Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bowel Changes Even On The Gluten Free Diet


NewNicole

Recommended Posts

NewNicole Apprentice

I was diagnosed last August and have been gluten-free since. I have been very good about making sure I haven't eaten anything that has gluten. My symptoms have improved slightly, but not completely and my biggest concern is the recent bowel changes. I have never had diarrhea, not even prior to diagnosis, but now for the last month I have had a problem. I have been eating more rice to try to help this but that's not even helping. Is this celiac or something all together different? I know they will blame it on celiac so I want some input before going back to the dr. Thanks for the help.

Nicole


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



krystynycole Contributor

Have you checked into other food allerigies/interolances? Some people on gluten free can't handle rice...what about corn? many fruits are covered in a substance containing corn for peticides...what about lactos?

NewNicole Apprentice

I haven't taken corn out, but I have eaten it alot within the last 7 months so for the change in bowel habits now seem like it wouldn't make since. And nothing new has been added. In fact I have removed a lot, no milk, eggs, soy.

krystynycole Contributor

As you heal, new symptoms can show that you did not know or feel before because of all the complications of the gluten. Its not uncommon for this to effect people later.

NewNicole Apprentice

Oh no....Ughh. So how would I know if there could be something different going on instead of celiac.

Bubba's Mom Enthusiast

I recommend keeping a log of what you eat, along with noting any symptoms you feel. Many food intolerances have delayed reactions, so you need a way of looking back and connecting certain foods or additives to symptoms.

A lot of us find we develope additional food intolerances which could cause D. However, if it's severe and debilitating, get in to see your Dr.

NewNicole Apprentice

It's not so bad that I can't deal with it...of course as many people with this disease we can tolerate a lot more than the average person. I will keep an eye out for new food intolerance. I didn't realize that this could happen. That's why I came to this board. There's so much to learn to to understand about this disease.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



krystynycole Contributor

A food log with symptoms (no matter what time they appear!) is an excellent idea. I have caffeine and msg intolerances and found out this way. If that doesn't do anything, then you can consider an allergy test from the doctor for other foods.

Also, think about how this is helping you heal. If you are just dealing with it and keep eating things that are bothering you, then the damage from your gluten cannot heal because well, if at all, because there are other problems complicating the healing process.

NewNicole Apprentice

Something I just thought of is that I eat a lot of salads and beans. I probably have too much fiber in my diet. That could be my problem. Because I haven't figured out how to eat on this diet very well I have pretty much eaten salads all day. I figured that was good and couldn't be a problem. But now I'm thinking that is probably not such a good plan. I must admit I miss the days of mindless eating. lol.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.