Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh


elbar

Recommended Posts

elbar Apprentice

I have been diagnosed with DH and have been on a gluten-free diet for a month. I licked an envelope this morning by mistake and by 11:00 a.m., my stomach was protesting very vividly!

I didn't get diarrhea when eating gluten in the past, however, the itching was unbelievable. I'm wondering if having a small amount of gluten now, after being gluten-free for a month, could be causing this diarrhea.

Thanks in advance for your answers.

elbar63


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frenchiemama Collaborator

Well, it does for me.

carrielynn Apprentice
I have been diagnosed with DH and have been on a gluten-free diet for a month.  I licked an envelope this morning by mistake and by 11:00 a.m., my stomach was protesting very vividly!

I didn't get diarrhea when eating gluten in the past, however, the itching was unbelievable.  I'm wondering if having a small amount of gluten now, after being gluten-free for a month, could be causing this diarrhea. 

Thanks in advance for your answers.

elbar63

<{POST_SNAPBACK}>

Did you itching subside after going gluten-free? My 5-year old son scratches like crazy -- everywhere. He's been gluten-free (to the best of our knowledge) for 7 weeks and he's still scratching constantly. I contacted the doctor and he said it could take months for his skin to heal. We keep hoping for a miracle with his skin here, but it hasn't happened. However, his mood and energy are a lot better, so we're grateful for that.

Carrie

elbar Apprentice
Did you itching subside after going gluten-free?  My 5-year old son scratches like crazy -- everywhere.  He's been gluten-free (to the best of our knowledge) for 7 weeks and he's still scratching constantly.  I contacted the doctor and he said it could take months for his skin to heal.  We keep hoping for a miracle with his skin here, but it hasn't happened.  However, his mood and energy are a lot better, so we're grateful for that.

Carrie

<{POST_SNAPBACK}>

My itching stopped almost immediately after going gluten-free. I have read on these message boards that it can take quite a while, I guess I was just lucky to have such quick results. Hopefully his miracle will happen soon.

Elaine

cdford Contributor

Most of us with DH did not stop itching quickly. My outbreaks began to come further and further apart, but even small glutenings can mean weeks of itching and nasty looking skin. My daughter does not break out as quickly nor do hers last as long the longer she is gluten-free, but then she did not let hers go for more than 40 years without getting it diagnosed. At first, I did not have to get into gluten for an outbreak to occur. I began to wonder if the stuff just had to have lots of time to work its way out of my skin because it had been there so long.

Also, heat and lots of sunlight can trigger it even without a gluten incident. So can iodine so check your salt.

Rachel--24 Collaborator
Also, heat and lots of sunlight can trigger it even without a gluten incident. So can iodine so check your salt.

<{POST_SNAPBACK}>

I had radioactive iodine treatment for Graves Disease...the next day I got a weird blister on my face. At first I thought it was a pimple...it wasnt and it stayed for weeks. Ever since then I get them off and on. Sometimes they are symetrical (one on each cheek) or in very small clusters...sometimes its just one all by itself. They always come back pretty much in the exact same spots but they don't itch and dont look like a rash...just blisters that take forever to leave. I get the itchy rash on my arms but I'm not sure if its DH. What do you think? Could the iodine from the treatment have triggered it?

oakpoint9 Newbie

I have been gluten-free since March 05, I find , even the smallest amount causes me to break out, usually in a place that is in the healing stage. I have been really careful, but every week or two, I get into something. It is usually when I eat away from home.

I hope that someday we will all have a wonder cream that will work on all stages of our rashes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cdford Contributor

Yeah, mine keep breaking out in the same spots as well. They will scab over, heal, then break out again. We got cross contaminated at McD's yesterday and are breaking out again. I always know it is DH and not acne when it starts in my ears and hairline (not to mention that it starts to itch).

oakpoint9 Newbie

DH on the ears is the pits! It is so hard to get ride of. Not as painful as other parts of the body, but just as itchy. Luckily, I do not have any GI problems.

elbar Apprentice
DH on the ears is the pits!  It is so hard to get ride of.  Not as painful as other parts of the body, but just as itchy.  Luckily, I do not have any GI problems.

<{POST_SNAPBACK}>

I was recently diagnosed with DH but had no digestive problems. If you are glutened, what happens - do you start itching? I've been glutened accidently a few times and I not only get the itching and blisters back but also GI problems. Does anyone else get that also?

Thanks for your responses.

elbar

frenchiemama Collaborator
I was recently diagnosed with DH but had no digestive problems.  If you are glutened, what happens - do you start itching?  I've been glutened accidently a few times and I not only get the itching and blisters back but also GI problems.  Does anyone else get that also?

Thanks for your responses.

elbar

<{POST_SNAPBACK}>

Yep.

oakpoint9 Newbie

I start to feel neddles under my skin 3-4 hours after I eat something with Gluten.

Then the itch will start shortly after that, even wakes me up at night.

Rash and itch lasts 2-3 days and then 2-3 days for the area to completly heal.

I am very careful with my diet, but I still get Gluten.

  • 4 weeks later...
Emilynlukesmom Newbie

I had radioactive iodine treatment for Graves Disease...the next day I got a weird blister on my face. At first I thought it was a pimple...it wasnt and it stayed for weeks. Ever since then I get them off and on. Sometimes they are symetrical (one on each cheek) or in very small clusters...sometimes its just one all by itself. They always come back pretty much in the exact same spots but they don't itch and dont look like a rash...just blisters that take forever to leave. I get the itchy rash on my arms but I'm not sure if its DH. What do you think? Could the iodine from the treatment have triggered it?

<{POST_SNAPBACK}>

I have the same problem on my face. At first I thought it was acne, but it seeps like the blisters on my elbows. I put triamenacinalone on my face and it dries up, but won't go away. They keep coming back. :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,972
    • Most Online (within 30 mins)
      7,748

    Hawaiian Snow
    Newest Member
    Hawaiian Snow
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
    • cristiana
      Interesting, when I suffered for a few months with ectopics I noticed that carbohydrates would cause indigestion and bloating in my stomach, then that would lead to my heart skipping beats, and I could feel it in my throat, it was very unsettling.  My last serious bout of this was after eating a Muller Rice Pudding for breakfast.   I happened to be wearing a 48 hour halter at the time and cardiology picked it up, but they weren't worried about what they saw. There was some British doctor who'd made some videos on the Vagus nerve that I remember watching at the time which made sense of what I was experiencing, there did seem to be some sort of connection.
    • Scott Adams
      Here are summaries of research articles on celiac disease and migraines: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • Yaya
      I asked my cardiologist about stopping vitamins.  He said his tests account for all detectable vitamins from sources other than food.  I only need to stop them for a couple of days.  He has me keep records of meds and vitamins I've ingested over the past 10 days and prior and he does his calculations.   
    • jessysgems
      Reply to treats I try and eat to bring up the glucose. Sometime I get up 3 times a night and eat something. I don't think food is the issue. A lot of the food they say should help doesn't.  Many mornings my level is 59 and I feel sick, sometimes for hours. It has been recommended I go to an Endocrinologist.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.