Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac In Children


MumOf2

Recommended Posts

MumOf2 Newbie

Hi,

I am under the suspicion my daughter might have celiac (or some other type of gut issue) I have a pediatrician appointment in 5 weeks time, but thought that hoping on here might help me a little in the mean time.

My almost 4 year old daughter has suffered from gut issues with an intollerance to cows milk noticed at 12months after I finished breastfeeding. The symptoms i noticed were irritability and consipation. once I put her onto goats milk, the irritability and sever constipation improved. Also for the first 12months she suffered a lot of colds (Stuffy, runny nose)while I breastfed her (I drank a lot of milk at the time).

By her growth charts, she was on the 50th percentile from birth until approx 6 months (when solids were starting to be introduced) and from then, she has slowly from 6 months of age to when she was around 2 - 3 years, dropped below the 3rd percentile for both height and weight. at 2 years she weighted 10 kilograms (approx 22 pounds)and 80cm (i think this is about 34 inches?) at 3 she weight around 11 kg (24pounds) and 89cm (35 inches?)

SHe gets a lot of headaches and still sufferes from constipation occassionally. SOmetimes her stools do float in the toilet and they look hard. She has had the blood tests last year for Celiac and came back fine so i had left the situation until the last few months she has been vomitting out of the blue, and no one else is sick. OFten complains of a headache before the vommitting. She still has a bloated looking stomach, and I thougth that by around this age, that might have gone down? (thinking it was a baby thing?)

There was also a period of time she was waking up in the night with sore legs/knees the were making her cry.

I had been told by the doctor if she has gone 2 days without a bowel movement, to give her some orange juice (this does help) I have been very strict with no cows milk in her diet since a large amount of icecream gave her diarreah.

Any help with this situation would be appreciated. NOt sure if i am on the wrong track of thought here, but just looking at some alternatives until the pediatrician appointment .

Thanks,

MumOf2


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

To get to the bottom of things, you have to keep the diet "normal". Do not remove gluten until testing is complete.

What you can do until the appointment is keep a food journal. Maybe the vomitting is not that sporatic, you just haven't found the delayed food reaction? You have to realize some reactions are 12 days long. Keep track of all ingredients, food amounts may be helpful, take note of aversion foods, mood check/symptoms, BMs and consistancy report, air allergen count record would be thorough, and brief description of outings and activities.

researchmomma Contributor

Hi,

I am under the suspicion my daughter might have celiac (or some other type of gut issue) I have a pediatrician appointment in 5 weeks time, but thought that hoping on here might help me a little in the mean time.

My almost 4 year old daughter has suffered from gut issues with an intollerance to cows milk noticed at 12months after I finished breastfeeding. The symptoms i noticed were irritability and consipation. once I put her onto goats milk, the irritability and sever constipation improved. Also for the first 12months she suffered a lot of colds (Stuffy, runny nose)while I breastfed her (I drank a lot of milk at the time).

By her growth charts, she was on the 50th percentile from birth until approx 6 months (when solids were starting to be introduced) and from then, she has slowly from 6 months of age to when she was around 2 - 3 years, dropped below the 3rd percentile for both height and weight. at 2 years she weighted 10 kilograms (approx 22 pounds)and 80cm (i think this is about 34 inches?) at 3 she weight around 11 kg (24pounds) and 89cm (35 inches?)

SHe gets a lot of headaches and still sufferes from constipation occassionally. SOmetimes her stools do float in the toilet and they look hard. She has had the blood tests last year for Celiac and came back fine so i had left the situation until the last few months she has been vomitting out of the blue, and no one else is sick. OFten complains of a headache before the vommitting. She still has a bloated looking stomach, and I thougth that by around this age, that might have gone down? (thinking it was a baby thing?)

There was also a period of time she was waking up in the night with sore legs/knees the were making her cry.

I had been told by the doctor if she has gone 2 days without a bowel movement, to give her some orange juice (this does help) I have been very strict with no cows milk in her diet since a large amount of icecream gave her diarreah.

Any help with this situation would be appreciated. NOt sure if i am on the wrong track of thought here, but just looking at some alternatives until the pediatrician appointment .

Thanks,

MumOf2

Hi MumOf2, hang in there. Just know that many times the blood tests come out negative in children. My neighbor's 18 month was negative but his biopsy was very positive. As the other poster stated, keep her on gluten diet.

Funny, I could have written your post regarding the breastfeeding to milk. It caused constipation in my daughter and horrible moods. She had colds and even pneumonia a few times before 2. She is constipation free now after 2 months gluten-free.

You said you were seeing a pediatrician in 5 weeks. Is this person a GI? Really push for a endoscopy and biopsy regardless of the blood work.

Welcome to the Boards. It is a great resource.

MumOf2 Newbie

To get to the bottom of things, you have to keep the diet "normal". Do not remove gluten until testing is complete.

What you can do until the appointment is keep a food journal. Maybe the vomitting is not that sporatic, you just haven't found the delayed food reaction? You have to realize some reactions are 12 days long. Keep track of all ingredients, food amounts may be helpful, take note of aversion foods, mood check/symptoms, BMs and consistancy report, air allergen count record would be thorough, and brief description of outings and activities.

THanks for the advice, I will try and keep a food journal from now until the appointment! I didn't think about his before.

MumOf2 Newbie

Hi MumOf2, hang in there. Just know that many times the blood tests come out negative in children. My neighbor's 18 month was negative but his biopsy was very positive. As the other poster stated, keep her on gluten diet.

Funny, I could have written your post regarding the breastfeeding to milk. It caused constipation in my daughter and horrible moods. She had colds and even pneumonia a few times before 2. She is constipation free now after 2 months gluten-free.

You said you were seeing a pediatrician in 5 weeks. Is this person a GI? Really push for a endoscopy and biopsy regardless of the blood work.

Welcome to the Boards. It is a great resource.

Thanks for this, the pediatrician is one that comes highly recommended and is very hard to get into. I will look at the journal as said befoer and see how i go! Thanks

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,030
    • Most Online (within 30 mins)
      7,748

    Virgini Brewsaugh
    Newest Member
    Virgini Brewsaugh
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.