Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Circulation


swittenauer

Recommended Posts

swittenauer Enthusiast

This weekend, my husband & I went to the Nascar race in Bristol. This was our first adventure after being diagnosed with Celiac. He seems to do fine with finding foods that he can eat but for some reason he had trouble with walking & swelling in his lower legs & hands. His calves were so swollen that it looked like they were going to bust. He ached all over & the walking was so hard on him. We were wondering if this could be related to Celiac?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Is it fluid retention causing the swelling? Last week I was eating alot of different foods...previously I'd only been eating meats and veggies. I have fluid retention anyway but adding all the new foods really made my legs swell and it was hurting to stand...thats never happened before. Not sure if it was just too much too soon or maybe too much sodium. I was eating some microwave dinners...they are high in sodium. I'm eating more simple again this week and the swelling in my legs is gone.....for now.

ravenwoodglass Mentor

It could be but usually the swelling doesn't go into the calfs, in most anyway. I would call the doctor tommorrow morning. Were his calves red or hot to the touch, has his discomfort been relieved at all by now? If his legs are hot or red and still real painful it might be prudent to call his doctor tonight for advice. If things have subsided a bit one of the things that helped me the most was I used to lay upside down on the bed with my legs straight up against the wall for a half hour or so each night about 2 hours before bed. If it is not painful for him you could gently massage down from the feet to help the fluid go back down. Might not be helpful but shouldn't hurt. I hope he feels better soon.

swittenauer Enthusiast

It could be the sodium. I'm not sure. He ate a massive amount of Lays Stacks this weekend. They seem to be a bit better but when he sits for long periods lately, his hands & feet swell. They weren't hot but just felt like they were going to burst they were so tight. I just thought that circulation problems could be related to Celiac.

Guest gfinnebraska

When I go for walks my hands swell. It usually goes away pretty quick after being home. Strange, huh?? :blink: I've never thought about it being celiac disease related, but it does happen all the time. Fun, fun...

ravenwoodglass Mentor
It could be the sodium.  I'm not sure.  He ate a massive amount of Lays Stacks this weekend. 

<{POST_SNAPBACK}>

Please be aware that while Lay's lists many of their foods as gluten-free there are real issues with crosscontamination. If he is newly diagnosed especially he needs to watch out for this. I have come to realize that I am playing with fire if I consume any of their products, sometimes they are fine other times I react big time. I know this isn't great news but I have found it better to stick with snack products that specify they are gluten-free. Good luck and hope he feels better soon.

jenvan Collaborator

since he was eating the Lays Stacks specifically though...he should be okay. ...since they are made on a dedicated gluten-free line. but as mentioned, not all of their products are. i get similar hand swelling as Kimberly said. i when walking outside b/c of a combination of the heat and my hands swinging low at my sides, below heart level. i will try and pump them up, keep them elevated more when walking to help with this. this page may give you more ideas on the swelling. Open Original Shared Link Also ck out this page on edema--perhaps it is merely from doing a lot of walking, or edema from another cause: Open Original Shared Link

Sorry i can't be more help....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
Please be aware that while Lay's lists many of their foods as gluten-free there are real issues with crosscontamination. If he is newly diagnosed especially he needs to watch out for this. I have come to realize that I am playing with fire if I consume any of their products, sometimes they are fine other times I react big time. I know this isn't great news but I have found it better to stick with snack products that specify they are gluten-free. Good luck and hope he feels better soon.

<{POST_SNAPBACK}>

I agree with this last post. Being only recently diagnosed I think it might be better for your husbands recovery to eat more simple foods. I could be wrong but I thouht I'd read in previous posts that he is still eating out and at fast food chains daily. His risk for getting contaminated is pretty high. I'm finding I feel better if I don't go crazy trying to eat all kinds of different foods...even the ones that are labeled gluten-free cause me trouble right now. I think some healing has to take place first so I'll just stick to more veggies, fruit and meat for now. The more processed stuff I eat the more fluid I retain and its very uncomfortable...especially since I tend to accumulate it in my face/neck mainly. If I sit for long periods I start to swell more but I don't get that "ready to pop" look anymore cuz I'm not eating all that processed stuff with so much sodium.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,500
    • Most Online (within 30 mins)
      7,748

    HDM005
    Newest Member
    HDM005
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.