in*my*gut Apprentice
pain*in*my*gut
Posted

I cant find much about it online. My doctor told me to stay off gluten because I have a better chance of getting cancer if I continue to ingest gluten. I have been off gluten since I was diagnosed but im just wondering.

Your doc is right. Here you go....

Open Original Shared Link

Skylark Collaborator
Skylark
Posted

I cant find much about it online. My doctor told me to stay off gluten because I have a better chance of getting cancer if I continue to ingest gluten. I have been off gluten since I was diagnosed but im just wondering.

Wikipedia has pretty good info.

Open Original Shared Link

Don't worry though. Our risk of cancer drops to normal after about a year on the gluten-free diet. The enteropathy-associated T-cell lymphoma is pretty scary but it's usually only seen in people with advanced celiac disease who aren't on the diet.

Silencio Enthusiast
Silencio
Posted
  • Author

The reason I ask is because its kinda tough for me to know when I am glutened since I dont react to anything at all. The tests say I have it but I would never know it if I ate a regular piece of pizza or bread. I wouldn't do that but just giving an example.

pain*in*my*gut Apprentice
pain*in*my*gut
Posted

The reason I ask is because its kinda tough for me to know when I am glutened since I dont react to anything at all. The tests say I have it but I would never know it if I ate a regular piece of pizza or bread. I wouldn't do that but just giving an example.

Yes, that would be tough. I would think regular follow-ups with your GI for blood tests would be sufficient to make sure your numbers stay in the normal range and you are not accidentally getting glutened on a regular basis.

Skylark Collaborator
Skylark
Posted

I agree. Take reasonable care and follow up with your doctor for blood tests and you will be fine. It's the people who go undiagnosed for all their lives who get cancer.

love2travel Mentor
love2travel
Posted

The reason I ask is because its kinda tough for me to know when I am glutened since I dont react to anything at all. The tests say I have it but I would never know it if I ate a regular piece of pizza or bread. I wouldn't do that but just giving an example.

You and me both - I did not react to gluten, either. I have no clue whether I would now (have been off nearly a year) and not am about to find out. However, I was away for the past two weeks, visiting family (lots of little nieces and nephews) and have no idea whether I was glutened. I cooked about 95% of the meals myself and was very careful but still.

As others have mentioned, I was also told that the cancer risks are the same as non-celiacs after being off gluten a year.

My doctor has done bloodwork on me twice so far and both times were negative so I am doing something right! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


come dance with me Enthusiast
come dance with me
Posted

The reason I ask is because its kinda tough for me to know when I am glutened since I dont react to anything at all. The tests say I have it but I would never know it if I ate a regular piece of pizza or bread. I wouldn't do that but just giving an example.

Wow that would be difficult. My 8yo ingested gluten over the weekend, trace amounts, and spent yesterday in bed holding her tummy screaming out in pain, so we can easily tell. You would have to be even more aware if your body doesn't tell you. I agree with regular checks. I take my dd for follow up blood tests but yeah, as you can see, I know when there is a slight slip up.

Silencio Enthusiast
Silencio
Posted
  • Author

You and me both - I did not react to gluten, either. I have no clue whether I would now (have been off nearly a year) and not am about to find out. However, I was away for the past two weeks, visiting family (lots of little nieces and nephews) and have no idea whether I was glutened. I cooked about 95% of the meals myself and was very careful but still.

As others have mentioned, I was also told that the cancer risks are the same as non-celiacs after being off gluten a year.

My doctor has done bloodwork on me twice so far and both times were negative so I am doing something right! :)

Yeah I go in for blood work every 3 months to see if everything is cool. Its almost that time again (first blood work since I was diagnosed) so I guess I will find out how well I have been doing with it. On another subject, im heading down to the Kinnikinnick store here in Edmonton to check out the new soft bread and buns that you informed me about in another thread.

come dance with me, I read stories all the time of people in so much pain over the slightest amount. I am pretty lucky not to have that.

BarryC Collaborator
BarryC
Posted

Colo-rectal cancer runs in my family. I lost my Dad andtwo uncles in their 40's. I am 53, but I also lead a healthier lifestyle, no smoking, not too much booze. I wouldnt be surprised if their is a connection. They all ate lots of fatty meat slopped up with my Grannies home made bread. They all had the big bloated belly like I have, which is only now starting to soften up.

Silencio Enthusiast
Silencio
Posted
  • Author

I am pretty bad for eating alot of junk too. I am really skinny and cant gain much if I tried. I have never drank or smoked though

BeFree Contributor
BeFree
Posted

"Our risk of cancer drops to normal after about a year on the gluten-free diet."

That's good to know!!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.