Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Overnight Camp For Newly Diagnosed 12 Year Old


Glutenfree4her

Recommended Posts

Glutenfree4her Rookie

New to board and needing help. I have a daughter who was diagnosed in February and now it is time for 6th grade outdoor school. I am very nervous to send her as I don't want her to get sick from potential cross contamination. Any thoughts as to send her or not. She has severe reactions to gluten. Just now getting her to feel better. Thanks so much.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mizzo Enthusiast

New to board and needing help. I have a daughter who was diagnosed in February and now it is time for 6th grade outdoor school. I am very nervous to send her as I don't want her to get sick from potential cross contamination. Any thoughts as to send her or not. She has severe reactions to gluten. Just now getting her to feel better. Thanks so much.

Obviously you would have to pre-make ALL of her foods in advance with strict reheating guidelines with absolutely no sustitutions allowed. If she can follow those guidelines and there is another adult with Celiac understanding and it is not that far away that you can go get her if needed , then and only then would I allow her to go.

IMO I would only let her go if I went with her. She is so new to gluten free and unless she has a really, really good understanding of cross contamination issue's I personally would not feel safe.

good luck

Glutenfree4her Rookie

Thank you for that advice. I don't want to be perinoid but I don't want her to get sick again. Thank you so much.

Skylark Collaborator

It's only an overnight. Don't take her away from a special school event. You can send her with a cooler of food. With her bad reactions I'm sure she will be willing to stay gluten-free.

I wouldn't count on reheating facilities but sandwiches on gluten-free bread, cut veggies, and fruit will fill her up just fine and stay fresh with an ice pack. Contact the teachers and find out if they will be doing any special food and send substitutes for her. For example, if they do s'mores you would send her a bag of marshallows, a chocolate bar, and gluten-free graham crackers so she can participate with no risk of CC. This is a time she needs to feel like she can still join her peers for special occasions with a little planning.

Cara in Boston Enthusiast

If it is just one night, I would do it. If it is a week (or even a few days) I would be too nervous . . . unless I could go along as a chaperone. You could easily pack enough food for a day or two so that she wouldn't have to worry at all about cc. Check out the lunch kits from GoPicnic. I use them as inspiration and assemble my own for me and my son when we travel. I pack a kit for breakfast, lunch and dinner so there are no worries.

Cara

Glutenfree4her Rookie

Thank you for your advice. It is actually 4 days 3 nights. I have a call to the cook and waiting for a return call. She really wants to go but she is getting where she is feeling better. 12 years old and 66 pounds I don't want her sick again. Thanks again your understanding an advice is helpful

Skylark Collaborator

Gosh that's harder. If you are not satisfied with the chef's answer, I wonder if you could drop off food each day? Or provide servings of homemade frozen food? I take frozen soups and stews I make on the weekend for lunch at work all the time.

I had really bad allergies and asthma as a child and I had a lot of trouble with school camping trips. It really meant a lot to me to be able to go though, even if I had to take inhalers and not participate in some of the activities.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carol4 Newbie

I am in the same dilemma. My 10 yr old usually goes to camp but was dx last sept and is VERY sensitive. I will only send her with food I have made. Otherwise I know she will more than likely get sick.

Mizzo Enthusiast

BTW is this the Natures classroom event ? just curious as me and 2 other allergen moms have discussed our extreme fears for this when our girls have to go.

Glutenfree4her Rookie

Not that I am aware of. It is in Oregon. They say they deal with celiac all the time. However, I still am anxious. Not sure what I will do.

Mizzo Enthusiast

If you choose to send her there are 3 golden rules for gluten-free cooking when I cook away from home .

Paper plates

plastic ware

Reynolds wrap and parchment paper

Anything that can be heated in a oven can be baked on parchment or in reynolds wrap

For grilling use reynolds wrap

serve on paper plates with plastic ware.

Of course there are tons of other needs but these rules help alot .

If she can live with baked potatoes or gluten-free french fries it avoids the whole carb side dish concern and frozen veggies might have to be the way to go for a few days. Not the healthiest meal choices but certainly safest. Also insist on her having her own labeled butter or margarine and PB and J .

Pans, sauces, cutting boards and strainers are the biggest worries in these environments so have a seriously long chat with the chef about these things.

good luck

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Nancy N Rosen
    Newest Member
    Nancy N Rosen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.