Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Possible Dairy Intolerance


kaki-clam

Recommended Posts

kaki-clam Enthusiast

After many months of narrowing it down, i think i have dairy issues. Seems like i'm fine if i eat say gluten free bread that has milk in it, but if i were to have ice cream, or lots of cheese i am not.

I have read that you can't test for dairy issues.....does anyone else experience this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Metoo Enthusiast

Thats the way I am. I believe I am lactose intolerant. I can't have raw milk at all. Ice Cream I do eat, but I feel awful for hours later on. I can handle cheese in small amounts, yogurt and things that milk is in (baked goods)...but basically I try to only eat a small amount of these things.

kaki-clam Enthusiast
<br />Thats the way I am.
IrishHeart Veteran

So Delicious Coconut milk, creamer, ice cream and yogurt.

High calcium and tastes great!

Bubba's Mom Enthusiast

The enzyme that breaks down the lactose in dairy products is made on the tips of the villi. If you have any villi damage, lactose will give you trouble.

Some people take a supplement that helps break it down if they feel the need to continue eating it.

Yogurt and some cheeeses have the lactose processed out when they are made, so you could still eat them. If those bother you, you may have a problem with casein..the protein in milk?

If you take away whichever dairy bothers you, you may be able to enjoy it again once you've healed.

I ditto IrishHeart on the SoDelicious coconut milk. I get the vanila flavored milk for my cereal..it's yummy!

For a butter substitute I use Earth Balance soy free spread.

kaki-clam Enthusiast
<br />The enzyme that breaks down the lactose in dairy products is made on the tips of the villi. If you have any villi damage, lactose will give you trouble.<br />Some people take a supplement that helps break it down if they feel the need to continue eating it.<br /><br />Yogurt and some cheeeses have the lactose processed out when they are made, so you could still eat them. If those bother you, you may have a problem with casein..the protein in milk? <br /><br />If you take away whichever dairy bothers you, you may be able to enjoy it again once you've healed.<br /><br />I ditto IrishHeart on the SoDelicious coconut milk. I get the vanila flavored milk for my cereal..it's yummy!<br />For a butter substitute I use Earth Balance soy free spread.<br />
<br /><br /><br />

can you cook with that butter like regular butter? is there a better choice for cooking?

IrishHeart Veteran

<br /><br /><br />

can you cook with that butter like regular butter? is there a better choice for cooking?

Yes, like Bubba's Mom (or BM as I have called her for short on threads, but she probably does not like that :lol: )---

I use the Earth Balance Soy free too.

You can cook with it and use it in baking, too.

Works great. It's a blend of healthy omega oils.

It's not my favorite flavor, to be honest, but until I could tolerate dairy, it was very helpful! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AVR1962 Collaborator

Aged cheeses do not have lactose, the aging process loses the lactose (sugar), say is true for your good yogurts that are all sugar. If cheddar cheese is bothering you I would say it was lactose. If age cheese like parmesian (actual brick) is bothering you I would say it is casein (protein). There's other things in ice cream besides lactose they could be bothering you as well like beans such as guar or bean gum, I cannot eat them. If you cannot eat butter I do not suggest anything that can sit in the fridg and never grow mold as there is too many chemicals. Switch to a nut spread. If you are baking use shortening or oil instead when you can, margarine is really not a healthy food. If you want to try milk that is lactose free be very aware that other ingredients are put in almond, soy, coconut milk....things like carrageenan and the gums. The lactose enzymes do work. I was on them for a year, doing much better now.....still cannot drink the lactose free milk because of the gums. Read labels and let your body tell you the rest.

Bubba's Mom Enthusiast

<br /><br /><br />

can you cook with that butter like regular butter? is there a better choice for cooking?

I haven't tried baking with the Earth Balance. I use it on baked potatoes, veggies, stuff like that.

For baking, or gluten-free Krispy Treats I use coconut oil. The good kind..like Nutiva(organic, pure) It has a lot of health benefits, so I use it quite a bit instead of butter,and for browing meats, etc.

IrishHeart Veteran

I used it the EB in baked goods, bread, muffins, etc. It worked fine.

Skylark Collaborator

can you cook with that butter like regular butter? is there a better choice for cooking?

I asked this question recently on a food intolerance message board I'm on. Almost everybody who is dairy-sensitive, even people who are extremely sensitive, can tolerate ghee. It has a rich butter flavor and it's great for sauteeing. You can find it at Indian food stores or make your own from unsalted butter.

IrishHeart Veteran

I asked this question recently on a food intolerance message board I'm on. Almost everybody who is dairy-sensitive, even people who are extremely sensitive, can tolerate ghee. It has a rich butter flavor and it's great for sauteeing. You can find it at Indian food stores or make your own from unsalted butter.

