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kevbogreen

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kevbogreen Newbie

Hi...my name is Kevin im 16 and i live in Arkansas...i just found out that i have celiac diease...and i was j/w if it was hard to cope with or easy to mannage? I would apprecate ur responses...

Kevin


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skoki-mom Explorer

Hi Kevin,

I'm new to all this as well. Just wanted to say welcome and I'm sure you'll find some good information and support here. It's been pretty overwhelming the last week for me, but I'm doing ok and finding there are lots of gluten-free products to try, and of course the naturally gluten-free food as well! So far I'm not starving!

tarnalberry Community Regular
Hi...my name is Kevin im 16 and i live in Arkansas...i just found out that i have celiac diease...and i was j/w if it was hard to cope with or easy to mannage? I would apprecate ur responses...

Kevin

<{POST_SNAPBACK}>

Welcome to the board. I'm sorry you need to be here, but glad you found us.

As for how hard celiac disease is to cope with, it pretty much depends on how well you cope with the diet. And that varies widely. If it means that you have to greatly change your eating habits, and you also are very uncomfortable being "different" from the crowd, it'll be harder than if neither of those is true. But it's a learning curve, and it'll take some time to learn and adjust to the diet.

Are your parents supportive of the diet and will be helping you keep the kitchen/food safe?

KaitiUSA Enthusiast

Welcome to the board.It is very easy to manage as long as you are 100% gluten free...if you stay gluten free you are good to go. You have to be extremely careful. It may seem a bit overwhelming at first because gluten is hidden under so much but then you'll see how much we can still have and good substitutes for the stuff we now can't have. If you need any info or someone to talk you can contact me anytime. I am 18 and I was diagnosed when I was 16 too.

It can be hard, especially at first, when people make comments about it...some people do not understand it.

kevbogreen Newbie

yea my parents have been supportive so far...but its only been about a week since i found out...so i dont know how far they will go...thanks for eveyones responses...

Kevin Green

Cindy Chabot Newbie

Hi Kevin

I have been recently diagnosed along with my 16 year old son. There are a lot of gluten-free choices available which help to make dealing with this disease easier. The hard part is going to restaurants or just out with people, you have to be careful not to be glutened. I have found this forum an excellent place to find out information. My son is finding the diet not to bad to deal with. I hope you find some gluten-free food that you like.

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    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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