Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh & Probiotics - Sals Or Iodine

squirmingitch

Recommended Posts

squirmingitch Veteran
squirmingitch
Posted
  • Author

Tart indeed! :P

I added a bit of stevia to it. Otherwise, it is just like sour cream to me. :lol: :lol: Good on taters!

Mango is one of my favorite fruits EVER. I ate so many of them in FLa last month (along with other sals )and I may have overloaded my system. When I get glutened ---or overdo the sals, etc.-- I BURN in my skin. From head to toe--a deep radiating burning sensation no one could explain to me. (until my DX) It's horrible.

You guys get itchy and scabby. I get itchy and oozey little sores on my scalp and this insanely intense burning in my skin --so bad I could not wear clothing at times. It made my life living hell. I had it for nearly 4 years until it subsided. I asked the doc about this and he said it is just like a pre-cursor to the blistering. The derma layers are affected, but I do not erupt. I hate the burning....ARRGH!!

So, I feel for you guys with DH; I really do. :(

BTW

I think you may notice....the sals websites are never the same :rolleyes: in their lists of high-low foods.

YUK. Don't like the sound of that burning skin! Sounds a lot like getting a really, really bad sunburn. Floridian here. Grew up eating mangos off the tree. Love them! I might not be able to resist a spoonful of the mango flavor. I get the itchy blister, which turns to oozy sores on my scalp & then finally, eventually, they get scabby, oozy, itchy, burning. Takes 4 -5 weeks for them to resolve. I agree, yours is precursor if not the real thing!

Yes, I've noticed the diff. in the sals websites. Hard to make a call sometimes.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Daura Damm
Daura Damm

Celiac.com Sponsor (A8-M):
Tierra Farm

  • Replies 53
  • Created
  • Last Reply
squirmingitch Veteran
squirmingitch
Posted
  • Author

Glad you found some yogurt that will work! For what it's worth, Failsafe diet allows vanilla flavor. It also allows natural maple syrup. I bet that would take the edge off plain yogurt. I like plain Fage better than Chobani. Grab it if you ever see it becasue it's really mild and good.

Looks like I'll be eating a lot of vanilla yogurt then. Thanks! I've never cared for maple --- I know -- weird --- but I may just have to learn to like it. You know, I was so excited to find the Chobani that I didn't even look any farther. I will look & see if I can find Fage. Thanks Skylark.

IrishHeart Veteran
IrishHeart
Posted

YUK. Don't like the sound of that burning skin! Sounds a lot like getting a really, really bad sunburn. Floridian here. Grew up eating mangos off the tree. Love them! I might not be able to resist a spoonful of the mango flavor. I get the itchy blister, which turns to oozy sores on my scalp & then finally, eventually, they get scabby, oozy, itchy, burning. Takes 4 -5 weeks for them to resolve. I agree, yours is precursor if not the real thing!

Yes, I've noticed the diff. in the sals websites. Hard to make a call sometimes.

The burning nearly drove me mad. It was exactly like a bad sunburn--that is how I described it to everyone! I felt like I had hot liquid running through my blood and my skin and scalp were bright red and peeling. It was really weird. It has calmed down a LOT.

But, now, if I eat too many sals, histamine-type foods, amines, sulfites, MSG, food additives, I get burny all over again, my eyes swell, I get migraines and I feel like I am a stuffed sausage. If I get CCEd, it is worse :blink: I tried explaining all this to dozens of medical professionals, but they just looked at me like I was nuts.

The only one who believed me was my NEW wonderful GI doc. He said without question, "That is inflammation from the celiac/gluten and it affects your skin as well. It will die down in time."

I cried because, finally....it all made sense.

Lucky you! Florida. I was just there last month. :) Our first vacation in 5 years. It was our "victory vacation"--me rising up and coming back from the dead. :)

squirmingitch Veteran
squirmingitch
Posted
  • Author

The burning nearly drove me mad. It was exactly like a bad sunburn--that is how I described it to everyone! I felt like I had hot liquid running through my blood and my skin and scalp were bright red and peeling. It was really weird. It has calmed down a LOT.

