Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Friends Purposely Glutening Me!

Victoria6102

Recommended Posts

Googles Community Regular
Googles
Posted

You need to get your parents involved. You need to tell them about your fears about them putting gluten in your food. This is not a small issue. This is a BIG issue. The exposure to gluten causes your risk of long term consequences to increase. While the reaction to gluten isn't as fast acting as peanuts (and unless there is an allergy on top of the celiac) will not cause anaphalaxis, it doesn't mean it is any less important. Tell your parents. It is your parent's job to help protect you. I know it can be hard for teenagers to ask for help from their parents, but you need their help. This situation has gotten out of hand. Don't only talk to the youth minister, talk to your parents.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

THANK YOU!! That's exactly what I was thinking. The youth pastor should be talking to the parents of the kids who are causing you trouble. Anyone causing trouble should not have the privilege of taking outings with a Christian-centered group. It's like rewarding bad behavior, especially when it continues after the youth pastor has talked to the offending group of kids.

When you seal your food, make sure your tape doesn't overlap perfectly. Then sign and date the tape over the overlap. If they manage to get the tape off, they won't be able to align the signature back up, and you will know if they messed with it. I am suggesting this because duct tape does actually come off pretty easy if you give it the right yank. And, you can use plastic containers with duct tape if you choose.

Good idea on the signing the tape overlaps! Why did my sneaky mind not think of that! And if you wrap the tape around the container a few times & different directions .I would think it would be hard to get it back on the same without bubbles, gaps, wrinkles, etc.

Roda Rising Star
Roda
Posted

I know that despite teaching your child right from wrong it is ultimately up to them how they act when they are not with you. I hope my children would know better and would act appropriately , but there's no guarantee. If my children even thought of doing something like this to another person they would regret it big time!! As some of the other posters have stated already, what they are doing is dangerous and not to be taken lightly.

Have you ever considered attending another youth group perhaps? It doesn't sound like things have changed much since your posts last year.

I hope you can find something that works for you and also get the attention this matter deserves from the appropriate people.

  • 2 weeks later...
Victoria6102 Contributor
Victoria6102
Posted
  • Author

Ok, I am back from my trip! I made many precautions to make sure I wouldn't get glutened! I found out on this trip that the reason everyone had been talking about glutening my food lately is because my sister put flour in my pasta sauce a year ago, but I just found out now! I was so upset. My sister told me this, and then one of my friends said "I dont think you are really as sick as you think you are Victoria, and neither does anyone else." We proceeded to have a long discussion and finally I said I am not going to argue about this anymore cuz I've already told you the truth so whether or not you believe me is up to you! She later apologized but that doesn't mean she still doesn't think that. Know what I mean? Anyway, noone glutened me on the trip. I came home safe and sound and I hope everything will be ok from now on.

Skylark Collaborator
Skylark
Posted

I'm glad to hear your trip went well.

Your friends, and I use the word loosely, don't understand that even if you don't have an obvious reaction to gluten there is autoimmune damage being done. Remember that true friends are the ones who respect what you say. A real friend will go to great lengths to make sure you have safe food, even if eating gluten once doesn't make you obviously sick every single time it happens.

You also need to let your parents know your sister poisoned you. You may need help making sure it won't happen again.

anabananakins Explorer
anabananakins
Posted

Ok, I am back from my trip! I made many precautions to make sure I wouldn't get glutened! I found out on this trip that the reason everyone had been talking about glutening my food lately is because my sister put flour in my pasta sauce a year ago, but I just found out now! I was so upset. My sister told me this, and then one of my friends said "I dont think you are really as sick as you think you are Victoria, and neither does anyone else." We proceeded to have a long discussion and finally I said I am not going to argue about this anymore cuz I've already told you the truth so whether or not you believe me is up to you! She later apologized but that doesn't mean she still doesn't think that. Know what I mean? Anyway, noone glutened me on the trip. I came home safe and sound and I hope everything will be ok from now on.

I'm late to this thread but I remembered you from last year. I'm glad you had a good trip and didn't get sick.

It sounds like your sister and your friends are irrationally jealous of any perceived extra attention you are getting, though why anyone would be jealous of something with food problems is beyond me. Oh well. It's good you and your sister talked. Hopefully she'll have a good think about what she did, and how it is hurting you. It'll serve her right if in the future she gets diagnosed too, or her children! Not that I'd wish that on your hyptothetical future nieces or nephews, lol.

  • 5 months later...
123glldd Collaborator
123glldd
Posted

I haven't been able to read more than the first page of this topic so far as I have to go out but...while some people are appalled this is a religious group I am not. Nothing against the Bible or Churches..I'm not a christian anymore but ...some of the worst bullying i ever experienced was from kindergarten to grade 9 in a pentecostal school. No pun intended but ...thank GOD I went to a different high school after. Some of us know the theology of the bible better than others. These types of kids don't know the real meaning of "being saved". They are bullies and are not following the example of Jesus Christ. Just my two cents.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,333
    • Most Online (within 30 mins)
      7,748
    Donna Chem
    Newest Member
    Donna Chem
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.