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Behavior Issue's Getting Worse Gluten Free?

jenn42

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jenn42 Explorer
jenn42
Posted

My DD has been gluten-free for almost 2 weeks now and her moods are all over the board. She's been very irritable. I'm not sure if it's hormonal (she's almost 12) or it's the gluten-free diet. She did the gluten-free diet for 12 days a couple months ago and was an angel, then we had to go back on gluten for the biopsy. Is this normal as she's adjusting to the food change. I'm thinking maybe my kitchen is as clean of gluten as I think it might be. We are still learning new things every day, so possibly some CC is going on? Any suggestions? Thanks.

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pricklypear1971 Community Regular
pricklypear1971
Posted

Withdrawal and hormones. Wow. Glad I'm not at your house.

She may be going through withdrawal this time, or she may be acting like a 12 year-old.

Withdrawal can make you mad mad mad, moody, and emotional. Personally, I went into the bathroom at work and kicked the wall. And bawled.

I suggest a good stiff martini for you.

rosetapper23 Explorer
rosetapper23
Posted

It could be cc...or it could be that she's also intolerant of dairy or soy; however, another possibility is that she is now able to absorb hormones. A 12-year-old will be producing an increased amount, and if she was unable to adequately absorb them previously, the rush of hormones may be unexpected and confusing. This is only one possibility.

mamaupupup Contributor
mamaupupup
Posted

We are right behind you...10 days gluten-free...I'm still cleaning my kitchen! We have 2x celiac disease in twin 5 yr old girls. One is behaving like an angel. The other is a rollercoaster. I was warned by multiple people not to take the girls off gluten cold turkey, but I just couldn't stand having any more evil gluten around!!! I'm told there is a nasty die-off effect!

You are in good company :)

Btw, I never drink a sip of alcohol when my husband is out of town (too afraid I won't be able to drive a kid to the ER 'cause of a glass of wine). Last night I had a glass of wine. It's just plain tough some days!!!

Hang in there!

Cara in Boston Enthusiast
Cara in Boston
Posted

My son and I went gluten free a year ago. He was fine. I had about 2 weeks of feeling MUCH worse (irritable, headache, tired, etc.). Doctor said there is a group of people who will experience withdrawal symptoms when gluten is removed. I guess I was one of them. After that, it got a little better each day. . . . and then I just felt good - every day - which was new for me.

Cara

jenn42 Explorer
jenn42
Posted
  • Author

Thanks everyone. It seems to be getting better. She's such a trooper. And....the glass of wine does help Mommy!

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      Disaccharide deficient, confusing biopsy results, no blood test

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      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
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