But, now, if I eat too many sals, histamine-type foods, amines, sulfites, MSG, food additives, I get burny all over again, my eyes swell, I get migraines and I feel like I am a stuffed sausage. If I get CCEd, it is worse :blink: I tried explaining all this to dozens of medical professionals, but they just looked at me like I was nuts.

The only one who believed me was my NEW wonderful GI doc. He said without question, "That is inflammation from the celiac/gluten and it affects your skin as well. It will die down in time."

I cried because, finally....it all made sense.

Lucky you! Florida. I was just there last month. :) Our first vacation in 5 years. It was our "victory vacation"--me rising up and coming back from the dead. :)

What an appropriate term "Victory Vacation". Brings tears to my eyes.

IrishHeart Veteran
IrishHeart
Posted

What an appropriate term "Victory Vacation". Brings tears to my eyes.

Yeah, we cried, too--for joy...as I walked on the beach. At one point, I could not walk the length of my driveway or get in/out of the shower without assistance. I had such extreme exhaustion from anemia, shortness of breath, vertigo, ataxia and horrid joint, nerve and muscle pain from loss of muscle mass. I was told to get a scooter, take medications, live with it. I refused. I knew there had to be an answer for the dozens of symptoms that had evolved.

Never say die, squirmy girl! ;)

Healing happens.

squirmingitch Veteran
squirmingitch
Posted
  • Author

Oh, I know. Remember, I come from a line of Dutch people & who is more stubborn than Dutch? The people who were stubborn enough to build dykes capable of holding back the North Sea. The North Sea which is feared by the most experienced sea captains. The North Sea which is vicious & mighty & has a strength of untold proportions. These people hold it back & steal land from the mighty sea.

IrishHeart Veteran
IrishHeart
Posted

Now, that's what I'm talking about!

Warrior princesses, one and all. ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Daura Damm
Little Northern Bakehouse

Celiac.com Sponsor (A8-M):
Authentic Foods

squirmingitch Veteran
squirmingitch
Posted
  • Author
wink.gif
Di2011 Enthusiast
Di2011
Posted

You girls are adorable!

I'd love to hear what you guys eat and cook. The sal/iodine is so restrictive so maybe you can give me some inspiration??

squirmingitch Veteran
squirmingitch
Posted
  • Author

Here's what I'm eating Diane ---- about half way down the page. And I might add that the milk & cheese I'm eating is from a local dairy & has less iodine than anything I can get at the store.

http://www.celiac.co...ed/page__st__75

IrishHeart Veteran
IrishHeart
Posted

Here's what I'm eating

SQIRMY GIRL!!!

Wanted to tell you!! Alex told us about soy free mayonnaise on some thread? (which I can't find because I have my hands in about 3 or 4 dozen threads and I'm all over the place :lol: ) and hubs found it at the supermarket!

I have made my own mayo, but I don't wanna anymore! I want Hellmann's, dammit!!. :lol: :lol:

Well, Hellmann's (aka Best Foods) makes a canola oil mayo. NO SOYBEAN OIL! (they make an EVOO one too, I hear)

and she was not kidding---it's almost the same as regular mayo. I was skeptical, because I tried the Spectrum canola oil mayo--and I do NOT like that taste at all. Blech!!!!

But, this tasted pretty darn good!!

I am having an egg salad sammy today!!! yaaaay!!

Geesh, the littlest things make IH happy.... :)

If you cannot find it down there, tell me and I will ship you some. (Not kidding, I've done it before. No one should be deprived!)

squirmingitch Veteran
squirmingitch
Posted
  • Author

LOL! You're so sweeeeeeet. I have it on my grocery list for Monday & will look for it. If I can't find it around town then I may just take you up on your offer to ship me some.biggrin.gif

Ohhhhhhh, egg salad sandwich. Ohhhhhhhhh....... Soon, very soon I will do it. Hum. Maybe for my after dinner snack tonight!

And yeh, I don't want to make my own Mayo either. Biggest problem is the shelf life of it. But I did grow up with us making Mayo fairly often & it was YUMMY! But when we didn't make it ---- HELLMAN'S!!!!!!!!!!!!

What does EVOO mean?

