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Need Good Doctor Se Michigan

harleygal726

By harleygal726
in Doctors

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harleygal726 Rookie
harleygal726
Posted

I need to find a new Doctor in SE Michigan that knows there Celiac stuff and will listen to me. it is amazing how little most Doctors know about Celiac and refuse to order tests. Thanks

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Bubba's Mom Enthusiast
Bubba's Mom
Posted

Maybe try Ann Arbor? I know it's a bit of a drive, but if you have an assesment there, maybe they could help with finding a Dr. more local?

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I believe there's a Celiac center there?

harleygal726 Rookie
harleygal726
Posted
  • Author

Thanks but I have already had an assessment and the GI Doctor that I saw contradicted information that I have already researched. I was looking for recommendations on a new GI Doctor.

1138 Newbie
1138
Posted

I was originally diagnosed by Dr. Dahlstedt in Sterling Heights (endoscopy & blood test). I really liked him a lot and he was familiar with Celiac but couldn't answer a lot of questions. It seems there is so much info they don't know. My brother was also diagnosed by him before me. He chose to then see the leading specialist in NY (Dr. Peter Green) and even he couldn't answer questions. They just don't know enough about it yet it seems. Of course he was better than most. I searched around for another doctor that might be a little more knowledgeable closer to me and the name Dr. Thomas J. Alexander in Troy came up. I went to him for my colonoscopy a year after my diagnosis. He seems the best case scenario around the metro Detroit area. He has been diagnosing Celiac for almost 30 years I think. I will go back to him for any follow ups I will need. I wish I could find a gastro doc with Celiac ;)

I also want to add Dr. Alexander was not hesitant for any testing I wanted done and he was very thorough in making sure I had a full blood workup, making sure my numbers were down for transglutaminase, bone density test, etc. And said to make sure I come back every year for bloodwork so that I am 100% where I should be.

goblue2014 Newbie
goblue2014
Posted

I see Dr. Shanti Eswaran. She is a GI out of U of M Hospital in Ann Arbor. Her clinical and research specialty is in gluten intolerances and celiac disease. She's absolutely fantastic. She listens attentively and is very thorough. She is very down-to-earth and easy to talk to, and since she herself has some food intolerances, she is also a great resource as well. After 3 years and four GIs, she was the only one who accurately diagnosed my chronic illness as being food-related. You can message me if you'd like her office number.

xjrosie Apprentice
xjrosie
Posted

I recommend Dr. Lyons. He works out of St. John. He has a main office in Detroit but also goes to Macomb (on Romeo Plank) one day a week. He diagnosed two of my kids and has been thorough about follow up visits and bloodwork to check vitamins and nutrients after diagnosis. So far, no complaints at all. I don't remember the main number, but the number to the Macomb office is 586-868-9030. They could help you get the other number.

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    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
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      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
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