Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Importance Of Vitamins

JustNana

Recommended Posts

JustNana Apprentice
JustNana
Posted

I'm sure the topic of vitamin and mineral supplements is covered somewhere but I am just learning how to navigate the threads. Please share or point me to other sections.

I was DX's 7 weeks ago and shortly after learned I had Hashimoto's hypothyroidism. Lads also show some serious vitamin deficiencies. Especially B12, B6, D, folks acid and zinc. My Dr says my symptoms could all be from or worsened by the malabsorption or the low thyroid. I would love to hear from you who are battling or have overcome these issues. Also I started a RX of Flagyl today and know I need Probiotics. I am most concerned about my B12 after reading about it and have had a couple of shots and am taking 2500 sublingual daily. Some say it takes quite a while to reverse the effects of deficiencies.

Thanking you in advance for taking time to share.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JustNana Apprentice
JustNana
Posted
  • Author

Ugh

Sorry for all the typos guys. I am posting on an iPhone with a dubious autocorrect feature and my fingers are clumsy.

And I'm OLD! LOL

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I'm sure the topic of vitamin and mineral supplements is covered somewhere but I am just learning how to navigate the threads. Please share or point me to other sections.

I was DX's 7 weeks ago and shortly after learned I had Hashimoto's hypothyroidism. Lads also show some serious vitamin deficiencies. Especially B12, B6, D, folks acid and zinc. My Dr says my symptoms could all be from or worsened by the malabsorption or the low thyroid. I would love to hear from you who are battling or have overcome these issues. Also I started a RX of Flagyl today and know I need Probiotics. I am most concerned about my B12 after reading about it and have had a couple of shots and am taking 2500 sublingual daily. Some say it takes quite a while to reverse the effects of deficiencies.

Thanking you in advance for taking time to share.

It sounds like you have villi damage with those deficiencies? It will take a while to heal to the point that you can absorb these vitamins/minerals from your diet alone.

Supplements are a good idea. Be sure to read the ingredients to avoid gluten. A good multivitamin, probiotics, D3, fish oil, and a B complex. A calcium with magnesium and zinc would be good too?

Honestly, the supplements I take are keeping me functional. I just don't absorb what I need from my foods, and even with them, my numbers are low in some of them.

lesliev523 Rookie
lesliev523
Posted

I recently found out I was vitamin deficient, and I am currently waiting for my celiac panel to come back. I have had stomach issues for years, but over the last year I was extremely fatigued, joint pain, chronic colds and sinus infections, fevers, and I was emotionally all over the place.

I have been on supplements for about three weeks and am marginally improving. I actually hoping for a positive celiac test because I am anxious to go gluten free. I really think that will help with a lot of my other issues. I tried gluten free a few months ago, loved the way I felt... but then life got in the way and I started to cheat. I kept telling myself that I really didn't HAVE to be gluten free. But the more gluten I ate the worse I have felt.

Anyway... that is my experience so far with vitamin deficiency. :)

pricklypear1971 Community Regular
pricklypear1971
Posted

I'm sure the topic of vitamin and mineral supplements is covered somewhere but I am just learning how to navigate the threads. Please share or point me to other sections.

I was DX's 7 weeks ago and shortly after learned I had Hashimoto's hypothyroidism. Lads also show some serious vitamin deficiencies. Especially B12, B6, D, folks acid and zinc. My Dr says my symptoms could all be from or worsened by the malabsorption or the low thyroid. I would love to hear from you who are battling or have overcome these issues. Also I started a RX of Flagyl today and know I need Probiotics. I am most concerned about my B12 after reading about it and have had a couple of shots and am taking 2500 sublingual daily. Some say it takes quite a while to reverse the effects of deficiencies.

Thanking you in advance for taking time to share.

Yes, it can take a long while to correct the deficiencies.

I'm 9 months gluten-free and last labs showed they are going up but not where they need to be. It takes time.

JustNana Apprentice
JustNana
Posted
  • Author

Thanks all for your input. My Dr has me on a potent B Complex, additional B12 sublingual, D3, Calcium, Magnesium, zinc, folic acid and C. He says I am low in just what he would suspect in someone whose had malabsoption for a long time.

I am grateful he is as knowledgeable as he is. He is a GP working til 9:00 or 10:00 six days a week, much of it pro bono.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Thanks all for your input. My Dr has me on a potent B Complex, additional B12 sublingual, D3, Calcium, Magnesium, zinc, folic acid and C. He says I am low in just what he would suspect in someone whose had malabsoption for a long time.

