Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iga Numbers?

gracie25

Recommended Posts

gracie25 Newbie
gracie25
Posted

I am new to this forum, I have an 8 year old dd that was diagnosed in December of 2009 with Celiac. I just had a celiac panel run on my son who will be 3 next week, he had been complaining of leg pain to the point that it was waking him at night and he was refusing to walk at times. I remember that my dd used to wake up in the night with leg pain also.....well I got the test results and the Dr. who drew them is very knowledgable on many areas, he specialized in internal medicine, family practice and allergy, his concensus is that the results were negative, but after getting a copy faxed to me I am inclined to disagree....

Has anyone had just a high IgA result and the other results be negative??

Here are the numbers:

Endomysial IGA - Value: Negative

Gliadin Peptide Screen: Value - 2.3 ref range is: 0.0-19.9 so that is negative

IgA: Value - 121 Flag: H ref range: 20-100

Tissue Transglutaminase IgA: Value - 2.8 ref range is: 0.0-19.9 so also negative

My 9 year olds results when we found out was just on test positive on the Endomysial IGA said: Positive, then we did the biopsy to confirm.

I have a call into the GI to see. But my gut says positive and will probably be in for a biopsy....am I being overcautious because of the past and it taking 6 years to diagnose my dd???? Your thoughts are greatly appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Type1CDE Newbie
Type1CDE
Posted

Total IgA being high probably doesn't mean Celiac....but I am not well versed on the differences between kids/ adults IgA... Mine was only 106 which according to the reference range from the lab was "normal" but most info out there says the average adult is around 200.... So my pcp dis some more labs (my ttg-iga was begative but my deamidated gliadin -IgA wa over 100 so very positive)

While lookinf for my own answers, I found this chart in the reference ranges for kids:

Table. IgA Reference Ranges in Children and Adults

Age mg/dL

Cord blood 1-3

1 mo 2-43

2-5 mo 3-66

6-9 mo 7-66

10-12 mo 12-75

1-3 y 24-121

4-6 y 33-235

7-9 y 41-368

10-11 y 64-246

12-13 y 70-432

14-15 y 57-300

≥16 y 81-463

pricklypear1971 Community Regular
pricklypear1971
Posted

It's hard to get a + blood test in a child - especially a 3 year old.

If there's a + of any type, with the family history, that's a huge red flag. Biopsy if you feel best but I'd bet you've got another gluten problem.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,541
    • Most Online (within 30 mins)
      7,748
    Sally Garber
    Newest Member
    Sally Garber
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.