Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Yucky


dani nero

Recommended Posts

dani nero Community Regular

My new years motto was stop whining since I finally found out why I was feeling poorly, but I can't help feeling so yucky with anxiety, headaches, gasses, and busted sinuses every day. When on earth am I going to get well :-( I'm tired of feeling anxious, and oh my god I'm so over the mind-fog. I just want to focus, put my mind into something productive and just get on with my life. On top of all the foods I've eliminated, seems that even more are going out the window until there is nothing but meat and veggies left. It sucks to have to cook yummy sauces, pasta, and potatoes for my husband while I eat a bloody salad :-( I miss cheese, and I miss eggs and creamy lasagnas. BLah


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dani nero Community Regular

Could I still be detoxing from soy and lactose?? When should I decide if more foods are to be eliminated

I don't know what to do. I have a deadline tomorrow and I can't think. My house is so bloody messy and gets dusty faster than I can think. Everything is disgusting

RuskitD Rookie

I feel your pain! I have kept a good spirit throughout the process, but for me its has seemed three steps forward and one back, which is frustrating me.

I personally took the route of eating only a few things that I knew were safe for me... eggs, chicken, non-gassy veggies... then adding in something else, one item at a time. If there was no reaction, I added another. If there was a reaction, I waited at least a week before trying another new item.

And yet, my body is changing, now rejecting things that were ok a month ago! Joke is on me.

But the path to wellness is worth never putting another croissant into my mouth!

I can't help you with when to eliminate more items, since I did the opposite way. But I can send hugs and empathy for your frustration and physical symptoms!

Good luck!

Molly Susan Newbie

Hi there, I noticed you mentioned anxiety - which for me was a major sympton. I went to see a Naturopath this past summer and she put me on a Calcium Magnesium Citrate (powder)supplement. She told me that undiangosed Celiac can lead to Magnesium deficiencies (among other things)if you are deficient in Magnesium you can experience anxiety. When I get get glutened my axiety becomes worse so I increase my Cal Mag supplement. If you are not already on a Cal Mag supplement you may want to consider it.

dani nero Community Regular

But the path to wellness is worth never putting another croissant into my mouth!

I can't help you with when to eliminate more items, since I did the opposite way. But I can send hugs and empathy for your frustration and physical symptoms!

Good luck!

Thanks for the comforting. I woke up feeling just a little foggy, but then the anxiety decided to kick in and I felt devastated. I'm starting from 0 and eliminated everything today. Hubs will have to eat up everything!

Hi there, I noticed you mentioned anxiety - which for me was a major sympton. I went to see a Naturopath this past summer and she put me on a Calcium Magnesium Citrate (powder)supplement. She told me that undiangosed Celiac can lead to Magnesium deficiencies (among other things)if you are deficient in Magnesium you can experience anxiety. When I get get glutened my axiety becomes worse so I increase my Cal Mag supplement. If you are not already on a Cal Mag supplement you may want to consider it.

Thanks for the tip Molly. I'm in the middle of changing clinics so I'm on my own for a while. I'm taking supplements which include everything at the moment. Don't know how effective that is.

Skylark Collaborator

Gosh that sounds so much like me. I'm trying Failsafe diet at the moment, which means I have lentils, rice, and brussels sprouts coming out of my ears. :lol: My Dr. thinks part of the issue may be perimenopausal migraines. Ugh, yuck. I want my brain back, please.

dilettantesteph Collaborator

I agree with the other posters. Find a simple safe diet and then add things one per week. Keep a food/symptom journal so that you can track things back. If you keep to simple unprocessed foods it is easier to figure out. Keep track of brands too whenever you can. You will get back to a variety of foods before too long. It is challenging and requires discipline, but it's worth it to get yourself a safe diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dani nero Community Regular

Yes, I started the diet yesterday, and I've been keeping a journal for three weeks now. I just needed to vent yesterday because everything was piling up and I felt useless. In case anyone might be wondering I managed to keep with my deadline today :-)

I'm on meat and veggies now, and I'm using olive oil and unfiltered apple cider vinegar. Nothing else. I'm not sure if it's necessary to exclude fruits though.

Skylark Collaborator

You can always add fruits back if you start feeling better.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,015
    • Most Online (within 30 mins)
      7,748

    CravingADonut
    Newest Member
    CravingADonut
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.