Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Positive For Gluten Sensitivity Why Do Blood Test For Celiac?

TJSpin

Recommended Posts

TJSpin Rookie
TJSpin
Posted

New here as my 6 year old just got her positive gluten sensitivity test back a few days ago. My quick question (that probably gets asked a lot her but I can't seem to find it) is, why do the blood test for celiac if the recommendation for GS is 100% gluten free anyway? I think I am going to do the blood test but I am not sure why I feel I need it done. Any thoughts? Am I not thinking of something obvious?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

What test did she have done?

ravenwoodglass Mentor
ravenwoodglass
Posted

One reason to get it done it that children and young adults with celiac need special accomodations at school and college. Do not have the child go gluten free until after all testing is done as that will for sure cause a false negative.

TJSpin Rookie
TJSpin
Posted
  • Author

What test did she have done?

She had the gluten sensitivity fecal test from Enterolab. I'm now thinking about doing the Anti-Tissue Transglutaminase Antibody fecal test for her. they already have her sample so it would be fairly easy. Would that be testing for the same antibodies as a blood test for celiac?

Jsny1010 Rookie
Jsny1010
Posted

tTG IgG/IgA, Endomysial ABS IgA, Gladlin IgG/IgA.. all blood tests or entero does the fecal, if they come back positive most doctors want a biopsy to confirm.. some dont, but either way its the same diet knowing early is pretty great does your 6 year old have symptoms of celiac?

ravenwoodglass Mentor
ravenwoodglass
Posted

She had the gluten sensitivity fecal test from Enterolab. I'm now thinking about doing the Anti-Tissue Transglutaminase Antibody fecal test for her. they already have her sample so it would be fairly easy. Would that be testing for the same antibodies as a blood test for celiac?

Will your Ped diagnose with the Enterolab testing or give you a note for school? If not do get her blood work done before you take her gluten free as she will need accomodations at school.

researchmomma Contributor
researchmomma
Posted

My pediatric GI discounted the enterolab testing. Getting a diagnosis can be helpful in little ones. It can also help them stay on the diet later when you aren't there to "police" them as teenagers.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TJSpin Rookie
TJSpin
Posted
  • Author

Will your Ped diagnose with the Enterolab testing or give you a note for school? If not do get her blood work done before you take her gluten free as she will need accomodations at school.

I haven't asked her doc yet. She's been mostly gluten free for about 3 weeks now. I am so confused about what test to do next to make an accurate diagnosis. I REALLY do not want her to go through a biopsy at 6. I'm having Enterlab do the transglutaminase testing in hopes of getting some more answers. I guess what I am wonder is whether the IgA anti-glidan is a pretty good bet for celiac disease or is is mostly just a test for GS? Either way I will be keeping her on a gluten-free diet, I would just like to know. This article on this site says "That means that, if a patient is IgA positive, there is a 97% probability that they have celiac disease"...anyone have any thoughts on this?

mushroom Proficient
mushroom
Posted

I haven't asked her doc yet. She's been mostly gluten free for about 3 weeks now. I am so confused about what test to do next to make an accurate diagnosis. I REALLY do not want her to go through a biopsy at 6. I'm having Enterlab do the transglutaminase testing in hopes of getting some more answers. I guess what I am wonder is whether the IgA anti-glidan is a pretty good bet for celiac disease or is is mostly just a test for GS? Either way I will be keeping her on a gluten-free diet, I would just like to know. This article on this site says "That means that, if a patient is IgA positive, there is a 97% probability that they have celiac disease"...anyone have any thoughts on this?

That article refers to the results of serological (blood) testing. Most physicians do not recognize stool testing done by Enterolab. If she is already gluten free you have little chance of getting an accurate blood test, unfortunately. Not all doctors require a biopsy to diagnose - for some (and even for Dr. Fasano, the celiac "god", now) symptoms, positive blood test, positive gene test, and relief of symptoms by gluten free diet is enough for a confirmed diagnosis.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.