Enjoy your egg salad sammy!biggrin.gifbiggrin.gif It's the little things that make us happiest right? Right!

IrishHeart Veteran
IrishHeart
Posted

What does EVOO mean?

extra virgin olive oil (sorry, I get lazy) :lol:

squirmingitch Veteran
squirmingitch
Posted
  • Author

No, no not lazy. I like learning the shortcut talk. I had an idea it was something to do with olive oil but couldn't think it out.

Hum. My egg salad sammy tonight will have to be with the crappy mayo with soy in it so I'd have to be very stingy ---- think I'll wait for Monday. It'll be that much better then.

dani nero Community Regular
dani nero
Posted

I should have read this thread a long time ago :-O

squirmingitch Veteran
squirmingitch
Posted
  • Author

Oh Dani, I thought you had. I thought I remembered you posting in it. I must be confused.How are you doing?

IrishHeart Veteran
IrishHeart
Posted

No, no not lazy. I like learning the shortcut talk. I had an idea it was something to do with olive oil but couldn't think it out.

Hum. My egg salad sammy tonight will have to be with the crappy mayo with soy in it so I'd have to be very stingy ---- think I'll wait for Monday. It'll be that much better then.

Let's do a "taste test review " then :lol:

squirmingitch Veteran
squirmingitch
Posted
  • Author

I could do that.smile.gif

IrishHeart Veteran
IrishHeart
Posted

I could do that.smile.gif

you are a most agreeable girl.

:lol:

After so many conversations with you now, miss squirmy, I am thinking it may be best that you and I do NOT live too near each other? :lol: :lol: :lol:

I have this feeling we could get into some trouble together. B)

....just sayin

squirmingitch Veteran
squirmingitch
Posted
  • Author

Like when we get old & decrepit & get sent to nursing homes? We could plan "break outs". I'd love it!laugh.gif

squirmingitch Veteran
squirmingitch
Posted
  • Author

Oh! And wouldn't we just cause a stir about the food & cc issues & true gluten-free eating? We'd be breaking into the kitchens at night & making things right.laugh.giflaugh.giflaugh.gif

IrishHeart Veteran
IrishHeart
Posted

:lol: :lol: :lol:

oh honey, by the time we are old, celiacs and gluten-freebies everywhere will have taken over and be ruling the world! No worries.

No nursing home can hold me....do they make nursing home RVs??

squirmingitch Veteran
squirmingitch
Posted
  • Author

Nursing home RV's indeed! Funny girl.laugh.gif

IrishHeart Veteran
IrishHeart
Posted

Nursing home RV's indeed! Funny girl.laugh.gif

:lol:

gotta laugh, hon

or roll over and die

I pick laugh

squirmingitch Veteran
squirmingitch
Posted
  • Author

Me too.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse


  • Member Statistics

    • Total Members
      130,534
    • Most Online (within 30 mins)
      7,748
    Barbx4
    Newest Member
    Barbx4
    Joined
  • Celiac.com Sponsor (A20):
    GliadinX

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):
    GliadinX


  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):
    Food for Life


  • Upcoming Events

  • Posts

    • Fabrizio
      Kan-101

      By Fabrizio · Posted

      Thanks for your article. 
    • NCalvo822
      Newly Diagnosed

      By NCalvo822 · Posted

      Thank you.  Very helpful.
    • knitty kitty
      Newly Diagnosed

      By knitty kitty · Posted

      Migraines can be caused by Thiamine deficiency.  Thiamine is a B vitamin that becomes depleted quickly because it can't be stored long.  All the  B vitamins work together to make energy, ATP, which is used to fuel all the cell activity.  Without Thiamine, the energy production cycle doesn't even get started.   There's studies done on mice showing thiamine deficiency affects the offspring of thiamine deficient mothers and fathers.  The offspring have fewer thiamine receptors and are prone to becoming thiamine insufficient quickly.  They have a higher metabolic need for thiamine.  Supplementing with extra thiamine helped them  tremendously. Migraines have run in my family for several generations, too.  Once I started taking TTFD, a form of thiamine that can enter cells without using thiamine transporters, my migraines have vanished.  TTFD is tetrahydrofurfuryl disulfide. Benfotiamine is another form that can improve migraine frequency, too. Thiamine is safe and nontoxic even in high doses.  There is no upper limit because thiamine has never caused a death even in high doses.  It is excreted via kidneys if not needed or not absorbed.
    • knitty kitty
      Lymphocytic Colitis with Celiac