I used ghee, too without issues. :)

pricklypear1971 Community Regular

I asked this question recently on a food intolerance message board I'm on. Almost everybody who is dairy-sensitive, even people who are extremely sensitive, can tolerate ghee. It has a rich butter flavor and it's great for sauteeing. You can find it at Indian food stores or make your own from unsalted butter.

Ghee is great!

Only caveat is that if you are trying to avoid inflammatory foods, ghee is out because it's an animal fat. But if lactose/casein is your concern then ghee away. I love it.

Skylark Collaborator

Ghee is great!

Only caveat is that if you are trying to avoid inflammatory foods, ghee is out because it's an animal fat. But if lactose/casein is your concern then ghee away. I love it.

I've seen info that the butyric acid and other short-chain fatty acids found in butter and ghee are anti-inflammatory. :) I don't think ghee would be included in the animal fat/inflammation link. It's just good stuff all around!

The long-chain saturated fatty acids, especially stearic acid in grain-fed beef, are definitely an issue for inflammation.

kaki-clam Enthusiast
<br />Ghee is great!<br /><br />Only caveat is that if you are trying to avoid inflammatory foods, ghee is out because it's an animal fat. But if lactose/casein is your concern then ghee away. I love it.<br />
<br /><br /><br />

I am still pretty new to figuring out the dairy intolerance, i will still need to narrow it down as to whether it's lactose or casin, i am pretty sure it's lactose, but not 100%. I am off on vacation next week and on a cruise, so i am not going to go crazy over this til i get back.

i really appreciate all the help. I am going to go dairy free the minute i get home from vacation and see if it helps!

IrishHeart Veteran

I've seen info that the butyric acid and other short-chain fatty acids found in butter and ghee are anti-inflammatory. :) I don't think ghee would be included in the animal fat/inflammation link. It's just good stuff all around!

Yes, I used ghee with the understanding that it is an ANTI-INFLAMMATORY.

"Ayurveda medicine has traditionally used ghee in place of butter for its various healing benefits, according to Yoga Journal online. One benefit of incorporating ghee into the diet is its anti-inflammatory properties. Ghee is thought to naturally lubricate connective tissues in the body, which can help to improve flexibility and provide the body with essential antioxidants. This effect is especially helpful for healing, as the formula can enhance the immune system to reduce inflammation, speed the recovery of wounds and heal blisters"

pricklypear1971 Community Regular

I've seen info that the butyric acid and other short-chain fatty acids found in butter and ghee are anti-inflammatory. :) I don't think ghee would be included in the animal fat/inflammation link. It's just good stuff all around!

The long-chain saturated fatty acids, especially stearic acid in grain-fed beef, are definitely an issue for inflammation.

I'll try to find the link to where I found it...but I swear you hear 20 things all different.

I turned down a share in a milk cow because I'm trying to cut dairy. I wouldn't drink the milk, but I'd sure make ghee and yogurt and butter. And ice cream and cheese...

I think grass-fed milk is better for you than even grain fed organics (at least that's what "they" say)....

Skylark Collaborator

No need to dig up links. I've read 20 things all different too. :lol: It's looking up butyric acid on Pubmed and seeing good things that convinced me ghee/butterfat is a good fat (in moderation of course). I also think there is a lot of wisdom accumulated in the 5,000 years of ayurveda and they hold ghee in very high regard for its healing properties.

I've also read the same thing you have that grass-fed > grain-fed organic > conventional as far as vitamin K2 and and omega-3 fatty acids. The tradeoff of course, is that there can be more pesticide residue in the non-organic, grass-fed milk.

pricklypear1971 Community Regular

No need to dig up links. I've read 20 things all different too. :lol: It's looking up butyric acid on Pubmed and seeing good things that convinced me ghee/butterfat is a good fat (in moderation of course). I also think there is a lot of wisdom accumulated in the 5,000 years of ayurveda and they hold ghee in very high regard for its healing properties.

I've also read the same thing you have that grass-fed > grain-fed organic > conventional as far as vitamin K2 and and omega-3 fatty acids. The tradeoff of course, is that there can be more pesticide residue in the non-organic, grass-fed milk.

Problem is I'm in AZ and grass fed is uh, not likely. I can get raw milk from a farmer (and she's babied beyond belief-one happy Jersey) and she has a pasture, etc but grass is just not here.

Sigh.

Oh well, it's good to know ghee is a "go"! Thanks!!

Juliebove Rising Star

I don't know where you read that you can't test for dairy intolerances. You can. I have been tested. I am intolerant.

IrishHeart Veteran

There is, indeed, a lactose intolerance test.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,905
    • Most Online (within 30 mins)
      7,748

    klmgarland
    Newest Member
    klmgarland
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.