Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Question

ksmama

Recommended Posts

ksmama Rookie
ksmama
Posted

i started my daughter on a gluten free diet 5 days ago, she was feeling great until today. she started complaining of her stomach and head hurting again....i have been really careful what i give her to eat. i did however make some gluten free bread for the first time last night and today she had her first gluten free macaroni and cheese, i took the cheese packet from a kraft mac and cheese box and used gluten free rice noodles.....that is the only 2 different things i have done today, could it be one of those things that i fed her that did this to her???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


krystynycole Contributor
krystynycole
Posted

First, Welcome! It will get easier as you go on, I promise :)

I used the mac and cheese packet from kraft all the time...a simple indulgence I have :)

Have you checked your pots and pans? Gluten can get stuck everywhere! It can hide in the baking, your pot, and your colander you used. The colander/strainer is a very hard thing to completely clean. Many people buy all new pots, pans, spatulas, etc...

ksmama Rookie
ksmama
Posted
  • Author

First, Welcome! It will get easier as you go on, I promise :)

I used the mac and cheese packet from kraft all the time...a simple indulgence I have :)

Have you checked your pots and pans? Gluten can get stuck everywhere! It can hide in the baking, your pot, and your colander you used. The colander/strainer is a very hard thing to completely clean. Many people buy all new pots, pans, spatulas, etc...

I didn't think about the pot! Maybe that is what it is from, she has also been very gassy since last night....she has always been gassy but got better the first few days now it's back.

kareng Grand Master
kareng
Posted

Did you use the colander to drain the noodles? Was it the same one you used for gluten noodles? Colanders are really hard to get everything out of each hole.

Mizzo Enthusiast
Mizzo
Posted

i started my daughter on a gluten free diet 5 days ago, she was feeling great until today. she started complaining of her stomach and head hurting again....i have been really careful what i give her to eat. i did however make some gluten free bread for the first time last night and today she had her first gluten free macaroni and cheese, i took the cheese packet from a kraft mac and cheese box and used gluten free rice noodles.....that is the only 2 different things i have done today, could it be one of those things that i fed her that did this to her???

First did you get new colanders /strainer as mentioned above this is an item almost impossible to decontaminate fully ?

Although the cheese packet contents are gluten-free, the pasta that it was boxed is in not. Could any pasta crumbs have gotten into your pasta ?

Has she had Gluten free bread prior to you making this loaf ? If not some people have reactions to xantham gum ! which brand was it you made ?

ksmama Rookie
ksmama
Posted
  • Author

First did you get new colanders /strainer as mentioned above this is an item almost impossible to decontaminate fully ?

Although the cheese packet contents are gluten-free, the pasta that it was boxed is in not. Could any pasta crumbs have gotten into your pasta ?

Has she had Gluten free bread prior to you making this loaf ? If not some people have reactions to xantham gum ! which brand was it you made ?

I bought a new colander, and the bread was bobs red mill brand...

pricklypear1971 Community Regular
pricklypear1971
Posted

In the beginning, lots of weird things are going to happen. Don't sweat the single occurrence, look for patterns.

I'd watch milk, assuming that Mac n cheese has milk in it not soy, etc. or, it could just be one of those days.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kelleybean Enthusiast
Kelleybean
Posted

My first thought is the Kraft cheese packet since it was touching the pasta - maybe some cc. Annie's makes a gluten free boxed mac and cheese - I get mine in Target for a lot cheaper than the grocery store. Also Amy's has a frozen gluten-free mac and cheese that we keep in the freezer for emergency dinners.

krystynycole Contributor
krystynycole
Posted

I use the packet from regular mac and cheese all the time time without a problem because I don't care for Amy's noodles. I am also super sensitive and never have any problems just because the outside of the packet touches the noodles.

ksmama Rookie
ksmama
Posted
  • Author

Well she did much better today, she did get a headache but no stomachache and she was not gassy all day. She had gluten free, milk free pancakes for breakfast, salad with ham and carrots for lunch, kettle chips for a snack and rice and beans with raisins for dinner and kinninick(sp?) gluten free cookies for dessert.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.