Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Withdrawl Y Or N


DawnMarie127

Recommended Posts

DawnMarie127 Newbie

I have been Gluten free for a week, and today I have a terrible headache on and off all day.. Is this normal??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciamarie Rookie

Y. :D

That was the short answer. The longer answer is that was my experience, I don't think it's terribly unusual.

deltron80 Rookie

I have been Gluten free for a week, and today I have a terrible headache on and off all day.. Is this normal??

For the first two weeks after I quit I felt like I was on drugs, then the next two weeks I was light-headed. Now I'm just getting fatter lol. I bet the head ache is just some weird symptom.

nmull #newly diagnosed Newbie

I have had Migraines recently and I am in my 3rd month of being gluten free. I also felt drugged and lightheaded in the beginning weeks. I thought my headaches were because I had accidentally Glutened myself but I am pretty sure it was withdrawal symptoms :)

krystynycole Contributor

My withdrawals to gluten were 10x worse than my caffeine addition...both I stopped cold turkey! Yeah they are bad :( but they will get better.

  • 2 weeks later...
Mateto Enthusiast

**well this thread really makes me excited to start going gluten-free** :unsure:

mushroom Proficient

**well this thread really makes me excited to start going gluten-free** :unsure:

You just have to keep swimming to the other side of the river, where there is a nice sandy beach and soft green newly mown grass, and ...... :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JustNana Apprentice

I wonder what causes withdrawal symptoms from gluten.

I guess I am fortunate I had none. The carbs I deleted by going gluten-free I just naturally made up for by eating more rice, corn and even some sweets. ( Mind you, this was not from any logical nutritional decisions but, rather, my tendency to indulge myself because I was feeling "deprived.". LOL

One really nice thing happened rather quickly for me was that I stopped craving bread and sweets. I still love my corn tortillas, potatoes and Asian rice dishes.

Here's a little tale off topic but so typical of me. I have already smacked myself good over this one. After about 3 weeks of gluten-free food I was craving fried rice. I easily found gluten-free soy sauce and after lots of recipe reading I made a delicious version that my husband now asks for once a week. I always start with cold, long grain rice cooked in broth, at least 8 hours old. Two days in the fridge is even better. I use sauted chicken, pork if I have it and shrimp. Onions, a tiny bit of ginger, some sesame oil, soy sauce, peas and it is easy and so satisfying. So we've had this maybe half a dozen times. Visiting family last week they all wanted Chinese take out so I just asked for a side of fried rice. It was filling and I was happy. At 3:00 in the morning I woke up scratching myself raw. DH flare up! I completely forgot that the soy sauce they used was likely full of gluten!

Sheesh!

peter99ff Rookie

Give it about six months, so ya got 5.5 months to go. I read in a couple of places thats how long, about , for it to get out of your system. GL :)

peter99ff Rookie

Sorry to hear about the soy sauce. Look into salt triggering dh also. I use sea salt, no iodine. ;)

And theres a lot of different types of sea salt, go figure :lol: I dont even use surgical scrub on my hands or I break out.

JustNana Apprentice

Peter

I just today started looking at all the evidence for iodine triggering the DH stuff! I am currently cooking and seasoning food with Kosher salt but using "Iodized table salt" sparingly as I dont want to go totally without.

I am going to really pay attention to the DH reactions to try to figure it out.

All of these things are so NEW to me as my Dr is good but not an expert by any any stretch on the whole celiac/DH/Hashimoto's thing. I am alternately grateful and frustrated at all the issues presented on this forum.

Bless all of you. Thank you so much for taking the time to respond. I appreciate it very much.

  • 1 month later...
Raywuwei Explorer

I guess I am fortunate I had none. The carbs I deleted by going gluten-free I just naturally made up for by eating more rice, corn and even some sweets. ( Mind you, this was not from any logical nutritional decisions but, rather, my tendency to indulge myself because I was feeling "deprived.". LOL

Same here! I am on day 5 of being gluten-free and getting a little nervous that I'm not having any withdrawals at all. I should probably note that I was diagnosed on accident after suffering from stress induced ulcer-like indigestion. The testing came back negative for an ulcer, but my doctor tested me for celiac just in case... and I had it! I took Prilosec for 10 days and all of my stomach pain went away... Now I feel fine, and I feel a little bit guilty when I read all of the comments on this forum.

Did you have a lot of pain being diagnosed. And did you find that after being on the gluten-free diet for a long time that you started having more severe symptoms when you were glutened?

sa1937 Community Regular

Same here! I am on day 5 of being gluten-free and getting a little nervous that I'm not having any withdrawals at all. I should probably note that I was diagnosed on accident after suffering from stress induced ulcer-like indigestion. The testing came back negative for an ulcer, but my doctor tested me for celiac just in case... and I had it! I took Prilosec for 10 days and all of my stomach pain went away... Now I feel fine, and I feel a little bit guilty when I read all of the comments on this forum.

Did you have a lot of pain being diagnosed. And did you find that after being on the gluten-free diet for a long time that you started having more severe symptoms when you were glutened?

I was one of the lucky ones who did not experience withdrawal symptoms when I went gluten-free the day of my endoscopy, Some people do; others do not.

I did not have a lot of pain when diagnosed...only the big D, which was bad enough. I do think we become more sensitive after we've been diagnosed and go gluten-free. Sometimes we find other intolerances, which are many times difficult to figure out.

mommida Enthusiast

For some people there is an opiate affect on the brain. :blink:

To ease some of the headache pain. Vitamin supplemented water (smartwater), sublingual vitamin B12, deep breathing as if you were smoking a cigarette, and slowly stretching your neck and shoulders. Use the mantra. Remember what it feels like not to have a headache.

If the headache is still persistant, or you have a fever,, stiff neck get medical attention.

Seriously this really can take away a lot of headache pain. I drove myself to the doctor's office when I had meningitus. (Was promptly wrongly diagnosed with a migraine and sent home.) So like I said any fever with a severe headache, hurts to move your eyes (side to side will send bands of pain), putting your head forward and the pain just explodes, my neck was also swollen to twice the size.

Adults usually do not seek treatment for most viral cases of meningitus. :huh:

  • 3 weeks later...
EPrasn Newbie

**well this thread really makes me excited to start going gluten-free** :unsure:

lol, I can't wait for my bloodtest to confirm this or not for me.

bartfull Rising Star

I LIVED on gluten, and I did have withdrawal symptoms, but they only lasted a few weeks, and during that time OTHER things started feeling better so it was no big deal.

  • 1 month later...
FruitEnthusiast Enthusiast

I have been Gluten free for a week, and today I have a terrible headache on and off all day.. Is this normal??

It's usual to feel worse during withdrawal from anything as the toxins leaving your body cause symptoms. The toxins get stirred up in the process. A detox bath in Epsom salts could help and drinking lots of water, of course. Hope that helps. Hope you feel better :)

  • 2 weeks later...
katt983 Newbie

I'm not sure if it's normal or not. When I first went completely gluten-free, I felt some serious fatigue for a few days - week. I usually really feel it throughout my body when I get some gluten in my diet and feel quite a bit better when following a strict gluten-free diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.