Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Trip To London


BabsV

Recommended Posts

BabsV Enthusiast

So, since the Polish doctors are rather stumped by my case of abdominal pain at the moment (actually they've been stumped for almost a year!) there is talk of sending me to London to see some specialists there (including getting a HIDA scan since it seems that "no one does those anymore in Krakow...we use MRIs" and I have a severe claustrophobia issue not to mention surgical staples that they weren't sure would be good for going in the machine.)

I'm wondering if it would be better to stay in a hotel (having to eat out) or a short-term apartment. How's the general awareness of gluten-free eating in London? Am I better off preparing my own meals? I know it would be cheaper, right?

Any opinions? Anyone living in London now? Visited recently?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



India Contributor

Hello,

I lived in London until recently. A short-term apartment might be good - alternatively, a breakfast only hotel might be ok too, if there is a fridge in your room for storing food.

For making food yourself, I would recommend Sainsbury's and M&S Food as supermarkets with good gluten labelling. There are lots of these around London.

For restaurants, I would recommend the following, which also have several locations in London:

- Leon (my favourite!)

- Wetherspoons

- La Tasca

- Cafe Rouge

I've also heard good things about an Italian place called Cotto (Open Original Shared Link) but I've not tried this myself.

If you're on Facebook, there are various UK coeliac groups who are very helpful, including Gluten Free Guerillas.

Hope your trip is useful and that your pain improves soon.

All the best,

India

India Contributor

p.s. Preparing your own food would definitely be cheaper - London is horribly expensive, sadly. Also, if you join the Leon and La Tasca mailing lists just before your visit, they may send you discount vouchers :)

BabsV Enthusiast

Wow, India, thanks so much. This is very helpful!

Gemini Experienced

Wow, India, thanks so much. This is very helpful!

I'll add my 2 cents worth.....London is pretty good with gluten-free and I would highly recommend a flat rental because you'll also have more room for the same price as a hotel. There is a phenomenal Whole Foods Market in Kensington, a couple of blocks from the Kensington High St. tube station that has tons of gluten-free foods and about the best selection of veggies and meats in central London. I'm not saying it's cheap but you'll have no trouble finding whatever you need there.

For restaurants, I like Cafe Rouge because they have done a super job with me and I have eaten there at least 6 times on various trips to London. Good French peasant food done simply and well. It's a chain and there are a few sprinkled around the city. For a chain, they are excellent.

As for Cotto.....they are on South Bank side of the Thames and I feel kind of guilty saying this because they were super nice people but.....the food is overpriced and, quite frankly, not as good as what I have made at home. It's run by first generation Italians and yes, they have all the Italian foods everyone loves but I was not crazy about their red sauce and the pizza is very, very pricey. Not worth it in my opinion. We spent almost $100.00 on a meal there and we each got a dish (2 of us) and I ordered a take away pizza to take back to our flat. We also had 1 drink each. Between the price of the food and service charges and tips, it was too expensive.

London is very expensive anyway and it annoys me to pay all the service fees and taxes they are charged in the UK. I am sure rents are astronomical in London, which is reflected in their pricing also. We heard rave reviews about the place and the owners were sweethearts but for what we paid, the food was just not up to snuff. I hate dissing a gluten-free eatery but I am being truthful.

It would be better for you to rent because breakfast can be eaten in to save money. You can also cook dinner in and eat out as a treat. That's what I do. But as far as people looking at you like you have 3 heads when you mention Celiac, it didn't happen and I have traveled there 3 times since diagnosis. Never had a problem at the vast majority of places I walked into.

Good luck with any testing and I hope your issues are resolved soon! Try to enjoy yourself a bit in London because it is a fantastic city, rich in history. I love it there...I just wish it weren't so expensive!

Gemini Experienced

Hello,

I lived in London until recently. A short-term apartment might be good - alternatively, a breakfast only hotel might be ok too, if there is a fridge in your room for storing food.

For making food yourself, I would recommend Sainsbury's and M&S Food as supermarkets with good gluten labelling. There are lots of these around London.

For restaurants, I would recommend the following, which also have several locations in London:

- Leon (my favourite!)

- Wetherspoons

- La Tasca

- Cafe Rouge

I've also heard good things about an Italian place called Cotto (Open Original Shared Link) but I've not tried this myself.

If you're on Facebook, there are various UK coeliac groups who are very helpful, including Gluten Free Guerillas.

Hope your trip is useful and that your pain improves soon.

All the best,

India

I have never heard of Leon, India, but thank you for this tip! I'll add it to my list.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.