Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question

lichjen

Recommended Posts

lichjen Rookie
lichjen
Posted

Ok, first off I DO NOT HAVE INSURANCE so i can only see the health dept and you don't get good care there. I am speaking with a doctor soon but I would like opinions.

Ok, I have never been tested for celiac, but I am ALWAYS tired after I eat, unless I eat low carb. Recently I have had rapid weight gain, and how I have this HORRIBLE rash on my stomach. I am tired of being tired -even after good sleep.

I googled my symptoms and Celiac came up but I never thought of it before!

Here are my daily symptoms

excessive tireness

rash

weight gain

constant bloating

even more sleepiness after eating *unless low carb*

Ok, WWYD, should I try to cut out gluten or am I way off here. Having no insurance stinks LOL

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

You'll have nothing to lose if you go gluten free, because you'll know you've made the right choice when you start feeling better. If you don't go gluten free, there's the possibility that you will lose what good health you have left.

You may have other symptoms that you haven't thought might be related to celiac or gluten sensitivity, such as muscle pain, joint and connective tissue pain, carpal tunnel pain, neurological problems (migraines, dizziness, seizures, neuropathy, etc.), anemia, frequent illnesses, weak tooth enamel, infertility, etc.

It might really be worth it for you to try the gluten-free diet for a while, but keep in mind that you might have other food sensitivities, too.

lichjen Rookie
lichjen
Posted
  • Author

actually, i am always hurting muscle wise esp in neck, i have migraines and recently out of now where started having seizures

mommida Enthusiast
mommida
Posted

just keep in mind, gluten free is all or nothing. Don't think that 'gluten lite" is something to play around with. People who had no symptoms before going gluten free now have reactions. if you experience better health on a gluten free diet, you will never do a gluten challenge for medical testing.

Go easy on your wallet and stick to naturally gluten free foods. IMO the processed gluten free breads really aren't that great. To get used to eating them toast or grill them.

lichjen Rookie
lichjen
Posted
  • Author

well the health dept refused to test me for it, looks like I'm going to have to wait to be tested til I get insurance. But I am going ahead and starting tomorrow.

rosetapper23 Explorer
rosetapper23
Posted

Good for you! Now is the beginning of your new life....

maximoo Enthusiast
maximoo
Posted

go to the director! start with an email. I too have county ins & had a little bit of a hard time with them but I persisted & eventually got tested. So put on your toughest armor,& go get' em!( it duzn't hurt to exaggerate a little --for the purposes of getting tested of course)

I know you are anxious to feel better but you need to consider holding off on going completely gluten-free--b/c if you finally convince them to test you, you'll want to have the best chances for a positive result & that means staying on gluten--but you can certainly lighten up on ur daily consumption. There are false negatives too so be prepared for it. Even if you get tested & its negative you can then still try a gluten-free diet for awhile & see how you feel--u might be gluten intolerant but not a celiac. Lots to think about so consider your choices carefully. Good Luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

If you're in the US or Canada you can order a GlutenPro home celiac test kit. Open Original Shared Link In Europe the kit is marketed as Biocard and it should be available in pharmacies.

Do not go onto the gluten-free diet yet if you want to do a home test or pursue testing through the health dept. The test will not be reliable. I wouldn't recommend changing the amount of gluten in your diet at all - it's HARD to get a positive and you don't want to throw it off.

Once you've gotten some testing, give the diet a go. It may help. :)

lichjen Rookie
lichjen
Posted
  • Author

Ok, I have been doing this for a few days (I did not see the post on it not being reliable if I started) My scalp - which has itched, DAILY since I was 12 (I am 31) has NOT - besides the cold I am getting (since I was in the health dept all day Thursday) I am feeling better

I go back on the 16th of March and I am going to report to the doctor on how things are going (I only saw the PA then)

I hate my county - they do things the cheapest way possible. they give NO samples, even if you are homeless making no money they still charge to see you (i was this way a while back) I have a bunch of issues to talk with them about and I have to go see them for EACH issue -

oh yeah, I had a rash on my abdomen - they wanted to give me a cream - which cost $50 (I did not pick it up) - since starting gluten free, it's clearing up!

My SIL was right! She suggested years ago I had this

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Hi @KathyR37 and a very warm welcome here. I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana
    2. trents
      - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    3. Theresa2407
      - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

      thank you for your advice. I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated. I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    4. KathyR37
      - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and gloves when cooking for them. One huge problem...
    5. Scott Adams
      - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are fee...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748
    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      New here

      By cristiana · Posted

      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.