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kevbogreen

By kevbogreen
in Coping with Celiac Disease

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kevbogreen Newbie
kevbogreen
Posted

Hi...my name is Kevin im 16 and i live in Arkansas...i just found out that i have celiac diease...and i was j/w if it was hard to cope with or easy to mannage? I would apprecate ur responses...

Kevin

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skoki-mom Explorer
skoki-mom
Posted

Hi Kevin,

I'm new to all this as well. Just wanted to say welcome and I'm sure you'll find some good information and support here. It's been pretty overwhelming the last week for me, but I'm doing ok and finding there are lots of gluten-free products to try, and of course the naturally gluten-free food as well! So far I'm not starving!

tarnalberry Community Regular
tarnalberry
Posted
Hi...my name is Kevin im 16 and i live in Arkansas...i just found out that i have celiac diease...and i was j/w if it was hard to cope with or easy to mannage? I would apprecate ur responses...

Kevin

<{POST_SNAPBACK}>

Welcome to the board. I'm sorry you need to be here, but glad you found us.

As for how hard celiac disease is to cope with, it pretty much depends on how well you cope with the diet. And that varies widely. If it means that you have to greatly change your eating habits, and you also are very uncomfortable being "different" from the crowd, it'll be harder than if neither of those is true. But it's a learning curve, and it'll take some time to learn and adjust to the diet.

Are your parents supportive of the diet and will be helping you keep the kitchen/food safe?

KaitiUSA Enthusiast
KaitiUSA
Posted

Welcome to the board.It is very easy to manage as long as you are 100% gluten free...if you stay gluten free you are good to go. You have to be extremely careful. It may seem a bit overwhelming at first because gluten is hidden under so much but then you'll see how much we can still have and good substitutes for the stuff we now can't have. If you need any info or someone to talk you can contact me anytime. I am 18 and I was diagnosed when I was 16 too.

It can be hard, especially at first, when people make comments about it...some people do not understand it.

kevbogreen Newbie
kevbogreen
Posted
  • Author

yea my parents have been supportive so far...but its only been about a week since i found out...so i dont know how far they will go...thanks for eveyones responses...

Kevin Green

Cindy Chabot Newbie
Cindy Chabot
Posted

Hi Kevin

I have been recently diagnosed along with my 16 year old son. There are a lot of gluten-free choices available which help to make dealing with this disease easier. The hard part is going to restaurants or just out with people, you have to be careful not to be glutened. I have found this forum an excellent place to find out information. My son is finding the diet not to bad to deal with. I hope you find some gluten-free food that you like.

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      It needs to be said that 50k IU daily is certainly safe for correcting vitamin D deficiency when used for a limited amount of time, for a few months maybe, as was the case in the two studies linked by knitty kitty. But it would not likely be a safe dosage when used for an indefinite period of time.
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Kathleen Mostek · Posted

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      dairy? gluten in chocolates?? calcium?

      By catnapt · Posted

      ack!! seriously???  just googled all the different things I ate Milky Way: Contains barley malt and is not gluten-free. Krackel: Contains barley malt.   good grief 
    • catnapt
      dairy? gluten in chocolates?? calcium?

      By catnapt · Posted

      oh I forgot I also had some Doritos (those are corn chips aren't they?)
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