Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Question

ksmama

Recommended Posts

ksmama Rookie
ksmama
Posted

i started my daughter on a gluten free diet 5 days ago, she was feeling great until today. she started complaining of her stomach and head hurting again....i have been really careful what i give her to eat. i did however make some gluten free bread for the first time last night and today she had her first gluten free macaroni and cheese, i took the cheese packet from a kraft mac and cheese box and used gluten free rice noodles.....that is the only 2 different things i have done today, could it be one of those things that i fed her that did this to her???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


krystynycole Contributor
krystynycole
Posted

First, Welcome! It will get easier as you go on, I promise :)

I used the mac and cheese packet from kraft all the time...a simple indulgence I have :)

Have you checked your pots and pans? Gluten can get stuck everywhere! It can hide in the baking, your pot, and your colander you used. The colander/strainer is a very hard thing to completely clean. Many people buy all new pots, pans, spatulas, etc...

ksmama Rookie
ksmama
Posted
  • Author

First, Welcome! It will get easier as you go on, I promise :)

I used the mac and cheese packet from kraft all the time...a simple indulgence I have :)

Have you checked your pots and pans? Gluten can get stuck everywhere! It can hide in the baking, your pot, and your colander you used. The colander/strainer is a very hard thing to completely clean. Many people buy all new pots, pans, spatulas, etc...

I didn't think about the pot! Maybe that is what it is from, she has also been very gassy since last night....she has always been gassy but got better the first few days now it's back.

kareng Grand Master
kareng
Posted

Did you use the colander to drain the noodles? Was it the same one you used for gluten noodles? Colanders are really hard to get everything out of each hole.

Mizzo Enthusiast
Mizzo
Posted

i started my daughter on a gluten free diet 5 days ago, she was feeling great until today. she started complaining of her stomach and head hurting again....i have been really careful what i give her to eat. i did however make some gluten free bread for the first time last night and today she had her first gluten free macaroni and cheese, i took the cheese packet from a kraft mac and cheese box and used gluten free rice noodles.....that is the only 2 different things i have done today, could it be one of those things that i fed her that did this to her???

First did you get new colanders /strainer as mentioned above this is an item almost impossible to decontaminate fully ?

Although the cheese packet contents are gluten-free, the pasta that it was boxed is in not. Could any pasta crumbs have gotten into your pasta ?

Has she had Gluten free bread prior to you making this loaf ? If not some people have reactions to xantham gum ! which brand was it you made ?

ksmama Rookie
ksmama
Posted
  • Author

First did you get new colanders /strainer as mentioned above this is an item almost impossible to decontaminate fully ?

Although the cheese packet contents are gluten-free, the pasta that it was boxed is in not. Could any pasta crumbs have gotten into your pasta ?

Has she had Gluten free bread prior to you making this loaf ? If not some people have reactions to xantham gum ! which brand was it you made ?

I bought a new colander, and the bread was bobs red mill brand...

pricklypear1971 Community Regular
pricklypear1971
Posted

In the beginning, lots of weird things are going to happen. Don't sweat the single occurrence, look for patterns.

I'd watch milk, assuming that Mac n cheese has milk in it not soy, etc. or, it could just be one of those days.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kelleybean Enthusiast
Kelleybean
Posted

My first thought is the Kraft cheese packet since it was touching the pasta - maybe some cc. Annie's makes a gluten free boxed mac and cheese - I get mine in Target for a lot cheaper than the grocery store. Also Amy's has a frozen gluten-free mac and cheese that we keep in the freezer for emergency dinners.

krystynycole Contributor
krystynycole
Posted

I use the packet from regular mac and cheese all the time time without a problem because I don't care for Amy's noodles. I am also super sensitive and never have any problems just because the outside of the packet touches the noodles.

ksmama Rookie
ksmama
Posted
  • Author

Well she did much better today, she did get a headache but no stomachache and she was not gassy all day. She had gluten free, milk free pancakes for breakfast, salad with ham and carrots for lunch, kettle chips for a snack and rice and beans with raisins for dinner and kinninick(sp?) gluten free cookies for dessert.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748
    bigwave
    Newest Member
    bigwave
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.