Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Withdrawl Y Or N

DawnMarie127

Recommended Posts

DawnMarie127 Newbie
DawnMarie127
Posted

I have been Gluten free for a week, and today I have a terrible headache on and off all day.. Is this normal??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciamarie Rookie
ciamarie
Posted

Y. :D

That was the short answer. The longer answer is that was my experience, I don't think it's terribly unusual.

deltron80 Rookie
deltron80
Posted

I have been Gluten free for a week, and today I have a terrible headache on and off all day.. Is this normal??

For the first two weeks after I quit I felt like I was on drugs, then the next two weeks I was light-headed. Now I'm just getting fatter lol. I bet the head ache is just some weird symptom.

nmull #newly diagnosed Newbie
nmull #newly diagnosed
Posted

I have had Migraines recently and I am in my 3rd month of being gluten free. I also felt drugged and lightheaded in the beginning weeks. I thought my headaches were because I had accidentally Glutened myself but I am pretty sure it was withdrawal symptoms :)

krystynycole Contributor
krystynycole
Posted

My withdrawals to gluten were 10x worse than my caffeine addition...both I stopped cold turkey! Yeah they are bad :( but they will get better.

  • 2 weeks later...
Mateto Enthusiast
Mateto
Posted

**well this thread really makes me excited to start going gluten-free** :unsure:

mushroom Proficient
mushroom
Posted

**well this thread really makes me excited to start going gluten-free** :unsure:

You just have to keep swimming to the other side of the river, where there is a nice sandy beach and soft green newly mown grass, and ...... :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JustNana Apprentice
JustNana
Posted

I wonder what causes withdrawal symptoms from gluten.

I guess I am fortunate I had none. The carbs I deleted by going gluten-free I just naturally made up for by eating more rice, corn and even some sweets. ( Mind you, this was not from any logical nutritional decisions but, rather, my tendency to indulge myself because I was feeling "deprived.". LOL

One really nice thing happened rather quickly for me was that I stopped craving bread and sweets. I still love my corn tortillas, potatoes and Asian rice dishes.

Here's a little tale off topic but so typical of me. I have already smacked myself good over this one. After about 3 weeks of gluten-free food I was craving fried rice. I easily found gluten-free soy sauce and after lots of recipe reading I made a delicious version that my husband now asks for once a week. I always start with cold, long grain rice cooked in broth, at least 8 hours old. Two days in the fridge is even better. I use sauted chicken, pork if I have it and shrimp. Onions, a tiny bit of ginger, some sesame oil, soy sauce, peas and it is easy and so satisfying. So we've had this maybe half a dozen times. Visiting family last week they all wanted Chinese take out so I just asked for a side of fried rice. It was filling and I was happy. At 3:00 in the morning I woke up scratching myself raw. DH flare up! I completely forgot that the soy sauce they used was likely full of gluten!

Sheesh!

peter99ff Rookie
peter99ff
Posted

Give it about six months, so ya got 5.5 months to go. I read in a couple of places thats how long, about , for it to get out of your system. GL :)

peter99ff Rookie
peter99ff
Posted

Sorry to hear about the soy sauce. Look into salt triggering dh also. I use sea salt, no iodine. ;)

And theres a lot of different types of sea salt, go figure :lol: I dont even use surgical scrub on my hands or I break out.

JustNana Apprentice
JustNana
Posted

Peter

I just today started looking at all the evidence for iodine triggering the DH stuff! I am currently cooking and seasoning food with Kosher salt but using "Iodized table salt" sparingly as I dont want to go totally without.

I am going to really pay attention to the DH reactions to try to figure it out.

All of these things are so NEW to me as my Dr is good but not an expert by any any stretch on the whole celiac/DH/Hashimoto's thing. I am alternately grateful and frustrated at all the issues presented on this forum.

Bless all of you. Thank you so much for taking the time to respond. I appreciate it very much.

  • 1 month later...
Raywuwei Explorer
Raywuwei
Posted

I guess I am fortunate I had none. The carbs I deleted by going gluten-free I just naturally made up for by eating more rice, corn and even some sweets. ( Mind you, this was not from any logical nutritional decisions but, rather, my tendency to indulge myself because I was feeling "deprived.". LOL

Same here! I am on day 5 of being gluten-free and getting a little nervous that I'm not having any withdrawals at all. I should probably note that I was diagnosed on accident after suffering from stress induced ulcer-like indigestion. The testing came back negative for an ulcer, but my doctor tested me for celiac just in case... and I had it! I took Prilosec for 10 days and all of my stomach pain went away... Now I feel fine, and I feel a little bit guilty when I read all of the comments on this forum.

Did you have a lot of pain being diagnosed. And did you find that after being on the gluten-free diet for a long time that you started having more severe symptoms when you were glutened?

sa1937 Community Regular
sa1937
Posted

Same here! I am on day 5 of being gluten-free and getting a little nervous that I'm not having any withdrawals at all. I should probably note that I was diagnosed on accident after suffering from stress induced ulcer-like indigestion. The testing came back negative for an ulcer, but my doctor tested me for celiac just in case... and I had it! I took Prilosec for 10 days and all of my stomach pain went away... Now I feel fine, and I feel a little bit guilty when I read all of the comments on this forum.

Did you have a lot of pain being diagnosed. And did you find that after being on the gluten-free diet for a long time that you started having more severe symptoms when you were glutened?

I was one of the lucky ones who did not experience withdrawal symptoms when I went gluten-free the day of my endoscopy, Some people do; others do not.

I did not have a lot of pain when diagnosed...only the big D, which was bad enough. I do think we become more sensitive after we've been diagnosed and go gluten-free. Sometimes we find other intolerances, which are many times difficult to figure out.

mommida Enthusiast
mommida
Posted

For some people there is an opiate affect on the brain. :blink:

To ease some of the headache pain. Vitamin supplemented water (smartwater), sublingual vitamin B12, deep breathing as if you were smoking a cigarette, and slowly stretching your neck and shoulders. Use the mantra. Remember what it feels like not to have a headache.

If the headache is still persistant, or you have a fever,, stiff neck get medical attention.

Seriously this really can take away a lot of headache pain. I drove myself to the doctor's office when I had meningitus. (Was promptly wrongly diagnosed with a migraine and sent home.) So like I said any fever with a severe headache, hurts to move your eyes (side to side will send bands of pain), putting your head forward and the pain just explodes, my neck was also swollen to twice the size.

Adults usually do not seek treatment for most viral cases of meningitus. :huh:

  • 3 weeks later...
EPrasn Newbie
EPrasn
Posted

**well this thread really makes me excited to start going gluten-free** :unsure:

lol, I can't wait for my bloodtest to confirm this or not for me.

bartfull Rising Star
bartfull
Posted

I LIVED on gluten, and I did have withdrawal symptoms, but they only lasted a few weeks, and during that time OTHER things started feeling better so it was no big deal.

  • 1 month later...
FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

I have been Gluten free for a week, and today I have a terrible headache on and off all day.. Is this normal??

It's usual to feel worse during withdrawal from anything as the toxins leaving your body cause symptoms. The toxins get stirred up in the process. A detox bath in Epsom salts could help and drinking lots of water, of course. Hope that helps. Hope you feel better :)

  • 2 weeks later...
katt983 Newbie
katt983
Posted

I'm not sure if it's normal or not. When I first went completely gluten-free, I felt some serious fatigue for a few days - week. I usually really feel it throughout my body when I get some gluten in my diet and feel quite a bit better when following a strict gluten-free diet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,949
    • Most Online (within 30 mins)
      7,748
    Stephanie94
    Newest Member
    Stephanie94
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.