Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It True Anyone Going Off Gluten Will Get Sick If They Try To Eat It Again?


Omma

Recommended Posts

Omma Rookie

I've been gluten-free for 9 months now and I'm getting more and more sensitive.(And feeling better).My husband just told me today he has no intention of going gluten free with me, even though he has to be SO careful, because he doesn't want to "mess up his system". He says a friends gastrointologist (or whatever the intestinal dr.s are called)told him EVERYONE who goes gluten-free will have problems going back on!

Has anyone heard of this? Is there a chance that just simply going off of it I'm now extremely sensitive? I find this very hard to believe, but since I don't have my own dr. to ask, I'll ask it here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

If you do not have an intolerance to gluten, you can stop and start eating it at will with no symptomatology. If you develop symptoms when you resume eating gluten, it means that gluten is a problem for you on some level and you should probably avoid it. Why does your husband have to be careful about "messing up his system"? Just because of what that ignorant doctor said? If you are gluten sensitive, you WILL have problems when you resume eating gluten, probably worse than they were before, because your body was so happy to get rid of the gluten it will be upset when it returns :rolleyes: Again, a person who is not gluten sensitive/celiac can stop and start gluten at will. :)

revenant Enthusiast

Good answer by mushroom but I want to also add that there is a type of celiac disease or gluten intolerance known as "silent" celiac, or gluten intolerance, this is where it does damage to your intestines/physical body, increases cancer risk, or other problems depending on the person, but the person does not feel a difference.

BeFree Contributor

I don't know where your husband's friend got that information, but it just plain doesn't make sense to say that "everyone" would react in the exact same way to eating or not eating any certain food. Everyone's body is different.

kareng Grand Master

Think if it like is. You don't eat watermelon all year round. You just eat it in the summer, when it's good. You haven't eaten it for 7 months and now you do, you're fine. Unless you have a problem or an allergy to watermelon or you eat too much at once, it doesn't matter that you haven't eaten it in months.

There are lots of foods people only eat once or twice a year. Maybe lobster on your anniversary. Pumpkin pie at Thanskgiving. See? If we apply that doctor's reasoning to all food, it dorsn't make sense.

Now, if hub hasn't eaten gluten in a month and he suddenly has 6 pieces of whole wheat bread in a day, he might have too much fiber.

Sounds like hub just doesn't want to be completely gluten-free at home and he's trying to find a reason that doesn't make him look selfish.

Omma Rookie

Thanks for all the responses. I think maybe you're right about him just not wanting to go gluten-free and now he's got a good "reason". He's a firm believer that the kind of food you eat (junk versus healthy) doesn't really make that much difference. (He doesn't eat very good and is very healthy...so far)Good health is more a state of mind. Since I'm still experiencing some health issues he's not convinced gluten has been the culprit even though I suspect I've had gluten issues since age 11 and I'm now 56. That's a lot of years of damage done and a lot of healing that needs to take place.

So, I guess we'll just continue to do what we do (separate everything)and I'll continue to get better! :)

Darn210 Enthusiast

Just wanted to add that I have done a gluten free trial diet. I have had joint issues. My daughter was diagnosed about 5 years ago. I was screened way back then but my tests came back negative. I know some people have false negatives. I know some people are gluten intolerant so will always(unless they come up with some other test) come back negative but symptomatic. So I tried gluten free for six months to see if it helped with my joints. I had no problems going off of gluten and I had no problems going back on gluten . . . and I saw no difference in my joint issues.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

My hub has his bread, crackers, etc. But there's no reason to cook 2 meals. He eats my gluten-free pasta. If I make cornbread, I don't make 2, I just make the gluten-free one. I do sometimes get the rolls in a can for them to eat with soup. Many meals are just gluten-free naturally. BBQ chicken, potatoes & green beans don't have gluten. Chili doesn't need flour in it. If you need to thicken it, corn starch or corn torillas work better. Tacos don't have gluten (just watch the taco or chili seasonings sometimes have four as a filler to make the packet look fuller,)

He can eat at work whatever he wants if he is going out for lunch or pick up a muffin on the way.

love2travel Mentor

Good answer by mushroom but I want to also add that there is a type of celiac disease or gluten intolerance known as "silent" celiac, or gluten intolerance, this is where it does damage to your intestines/physical body, increases cancer risk, or other problems depending on the person, but the person does not feel a difference.

Yep - that's me! After my bloodwork I was told to go off gluten which I did for four months. Then I had to go back on for the biopsies which I wanted (as I was in denial and did not believe the bloodwork). When I went back on gluten for four months absolutely nothing happened. I did not get sick or anything. At that point I was so certain I did not have celiac but the biopsies told me otherwise. So, the gluten-free diet was difficult for me at first because I had no real motivation to do it. However, I have been super strict for about 11 months now.

Jestgar Rising Star

).My husband just told me today he has no intention of going gluten free with me, even though he has to be SO careful, because he doesn't want to "mess up his system". He says a friends gastrointologist (or whatever the intestinal dr.s are called)told him EVERYONE who goes gluten-free will have problems going back on!

Has anyone heard of this? Is there a chance that just simply going off of it I'm now extremely sensitive? I find this very hard to believe, but since I don't have my own dr. to ask, I'll ask it here.

My bro and his wife did a hard core elimination diet to try to determine if some food was causing his headaches. They went down to brown rice and chicken and added foods back slowly, monitoring all reactions. Neither of them had any problems removing gluten, or adding it back.

My mom did a gluten-free trial for her heartburn - again, no difference removing it, or adding it back.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,219
    • Most Online (within 30 mins)
      7,748

    Cmat
    Newest Member
    Cmat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.