Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Problems In Prague? Why?


GFNewbie2011

Recommended Posts

GFNewbie2011 Rookie

Hello,

I am very new to the gluten free thing. I have been having symptoms for about two years, but just in the last few months narrowed it down to a potential gluten problem. I tested negative for Celiacs, but going off gluten has diminished my symptoms. However, at times I still wonder if gluten is actually the problem. One thing that occurred to me the other day that really has me confused is my trip to Prague this past summer. Before and afterwards I had a lot of issues, but it wasn't until about a month after I got back that I got tested for Celiac.

So, that said, while I was in Prague I was not avoiding gluten at all. And their diet consists of breads, heavy gravies, pastries, etc. Also, since I was there for a summer study abroad I cooked for myself as well, and often made cheap pastas. So pretty much a celiac's nightmare. However, I pretty much had no symptoms at all. I believe I had one day where I had very mild symptoms, but the rest of the time I was completely fine!

How can this be? Do they use different flours? Could it be a gluten thing related to stress? The symptoms really started flaring up when I was taking finals/finishing up undergraduate school and when I went to graduate school (which is pretty high stress)and have, at times, seemed worse when really stressed.

Or could it possibly be symptoms of something other than gluten all together?

Unfortunately my normal doctor seems to have hardly any knowledge about celiac/gluten intolerance, and my GI doctor is somewhat hard to get a hold of, not to mention I am about an 11 hours drive away from him while I am at school.

Any ideas or suggestions would be so greatly appreciated. I am utterly confused and frustrated.

Thank you so much!

Anne


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

That's really interesting. A couple things come to mind. American food is pretty "dirty". Most non-organic wheat in the US is GMO, there is a fair amount of pesticide residue in our food, and it's mostly laced with preservatives and food chemicals. We have people on the board who have mentioned that they can tolerate organic corn but GMO corn makes them sick. Some people also react to whole wheat worse than white flour - if you're eating whole wheat in the states and only white four in Prague that would be another difference. Whole wheat has more of the wheat lectin, called wheat germ agglutinin, to which some people react.

Often people have to eliminate a lot of processed foods when they go gluten-free. If you went from eating processed foods to cooking from scratch when you tried the diet, you could be reacting to preservatives, food colors, hidden MSG (there is tons of it in American food), or artificial flavors.

If I were you I would try making some bread or pasta from scratch using organic white flour. I'd choose a super-simple bread recipe with flour, water, yeast, and salt so there are no preservatives or other ingredients to confuse matters. Organic is supposed to be non-GMO and will not have pesticides. Seeds do hop from farm to farm so you might want to see if you can find flour that is non-GMO verified by the Open Original Shared Link.

And yes, all food intolerances can flare with stress. Thing is, if you were gluten intolerant I can't imagine your being perfectly fine eating tons of wheat in Prague. It seems like you would still have some issues.

GFNewbie2011 Rookie

Thank you so much for your thoughts. I am looking into other possibilities that you suggested

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    2. - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    3. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    4. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,842
    • Most Online (within 30 mins)
      7,748

    Julia Duffee
    Newest Member
    Julia Duffee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.