Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Boils Anyone?

scottyg354

Recommended Posts

scottyg354 Enthusiast
scottyg354
Posted

I seem to get these a lot. Mostly on my side, sometimes on my thighs. They are a royal pain in the arse!!! The odd thing is they seem to conincide with stomach issues. I don't know if anyone had boils that are directly related to gluten or not.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

From the way you worded the topic title, my first response was "no thanks, I'm good." :unsure: as it sounded like you were offering them. :)

But I wanted to say that I had many kinds of sores and blisters pop up from gluten/celiac in various places :rolleyes: scalp, face, back, buttocks, etc. and some members have talked about clusters of boils on their thighs and buttocks. AND it was related to HYPOTHYROIDISM.

I wish I could recall the medical term one of them used for those boils--or where the thread is now--(sorry). You could try searching the forum --use the SEARCH FORUM VIA GOOGLE in the upper right?

Recently, when I said to my doctor that I had every single symptom except DH, he said but you had sores and lip/mouth blisters and "All skins conditions, blisters, rashes and itchy skin lesions ARE related to celiac."

GottaSki Mentor
GottaSki
Posted

Good Morning-

My holistic doctor told me that toxins have three ways to leave our bodies -- digestive track, skin and lungs. I've had skin issues when I've digested something I am intolerant of and while my body was in full detox mode.

My son has had lung issues for the past ten years...misdiagnosed with Asthma, reflux, GERD -- didn't clear until his diet changed and his lungs still act up when he eats something that he is intolerant of.

Are you completely gluten-free? If so, perhaps you have developed a food intolerance...with skin problems sometimes it is hard to figure out what the cause is because a boil takes some time to form...not like a tingly rash that comes fairly soon after digesting the problem food. Maybe keep a food journal for a few months to find a pattern of when the boils appear?

Good Luck!

bartfull Rising Star
bartfull
Posted

Here it is, from a thread just a few days ago:

llama3 Apprentice
llama3
Posted

Here it is, from a thread just a few days ago:

Hidradenitis suppurativa affects the armpits and groin region (something to do with the glands there) so if it's on your side it would be something else, but it could very well be related to gluten.

scottyg354 Enthusiast
scottyg354
Posted
  • Author

Hidradenitis suppurativa affects the armpits and groin region (something to do with the glands there) so if it's on your side it would be something else, but it could very well be related to gluten.

I actually get them from the bottom of my armpit to halfway down my torso, I also get them on butt cheeks (the worst ones) and thighs sometimes. They at first hurt, then towards the end get itchy. It's a real pain and not really nice looking either. makes it a b%$@# to take my shirt off at the beach.

llama3 Apprentice
llama3
Posted

I actually get them from the bottom of my armpit to halfway down my torso, I also get them on butt cheeks (the worst ones) and thighs sometimes. They at first hurt, then towards the end get itchy. It's a real pain and not really nice looking either. makes it a b%$@# to take my shirt off at the beach.

The thighs and butt cheeks are definitely places where HS tends to show up. I don't know if you can get HS lesions on your torso because there are no apocrine glands there, but I think I've read that sometimes people get them in odd places ... maybe if you have an advanced case and they are already forming tracts to different places. HS boils are deeper than regular ones and leave a lot of scarring.

You should definitely see a dermatologist - but find a good one, there are a lot of cruddy dermatologists out there who don't have a clue and could really harm you. Ask them if they know what hidradenitis suppurativa is, and if they don't know, go elsewhere.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Here it is, from a thread just a few days ago:

Thanks, Bart--girl! That's the condition!! ;)

I knew I had read it--but could not recall the name.

see, how we tag team so well on here!

IH

scottyg354 Enthusiast
scottyg354
Posted
  • Author

Thanks, Bart--girl! That's the condition!! ;)

I knew I had read it--but could not recall the name.

see, how we tag team so well on here!

IH

All I know is I'm getting another blood test in about a month, and I've been eating gluten with every meal pretty much. And since about two weeks ago, I've been getting them, i'm really constipated, i'm itchy all over my arms and dizzy as hell.

eatmeat4good Enthusiast
eatmeat4good
Posted

Try Walgreens Pain Relieving Ointment for Boils.

It is benzocaine and calms the pain and itching.

I just read about Hydradenitis Suppurativa and suspect I have it too.

Last time I had one was following gluten CC.

It is very sensitive to gluten.

The good news is it can go away when you go gluten free.

I hope your test is soon so you can get relief.

IrishHeart Veteran
IrishHeart
Posted

All I know is I'm getting another blood test in about a month, and I've been eating gluten with every meal pretty much. And since about two weeks ago, I've been getting them, i'm really constipated, i'm itchy all over my arms and dizzy as hell.

Sounds like a direct correlation to gluten then, hon. :(

Those are all symptoms I can relate to.

Plus constipation often accompanies hypothyroidism.

For constipation, try taking probiotics and lots of water to hydrate. More veggies in your diet.

Unfortunately, a gluten challenge brings on the symptoms with a vengeance.

I hope you can make it through the month. :blink:

I wouldn't last a day :ph34r:

llama3 Apprentice
llama3
Posted

I hope you all just have normal boils and not hidradenitis suppurativa, because HS is a progressive disease that can become disabling if not treated properly. Anyone who thinks they might have HS REALLY needs to go to a good dermatologist (don't put it off and let it get worse like I did). And if you do go and are diagnosed with it, consider whether you want to live the rest of your life with the scarring you will have from the flare ups caused by the gluten challenge - scar tissue which may contribute to worse flare ups in later life. At least you may be able to get antibiotics to offset the effects of the gluten challenge.

scottyg354 Enthusiast
scottyg354
Posted
  • Author

Sounds like a direct correlation to gluten then, hon. :(

Those are all symptoms I can relate to.

Plus constipation often accompanies hypothyroidism.

For constipation, try taking probiotics and lots of water to hydrate. More veggies in your diet.

Unfortunately, a gluten challenge brings on the symptoms with a vengeance.

I hope you can make it through the month. :blink:

I wouldn't last a day :ph34r:

I can manage. Doc gave some Anti Depressant's to curb my depression. My symptoms have been oddly manageable lately, I don't know if it is because I am on the AD's and the depression is a lot less. One thing I am really noticing is the dizziness and constipation are rough right now, and the boil outbreaks are sucking, but I'm managing better.

IrishHeart Veteran
IrishHeart
Posted

I can manage. Doc gave some Anti Depressant's to curb my depression. My symptoms have been oddly manageable lately, I don't know if it is because I am on the AD's and the depression is a lot less. One thing I am really noticing is the dizziness and constipation are rough right now, and the boil outbreaks are sucking, but I'm managing better.

aha! well, the ADs may well be causing the dizziness and C. They are a known side effect. Once off gluten, all that may disappear because you won't be depressed and you won't need the drugs.

I would take the advice to see a derma for the boils.

Hang in there.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    3. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    4. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
    5. Scott Adams
      0

      Häagen-Dazs Chocolate Dark Chocolate Mini Bars Recall Due to Undeclared Wheat and Gluten

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,077
    • Most Online (within 30 mins)
      7,748
    Deb baker
    Newest Member
    Deb baker
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.