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Gluten In Medications?

kaygato

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kaygato Explorer
kaygato
Posted

Is this a problem? My parents think I'm overreacting and its "such a small amount". Also what do you do if you get generic and the manufacturer changes often when you go to refill it? Thanks for the help! :)

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mushroom Proficient
mushroom
Posted

Yes, it is a major problem because the FDA does not yet require it to be labelled, and that small amount CAN hurt you. It is best if you can enlist the help of your pharmacist. Get your scrips filled at the same pharmacy, have your file marked as gluten free and if you get the right one, they will check for you that your new generic is gluten free. Sometimes you have to pay for brand name to get a non-gluten drug :( Otherwise, there is a list of gluten free drugs (glutenfreedrugs.com) which is generally pretty up to date, or you have to call or email the manufacturer if it's not listed there. Sometimes the manufacturer can't tell you because they buy ingredients from other suppliers who do not specify whether or not there is gluten in what they supply :( :(

I'm sorry, but your parents are wrong; you are right to be concerned. Most of my glutenings have come from medications. :rolleyes:

FernW Rookie
FernW
Posted

I have been glutened by an brand named medication named Xyzal. I could not believe it. I missed the whole month of November 2009, which was the month my Aunt died. I was too sick to go see her before she died and did not go to the funeral. I barely remember the month. So be careful, be very careful.

kareng Grand Master
kareng
Posted

Before you pick up a prescription,make sure its gluten-free. Many pharmacists won't or aren"t "allowed" to call companies & ask if the med is gluten-free. I have had pharmacists tell me it doesn't matter. I find out what they have filled the perscription with and the manufacturer. Then call your self & find out.

If you pick it up & then call, you can't return it. Your insurance won't pay for you to get a second set of the same meds. IF its a narcotic/pain killer, you may be entered in a "drug seeker" data base for trying to fill the script twice.

However, from what I have been seeing, it appears that gluten isn't used much in medications. You may get a CYA statement that there are no gluten ingredients but they won't say gluten-free because they don't test for gluten.

GFinDC Veteran
GFinDC
Posted

The NFCA is conducting a survey on gluten in medicines but it ends tomorrow.

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    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

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