Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Wants To Say Thank You

RuskitD

By RuskitD
in Introduce Yourself / Share Stuff

Recommended Posts

RuskitD Rookie
RuskitD
Posted

I have made an account today so that I can say thank you to all the members who have so generously shared their experiences here. Without you, I would feel as if I had lost my mind.

I never really understood the concept of a support group. I felt it was a place to whine about your issues. I am perhaps, tougher than most. I am used to dealing with life on my own, and in my own way.

But after being so sick, and the doctors not helping beyond offering drugs to manage my symptoms, instead of helping find what was causing them...... my physical and mental weakness wore me down.

Doing Google searches of my symptoms consistently led me to this forum, and another testimonial that sounded as if I wrote it!

After reading others personal experiences, I 'tested' myself, and without a doubt, I am, at the least Gluten Intolerant. I am adopting the lifestyle.

I shudder to think I almost let the doctors drug me. Which would have meant a lifetime of chemicals in my body, ON TOP of my poisoning myself with gluten!

When I caught myself with tears of relief in my eyes while reading here... I knew I had to log in and say a personal thank you to each of you AND I now understand the concept of a support group.

Knowing people can empathize with my situation, who REALLY know what I going through, means so very much!

I don't have any questions right now. Any I have come with have already been asked and answered. But knowing I have a place to find my answer lifts a huge burden off my shoulders!

~Blessing to all of you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvs2eat Collaborator
luvs2eat
Posted

Welcome!

The other really awesome part of this group is that you can ask ANY question and there are plenty of really knowledgable peeps here who can answer it!

ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. Glad we were able to be of some help to you. Please feel free to ask any questions you need to ask.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Hello..and welcome!

The people that have "walked a mile in your shoes" understand what it's like to feel terrible and not get answers as to why.

The knowledge here is outstanding, and the support is wonderful. Most people can't truly understand how you feel as you go through the illness and how to deal with it? The people here "get it".

Feel free to ask any questions you may have.

eatmeat4good Enthusiast
eatmeat4good
Posted

Thank you for writing that post. I've felt what you wrote at least a thousand times. When I found this place I had been sitting on the couch or sleeping for 5 long sick years...and was drugged out on "Fibromyalgia" meds and pain killers for my My Grain headaches. It was a nightmare...from which I awoke about a year ago when I found this place and other stories like mine. I was so relieved that there were other people like me too. In one year, my muscles came back, my mind came back, and my health came back. Yours will too. Welcome to the lifestyle and the rest of your life! It's been just wonderful to watch myself age backwards! I hope it happens to you too!

mushroom Proficient
mushroom
Posted

As you have all said, we have all walked a mile or two in your shoes, and I myself lurked on here for at least three months before I summoned the courage to make a peep :rolleyes: Welcome to the board, and I hope you can also share your experiences with others who are lost. :)

researchmomma Contributor
researchmomma
Posted

Welcome to the Board. Mostly, welcome to gaining your health back.

I also lurked for about a month. When I posted my daughter's symptoms and how many different drugs the "ologists" wanted to put her on, the posters above and a few more jumped in and rescued my sanity (more than once I might add).

I am also grateful. Sometimes I read a post by someone who is as lost and scared as I was and it brings tears to my eyes.

My doctors didn't diagnose my daughter, the peeps on this board did.

I am glad you shared your thoughts!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RuskitD Rookie
RuskitD
Posted
  • Author

Thank you again and for the warm welcome!!!!

I had the best afternoon of a couple years yesterday! For a few hours I was energetic and clear headed, and giddy because of that feeling! I do owe it to every poster here! Those who asked questions and those who helped them find the answers! Which also became my answers!

I am far from 100%... Whoa, wait~ who knows what my 100% might be?!?!?! This morning I had to return to bed and sleep 6 extra hours. Without what I read here, that would have made me depressed, that I again slept half the day. In reading, I know I will have ups and downs as my body detoxs and heals at the same time, and resting is just a process to me being well!

I swore to my husband as I lay incopacitated and barely coherent, that if I ever got better I was going to enjoy life to the fullest, and no longer live an existance!

I am able to steal full moments already!

again and again...

thank you and blessings to you!

nmull #newly diagnosed Newbie
nmull #newly diagnosed
Posted

I too want to say Thank you! Even for your last post about sleeping. I Have been gluten-free two Weeks now and I feel like im Going thru withdrawals. I Have beat myself up for sleeping so much this week but knowing others went and are Going thru the same thing lets me know im not alone

Bubba's Mom Enthusiast
Bubba's Mom
Posted

If you need a nap..take one. Your body does more healing when at rest.

There will be ups and downs..so don't get discouraged.

Your good days should outnumber your bad ones as time goes on. :D

RuskitD Rookie
RuskitD
Posted
  • Author

I am glad my words were of some comfort to someone!

I have always been a people pleaser, or at the least, always there for others. (I was raised by a narcissistic mother, and trained from the start to please others to be able to get along with them)

Even when I had no strength or energy. I spent what I had on taking care of others, leaving nothing for myself.

I have begun to look at my 'crash' before finding my dx as a blessing. For the first time in my life, I am taking care of myself first, with no apologies for my behavior! If I need a nap, I will take it with a smile on my face, knowing I taking care of me and making myself better! Yes! Our bodies heal during sleep, and if mine begs for some healing, I will give it!

I am two weeks into a full gluten free diet. It would be close to a month, but I let my body heal some, and tested myself with a slice of bread. Setback!

I am not a sweet eater, but late in week one, I craved something sweet so bad I could have hurt someone for a gooey cookie! Having read here that this could be normal, helped me get through the craving. I kept telling myself it was A GOOD THING! It meant I was going to get better.

I will add, I also eliminated decaf coffee, as I read even decaf can upset the colon.

As well as all grains. I may someday try corn again, but I am not certain I will bother. Right now I just want to be well, and I just don't know if want to risk a setback.

Though I already ate very little sugar, I also went 100% sugar free (knowing the long term violent colon distress caused an upset in the balance of things in there, and fearing another issue might happen or be going on!)

I was actually able to go out and shop this weekend and not feel like I couldn't get through the little store.

Wow!!!!

AND put on my fav jeans! No bloating for a week now! YAY!!

Hang in there newbies! Its all uphill from here!

  • 1 month later...
JustNana Apprentice
JustNana
Posted

RustikD

Feels nice to take care of yourself doesn't it? How long have you been a celiac?

mushroom-I'm glad you aren't lurking anymore. I have enjoyed several of your posts! :-)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,159
    • Most Online (within 30 mins)
      7,748
    Werae71
    Newest Member
    Werae71
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.