I am grateful he is as knowledgeable as he is. He is a GP working til 9:00 or 10:00 six days a week, much of it pro bono.

I know it seems like you're already taking a lot of supplements, but I also highly recommend a good fish oil or krill oil. They feed your brain and are such healthy fats.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Silencio Enthusiast
Silencio
Posted

Do you guys have problems with your teeth shifting? I thought it was a problem with low vitamins but I had my vitamin levels checked and I havent heard back from the doc.

JustNana Apprentice
JustNana
Posted
  • Author

Bubba's Mom

It's funny you suggested the fish oil. I have been craving sardines for a while now. My favorite Tiny Tots brand is a little pricey so I will certainly look into the fish oil supplement. I will still splurge on the sardines once a week! Luckily my husband loves them too so the temporary cat food breath isn't so offensive. :-)

Thanks for your suggestion. And for many other great posts of yours I have read.

Metoo Enthusiast
Metoo
Posted

I am struggling with a Vitamin D deficiency. This is going on year 2 of my struggle with it. I was first at only a level of 14, my doctor had me taking 10kIUs a day, I got back up to 55, and then 5,000IUs as my maintenance dose, but my level started dropping and by this winter I was back down to 23. They don't seem as concerned this time, but I am aware now that my fatique is a direct correlation to my vitamin D levels. I am taking 4,000IUs now a day and feeling much better.

i have never been specifically checked for B12, but I have started to wonder if it is low and started supplmenting. I also had my thyroid tested but everything checked out.

birdie22 Enthusiast
birdie22
Posted

I take B12 sublingual, D3, and Magnesium. For those taking cal-mag, my doc strongly advised me to not take them together. There's conflicting info on the web but the conventional wisdom says that the calcium blocks the magnesium absorption. I started with a cal-mag supplement and was still having issues. Once I switched to mag only I saw improvement.

JustNana Apprentice
JustNana
Posted
  • Author

Metoo,

Wow! Your levels have been worse than mine. Mine was 19 six weeks ago. I am taking 5,000 units a day. It's good to know that the symptoms are so strongly correlated to the D levels. Keep me posted. I'd love to hear how you are doing. I am getting B12 shots once a month and taking 2500 sublingual a day. The symptoms of low B12 are many and varied. Chronic deficiency can lead to mental issues, nerve damage, fatigue and weakness, pernicious anemia, etc. One good thing is B12 supplements are not expensive, the sublinguals taste good and you can start taking them without a diagnosis as they are a water soluable non toxic vitamin. I say go for it!

JustNana Apprentice
JustNana
Posted
  • Author

Birdie

Hmmm. I am taking a typical Calcium, Magnesium and Zinc supplement. Your post made me do some research. Thanks so much. :-) I am probably going to start taking them at different times and also taking more magnesium just before bed. May I ask what specific symptoms you were able to treat?

Luddie Newbie
Luddie
Posted

I know it seems like you're already taking a lot of supplements, but I also highly recommend a good fish oil or krill oil. They feed your brain and are such healthy fats.

If you get fish oil, make sure you get the triple strength otherwise you are really getting more omega 6s than you want to. We get enough of that in our regular diets, and we're usually short on the omega 3s. Triple strength is a better balance. Also, flax seed oil used to be considered a good source of omega 3s, but my doctor says current evidence has shown that humans do not metabolize it the same way as the lab rats studied do. So, he recommends either fish oil or algae oil, if your a vegetarian.

Luddie

birdie22 Enthusiast
birdie22
Posted

Birdie

Hmmm. I am taking a typical Calcium, Magnesium and Zinc supplement. Your post made me do some research. Thanks so much. :-) I am probably going to start taking them at different times and also taking more magnesium just before bed. May I ask what specific symptoms you were able to treat?

My doc suggested 400-500mg of chelated magnesium to help with headaches and an ache in my thighs. While not completely resolved, I did see improvement (less frequent episodes) once I ditched the cal-mag and went straight mag. I take 500mg.

aliceintown Newbie
aliceintown
Posted

Aren't vitamin B12, iron and zinc the main deficiencies? Magnesium deficiency is probably an important one to consider too, isn't it?

Glutinator Girl Rookie
Glutinator Girl
Posted

Here is a fabulous site about thyroid managemnet

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,157
    • Most Online (within 30 mins)
      7,748
    Christina Deloyola
    Newest Member
    Christina Deloyola
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.