      By knitty kitty · Posted

      Thank you, @Oldturdle, I greatly appreciate that.  I've always been a curious kitty.  I wanted to figure out why I didn't feel well because I knew it wasn't all in my head like they told me.  It pleases me to be able to help others in the same boat. Yes, alcohol prevents the absorption of thiamine and stops thiamine from working properly.  This can lead to Wernicke's Encephalopathy and Korsakoff syndrome, where thiamine deficiency severely affects brain function.  Doctors are trained to look for the triad of symptoms: opthalmoplegia (nystagmus), ataxia, and altered mental state.  However, not all people present with all three symptoms.  Many (80%) don't get diagnosed until their autopsy.   Alcohol has to be processed through the liver.  If there's insufficient thiamine, Alcoholic Fatty Liver develops.  In thiamine insufficiency, calories are turned into fat and stored in the liver instead of being turned into fuel ATP for the body.  Alcohol also prevents absorption of calories from food and other nutrients.   Non-alcoholic Fatty Liver can develop in nonalcoholics, storing excess calories as fat in the liver.  However, excess calories can also be turned into fat and stored in the abdomen, hence the increase in obesity.   In Celiac disease, we don't absorb sufficient nutrients like thiamine from our food.  If we eat a diet high in carbohydrates, we can run out of vitamins like thiamine and the other Bs needed to turn those calories into fuel ATP.  For every extra thousand calories of carbohydrates consumed, our bodies require 500 to 1000 mg of additional thiamine to process them into fuel, ATP,  the "bitcoin" of energy in our bodies.   Wernicke's encephalopathy can occur in non-alcoholic people, but doctors can miss the symptoms because the patient doesn't drink, and doesn't have all three symptoms of the classic Triad of symptoms seen in Wernicke-Korsakoff syndrome.  My doctors failed to diagnose me with thiamine deficiency, Wernicke's Encephalopathy,  because I didn't drink alcohol, although I had ataxia and an altered mental state.   Doctors don't think outside the box!   I went home and took thiamine.  I had improvement in my symptoms within an hour.  High doses of thiamine are required to correct Thiamine deficiency.  Thank God I had studied nutrition, microbiology, and the research of Dr. Derrick Lonsdale and Dr. Chandler Marrs.  ("Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition" is Drs. Lonsdale and Marrs' book.).  And I've kept learning and sharing that knowledge to help others.   It's wonderful you've been supplementing with vitamins so long!  Don't worry about the bright yellow urine.  That's excess Riboflavin B 2.  Interesting note, Riboflavin glows under black light!  Those lights used to detect where pets have soiled outside of the box, that's the Riboflavin in urine glowing.  Riboflavin can be put in sugar syrup when making rock candy and it will glow under black light.  Fun for Halloween. I hope you feel better, @Oldturdle.  If I can be of further help anytime, you can send a personal message here.  Thanks for reading my posts.  P.S. Thiamine deficiency and Wernicke's Encephalopathy are completely reversible if treated promptly with high dose Thiamine.
    • DebJ14
      Newly Diagnosed

      By DebJ14 · Posted

      Migraines ran in my family, on my father's side.  All of my female first cousins on that side, and our grandmother suffered from Migraines.  Grandmother died in 1984 so we do not know if she ever would have been diagnosed with celiac disease. However, all 4 of us cousins were diagnosed with celiac disease between 2003 and 2007.  The dermatitis herpetiformis rash is a blistery, super itchy rash.  When they do the biopsy they take it from non-involved skin that is next to the rash.  If done wrong, the results may not be accurate.  Have you ever had one done? In that case, I agree that maybe she has you still on gluten for a biopsy.  But, if she has not ordered it nor referred you to a gastroenterologist, then I would question her advice.  
×
×
  • Create New...