Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coeliac Disease And Anxiety


Dellers

Recommended Posts

Dellers Apprentice

Hi, this is the best place for me to post I think. Since a long battle with Doctors trying to prove myself that there was something wrong with me and always hearing its IBS has really affected me so much that now if I get a pain here or there I automatically think its something serious. Its getting to the point now of daily panic attacks or always on the edge about my health encase they are wrong again :( . How do you cope with this ? if you have something similar.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Chad Sines Rising Star

GI causes anxiety feelings, anxiety causes GI issues. They seem to feed on each other and it can be hard to differentiate the two. it used to really tick me off how people were so quick to throw OUT "oh, it's just anxiety..."

I had people tell me that my issues were anxiety. Once I started eating right it was a near instantaneous improvement.

Ninja Contributor

Well first of all, I think you are in the right place! There is so much information here – beyond what you'd even dream of finding. B)

Sometimes what helps me is to document the pain and look for patterns of frequency and/or intensity (increasing/decreasing) over a month or two. You almost helps to think of the doctor's as a resource vs. the be all and end all, if that makes sense.

Hope this helps some!

~Laura

Bubba's Mom Enthusiast

Hi, this is the best place for me to post I think. Since a long battle with Doctors trying to prove myself that there was something wrong with me and always hearing its IBS has really affected me so much that now if I get a pain here or there I automatically think its something serious. Its getting to the point now of daily panic attacks or always on the edge about my health encase they are wrong again :( . How do you cope with this ? if you have something similar.

Have you had your iron levels tested? My anxiety was through the roof when my iron level was low.

I think I'll always have "some" anxiety about getting glutened, but the overwhelming kind went away once I got my iron level up a bit.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      4

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - Scott Adams commented on Scott Adams's article in Product Labeling Regulations
      2

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    3. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      nothing has changed

    4. - Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Is it gluten?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.